Here at FibroFlutters we have been advocating for the caregiver voice, and perspective, to be taken into account for a few years now. We even took it to the eyeforpharma Barcelona conference back in 2018 and have continued to put it forward as a must thing to do. It is fantastic to see that it is being recognised and becoming an ‘actionable’ consideration of the drug development process.
This webinar is must ‘go-to’ because it will delve in to the purpose of why the caregiver perspective is important.
A new approach to caregiver engagement and co-creation transforming insight generation, patient care and outcomes
Take a look at the caregiver landscape in the US and you will find that there were a staggering 44 million caregivers providing support last year.
Naturally, people are living longer and healthcare is fragmenting. Caregivers, can provide valuable insight into the ‘real-world patient experience’ which can provide great potential for improving outcomes through helping to increase trial recruitment, reduce participant drop-outs and increase patient retention, and develop much better relationships between patients-clinical-pharma through using better patient engagement processes.
Yet the caregiver’s role in delivering patient care is often underappreciated – their insight overlooked.
It’s time this ended.
Another cultural evolution is needed – patient centricity alone is not good enough anymore. Caregivers must also be central or care will suffer.
https://www.eyeforpharma.com/patientusa/webinar3/?partner=efp-social
This webinar will be exploring how to design Patient Support Programmes (PSPs) that are also caregiver centric. It will redefine existing co-creation best practises, and outline key capability and engagement changes needed to be successful.
We’re just at the start of a new relationship. Let’s make sure it lasts.
FREE webinar The Caregiver & #PatientSupportProgramme Gain a 360-degree view of #treatmentdelivery by mapping how the #caregiver role evolves into #PSP design. #cocreation #trialretention #drugdevelopment #clinicaltrials @RE_Pharma
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Join this webinar to learn how to:
- Gain a 360-degree view of treatment delivery by mapping how the caregiver role evolves and varies over time into PSP design
- Caregiver centricity: co-create tools that beat caregiver burnout and reduce care burden to ensure continuity of care
- Use caregiver insights and iterative design processes to demystify the complexity of care delivery for better patient outcomes
Register for the webinar via this link:
https://www.eyeforpharma.com/patientusa/webinar3/?partner=efp-social

Pharma Awards Europe 2020 VIRTUAL
Reuters Events formerly eyeforpharma
DEADLINE EXTENDED to Friday 17th July!
Gain global recognition in the virtual Reuters Events Pharma Awards Europe 2020. To find out how you can be part of the biggest celebration in pharma, download your entry pack here
FibroFlutters supporting eyeforpharma by Reuters as Patient, Health, Research & Pharma advocates, we are non-commercial.
FibroFlutters disclaimers, privacy policy and social links

FIBROFLUTTERS CHRONIC, INVISIBLE & RARE ILLNESS SUPPORT
Patient Advocacy Organisation & Online Community Support
Patient * Health * Research * Pharma * Advocacy
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
and if you have a problem we are always open to discussion, just e-mail Carole
PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.
PLEASE NOTE: THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole
And my profile on Synapse where you can read about the initiatives that I am involved with
https://synapse.pfmd.org/experts/O6wWb7Kd
FibroFlutters on Synapse where you can read about the initiatives that we are involved with
https://synapse.pfmd.org/organizations/fibroflutters
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