#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! | 11 May 2018

A selection of online health related newspapers/magazines/newsletters/blogs/events

Hope you like our newletter’s new title & mini-revamp



Daily! Above The Fold in Healthcare is out!


Twice daily!  Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.

The Latest Health News & Related Subjects from Rhia at your fingertips

Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.


Twice daily!  Fibromyalgia ME Chronic Pain

Fibromyalgia ME Chronic Pain is out!  How it’s Costing You in Happiness, Financially and in Your Relationships!

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher


Twice daily!  Focus on Disability Newsletter

For disabled people, the elderly and their carers in the UK

  • Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
  • Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links!


Daily!  Brainless Blogger News

Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/  blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.


Daily!  UK Care Guide

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.


Ronny Allan’s Latest Daily Newsletter via Nuzzel

Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.


NEW POLL | When considering clinical trials, where do you think as a patient you should be involved?  |  FibroFlutters | March.. ongoing!

NEW POLL | When considering clinical trials, where do you think as a patient you should be involved?

Plus a few extras: Not in chronological order!

Change over!   432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018


Thankyou to everyone who participated in the ‘Impatient’ survey

The ‘im-patients’ Summit


We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.

Watch this space for further developments

FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 
You all need to pitch in!!


#RareRevolution #raredisease #rarebabies 

Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018

Quoted from e-news mail:

‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’

Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>


#chronicpain  #chronicillness  #alternativetherapy #complementary  #CuppingTherapy  #health  #Spoonie 

Cupping Therapy for Chronic Pain…  |  BARMAC5  |  BACK PAIN BLOG UK…  |  11 May 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Cupping therapy is given by using glass cups to create localised partial vacuums. It’s an ancient Chinese therapy, found in records dating back 3500 years, and involves using heat inside glass or bamboo cups. This draws up the underlying tissues and causes the blood to form in the area and help the healing process there.’

Follow the link below to read more  >>>

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 


#recipes #vegetablelasagne #dailynosh #eatingwell

Spring Vegetable Lasagna with Fresh Spinach Pasta | Today’s Nosh | EatingWell Daily Nosh | 11 May 2018 

Visit the magazine site for more recipes and sign up their newsletters >>>

#technology #healthcare 

Guest Post:  How Technology Helped My Family Receive a Better Healthcare Experience | Brittany Quemby | EMR and HIPAA |  11 May 2018

About the Author  Quoted from the site  >>>

“The following is a guest blog post by Brittany Quemby, Marketing Strategist for Stericycle Communication Solutions,as part of the Communication Solutions Series of blog posts. Follow and engage with them on Twitter: @StericycleComms

Visit the EMR & HIPAA for more news and information  >>>



#AI #socialresponsibility #robotics #bigdata #technologies #policymakers

Artificial intelligence needs to be socially responsible says new policy report  | University of Manchester | 10 May 2018

Excerpt from:

Professor Anna Scaife, Co-Director of the University’s Policy@Manchester team, explains: “Although the challenges that companies and policymakers are facing with respect to AI and robotic systems are similar in many ways, these are two entirely separate technologies – something which is often misunderstood, not just by the general public, but policymakers and employers too. This is something that has to be addressed.”

Read more at: https://phys.org/news/2018-05-artificial-intelligence-socially-responsible-policy.html#jCp



Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  Alzheimer’s Tries to Kill Everyone It Touches |  8 May 2018

Also including:

  • How the Discovery of Alzheimer’s World Changed My Life
  • New Research on Treating Alzheimer’s and dementia
  • The Importance of Positive Thinking in Dementia Care

and much more…

Visit their Home Page  to see what else you can read and also sign-up for their newsletters  > >>


#autoimmunity #scleroderma

Spotlight on Scleroderma  |  New post on Your Autoimmunity Connection | 24 April 2018

What is scleroderma?, taken from the post:

Scleroderma is a rheumatic autoimmune disease targeting connective tissue. As the name suggests, the most common visible symptom is hardening and tightening of the skin.

