Category: EVENTS

NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

The more I think about it, the fact that data sits in silos and is in different formats is the thing that is preventing true patient centricity, because it’s what stops you determining whether intervention X actually created result Y within the population, and hence reward the right kind of behaviour.’

PAUL SIMMS, CHAIRMAN EYEFORPHARMA… Read More NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

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Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

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FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters

The discussions will look to give you a ‘step-by-step’ guide as to what you need to ‘successfully implement digital solutions, overcome challenges in scaling, early stage planning and cross-company consistency, to ensure your customer interactions are a success’. … Read More FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters

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Up for debate next week | Patient Summit | Humanising Healthcare, Building trust, Health Literacy and Disease Awareness

Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics! Humanising healthcare: Carole Scrafton & Cécile Tardy Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care. While the benefits… Read More Up for debate next week | Patient Summit | Humanising Healthcare, Building trust, Health Literacy and Disease Awareness

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#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge.  A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities.… Read More #RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

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eyeforpharma’s Marketing and Customer Innovation Europe Summit, 15-16 October, London (sponsored)

rs’ are still high on the agenda along with building ‘customer partnerships’, using ‘education-led’ approaches, ‘digital’ initiatives and of course! ‘big data’.… Read More eyeforpharma’s Marketing and Customer Innovation Europe Summit, 15-16 October, London (sponsored)

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Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

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How Clinical Trials Are Evolving | CheckRare.com

In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com

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