Read more via this link  >>>

About Your Autoimmunity Connection  >>>

Visit the website to read other posts related to autoimmunity and sign-up for their newsletters  >>>


Excerpt from post:

‘At Your Autoimmunity Connection, our goal is to shed light upon the current state of autoimmune diseases – from patient stories to updated statistics and emerging research – in order to ultimately move towards tackling this invisible epidemic.’


#Fibro2018  #Fibromyalgia #chronicillness

The Fibro Warriors | I have fibromyalgia and no one believes me, not even my doctor | Servanne Edlund | 8 May 2018

Opening lines:

How do I talk to my doctor about fibromyalgia?

This is, unfortunately, a very common question among Fibro Warriors. Very often, an individual will suffer from chronic pain, joint dysfunction, Fibro Fog and sometimes added issues that are commonly associated with fibromyalgia.

About the author  >>>

Visit their website and sign-up for their newsletters  >>>




MSWorld, News, Events & More!  |   30 April 2018

Keeping you up-to-date on all things MS & MSWorld


The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!


#Integrity #Advocacy #Diabetes

Weekly digest for Diabetes Blog – Happy-Medium.net  |  7 May 2018

Quote from Diabetes Blog, ‘Finding Integrity’:

“Integrity is one of those words that is easy to define, but harder to live.”

Read more via this following link  >>>

About the blog author Stephen & Happy-Medium.net  >>>


Useful Post!

What causes my Fibro flares? My top 6 causes |  Julie Ryan  |  Counting My Spoons  |  30 April 2018


‘Flares are increased pain or fatigue, and often both. Sometimes it’s just a fatigue flare, or just a pain flare. When it’s one or the other I can often handle it better, when it’s both, I’m good for nothing. For some a flare might mean that they can’t move to get out of bed, while others may be able to get out of bed but then may struggle to do even the most basic tasks.’

Read more via this link >>>

Why not visit Counting My Spoons website and sign up for the newsletter >>>



#ChronicLife  #ChronicBlog #Spoonie #Holidays #Disability

Weekly digest for ‘A Chronic Spoonful’ |  My Holiday Packing List: Disability Edition | 7 May 2018  1 minute read


‘Packing and preparing for a holiday can be stressful for anyone, let alone people with disabilities or chronic illness. There is always so much to remember, and someone almost always leaves something behind!’

Read more via this link  >>>

About the blog author Erin & ‘A Chronic Spoonful’  >>>



A Montana Woman’s Suicide Prompts the Question: Are We Doing Enough?  |  Ed Coghlan.  |  National Pain Report  | 7 May 2018


‘For Dr. Terri Lewis, who is a Montana native and has been a leading voice in what she believes is a failure of the health care system to treat chronic pain, this should be a wake up for states who she believes are failing their patients. She thinks her home state is a particularly negative example—she calls it a “pain care desert”. She also said that Montana leads the nation in suicides of persons with complex care needs, like chronic pain.’

Read more via this link  >>>

About the Author  >>> Ed Coghlan

About national Pain Report >>> nationalpainreport.com/about-us


MAGAZINE  #fibro  #ME  #CFS 

Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue  |  May 2018

Happy Birthday to Flare Magazine from all at FibroFlutters

Fiesta_0.preview fiesta monkey

Read the magazine via this link >>> 

Why not visit Flare magazine website and sign up for the magazine >>>

#AAPM American Academy Pain Management

AAPM Meeting Called Cohesive and Focused | Beth Darnall, Ph.D  |  National Pain Report  |  1 May 2018 


“The imperative to address the suffering of individuals with chronic pain was a major theme throughout the conference. A one-size-fits-all approach flies in the face of everything we know about pain. Pain is fundamentally individual and requires individual approaches. As such, great concern was expressed for rigid rules and policing around pain treatments.

About the post author  >>>

Check out the AAPM website >>>

Sign up for newsletters and read more posts on National Pain Report’s website  >>>



#chronicpain  represented on US TV show  #patientopinion 

Otis – TV Portrayal of Serious Illness/Chronic Pain  | By Joanna Mechlinski | National Pain Report  |  3 May 2018

Opening paragraph:

‘A recent story arc on NBC’s Chicago Fire involved firefighter Otis (Yuriy Sardarov) struggling to regain his job after being shot during a routine call. The situation was grim – the bullet hit Otis in the neck, dangerously close to the spine , necessitating an operation which might paralyze or kill him. Yet to opt out of the operation might also prove detrimental.

Read more via this link  >>>

Sign up for newsletters and read more posts on National Pain Report’s website  >>>


News & Updates: Collagen Supplements, Health Plan Changes & More  |  Arthritis Foundation Newsletter |  30 April 2018

Headlines  >>>

  • Taking This Might Relieve Joint Pain
  • Health Plan Change Affects Arthritis Patients
  • Clinical Trial Investigating Ways to Prevent OA
  • It’s Hard to Always Do What You Should
  • Stepping Out to Conquer Arthritis

Plus more…

Link to the newsletter  >>>

Arthritis Foundation website where you can find lots of information and sign up for newsletters  >>>


Excellent newsletter!

Girls With Guts  (GWG)| May 2018 Newsletter | Get in the spirit! |  2 May 2018

Visit the site to find out more about GWG and the work they do >>> 


#Recipes #FishRecipes

Brain-Boosting, Healthy Fish Recipes  | Eating Well  |  2 May 2018

Today’s Nosh

Take care of your heart and brain, all while satisfying your stomach. These fish recipes are super delicious and the key to a healthier you.

Here’s a few to tantalise you >>>

  • Salmon & Asparagus Farro Bowl
  • Hanoi-Style Tuna Patty Salad
  • Stuffed Fresh Sardines
  • Mediterranean Tuna-Spinach Salad

Sign up for the newsletter or subscribe for the magazine >>>


Now Available! ADVIA Centaur EPO Assay | Siemens Healthineers diagnostics for professionals |  Anaemia |  30 April 2018

Enhance Your Anemia Menu

Erythoropoietin (EPO) is used as an aid in the diagnosis of anemias and polycythemias.

Visit the website to find out more about Halthineers and Siemens, sign up for their newsletter >>>


A change in the right direction!

NHS to be upgraded to Windows 10 as government agree to Microsoft deal  |  Hannah Crouch  |  Digital Health  |  30 April 2018

About the Author and other posts >>>

Visit the Digital Health website for more articles and sign up for their newsletter >>>


ME Awareness!

Sign the Scottish Petition for ME – anyone can sign  |  #MEAction  |  1 May 2018


Why we’re Targeting the NIH for #MillionsMissing  |  #MEAction  |   30 April 2018


‘The disease affects a high proportion of Americans – estimates range from 1 to 2.5 million people; the disease is highly debilitating, leaving 75 percent unable to work and 25-29 percent housebound or bed-bound; and the disease takes an annual $17 to $24 billion toll on the economy.


Visit the website for more #MEAction news and sign up for newsletters >>>

#MHAM #MigraineAwareness #HeadacheAwareness 

June is National Migraine & Headache Awareness Month (MHAM)  

2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History

Click this link to find out all about the campaign and how to get involved  >>>

MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.

Need your help NOW for June 2018 launch

June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.

CHAMP Home page >>>  headachemigraine.org/

 Research & Clinical Trial matching

Headache and Migraine Clinical Trials  |   Research & Clinical Trials > Headache and Migraine Clinical Trials  | National Headache Foundation

Match to clinical trials in 60 seconds

Know your options
Access the latest treatments
Receive world class care

Click the link below to check it out and subscribe to their newsletter  >>>

‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation

About the National Headache Foundation  >>>



Welcome to Debilitating Diseases newsletter | Subject:  How to Cure Rheumatoid Arthritis Permanently? | 3 May 2018

Selected by blogger ‘chronicbodypain’

Home Page >>>

#Patientempowerment #PatientVoice  #Patients

The patient era  | IPSEN |  Isabelle Bocher-Pianka | The Pharma Times  |  23 April 2018

Opening lines:

‘It all starts with listening to patients

Patients are more empowered than ever and the patient voice is increasingly heard by decision makers in regulatory and care pathways.’

Read more via this link  >>>

About the Author >>>


#CancerAwareness #AutoimmuneAwareness


Your Co-Hosts >>>  Dr. Heather Paulson ND, FABNO  &  Holly Bertone  CNHP, PMP

  • Over 15 Medical Experts will explore the connection between cancer and autoimmune disaease 

A couple of things from the agenda

  • The Hidden Causes of Cancer and Autoimmune Disease
  • The Inflammation Connection
  • Estrogen Dominance and its Impact

Click this link to find out more and to register for free >>>



Heart News!

Heart Matters |  British Heart Foundation newsletter  |  22 April 2018


  • How tiny tech could help treat heart failure
  • Could just one drink a day increase your heart risk?
  • 7 easy ways to add fibre to your diet

Link to newsletter >>>

Discover the BHF online community, find lot’s of healthy heart information and sign up for their Newsletters >>>

Voices required!  Nursing associate consultation |  The Nursing and Midwifery Council  |  9th April to 2 July

We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.

This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.

Visit the link below >>> 

The Nursing and Midwifery Council  >>>

“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”

Download the FREE Gastroenterology Infographic: Medisafe Insights Pharma Should Know  |  Medisafe  |  via BioPharma Dive Marketing |  11 April 2018


‘In this infographic we answer:

• Why gastrointestinal patients say they miss doses
• How GI drug adherence rates vary by day and time
• What are the top GI companies by highest adherence
• Adherence rates by type of GI treatment
• And, what are the GI meds with the highest adherence rates’

Who are Medisafe? >>>

Visit Biopharma Dive and subscribe to their BioPharma Dive: Marketing newsletters  >>>


Change-over NEW PODCAST

Airing Pain 102: Chronic Pain and Resilience, and the “21 Days of Pain” |  Pain Concern  |  1 May 2018


What can be done for athletes at the highest level in the context of chronic pain, and how one man with a spinal injury found himself “in the zone” through cycling.

This edition is funded by a grant from the Stafford Trust.

Airing Pain channel on Audioboom >>>

Pain Concern website >>>

Newsletters from News-medical | Life Sciences >>>

News Medical | Arthritis Newsletter | 3 April 2018


News Medical |Allergies Newsletter | 17 April 2018 


Latest!  News Medical |Dermatology Newsletter | 3 May 2018

Newsletters from News Medical |Genetics | 18 April 2018  

Headliner:   Discovery of 100 new genes may aid research into pigmentation diseases


Latest!  News Medical |Neurology / Neuroscience Newsletter | 24 April 2018

Latest! |News Medical |Pharmacy / Pharmacology Newsletter | Headliner:  People who use medical marijuana have higher rates of prescription drug use, study finds |  27 April 2018


News Medical |Psychiatry Newsletter |  12 April 2018  



Latest!  News Medical  |  Rare Diseases  |  18 April 2018 


Latest!  |  News Medical |Rheumatology Newsletter |  Headliner:  Environmental pollutants found to worsen rheumatoid arthritis  |  27 April 2018  


Meditation Change over!   |  432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018

If you enjoy this then please visit >>>

Via:  www.youtube.com


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Also like to share other posts by fellow bloggers and organisations too

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com and let me know, always happy to help 🙂

Many thanks for reading and helping to share the news that other folks like you write, or, find.


Many thanks SQUARE POSTER Communit


  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
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  • The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
  • Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews.  It also does not mean that we are affiliated with anyone unless it is clearly stated.
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
  • Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
  • Always be aware of Internet security and note that we cannot be held responsible for external websites.
  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018