Join us for an International virtual dance celebration and let your hair down. An event benefiting organizations around the globe who are empowering patients to take charge of their own health
The 2nd International Dance Celebration will be next Saturday March 6
Join the event hosted by DJ Jonathan Slate at Shake It So
2PM EST (19:00 UTC) & 8PM EST (01:00 UTC March 7).
An eclectic blend of funk, soul, & rock from the ’60s to the present
A note from DJ Jonathan Slate:
I hope you can make it. And bring a friend!
This time we will be raising funds through a suggested donation of any amount to support several nonprofits that do work in the areas of patient advocacy and support. These organizations include People With Empathy, Ataxia and Me, The Light Collective, and FibroFlutters Patient Advocacy Organisation. Links to their site are available on our website. Suggested donation of any amount to support several patient advocacy nonprofits
Did you say website? We have a website?! Why yes, we do. And, in other news, it is no longer 1998. And yes, there was sort of a website last time. But now we have a name, and a domain, and everything. Check out the splendor that is: www.shakeit.so
I’m really excited about this event, because our partners at these organizations do amazing work, and they seem really excited, too, and I think we’re going to blow our attendance records through the roof!Jonathan Slade
Why join the International Dance Celebration
This event is an opportunity to distract ourselves away from the difficulties of life for a short spell. It is good to let go once in a while and step away from the negatives in life. As organisations it is our celebration to honour Rare Disease Day and show our stripes.
Some of you may be thinking ‘dance, I can’t do that because of my disabilities’. Well, I’ll be dancing from my sofa! For example, chair dancing, wheelchair dancing and any kind of dancing you can manage is fine. Come and join us and just watch, enjoy the community spirit and our company for a short while.
We are a Patient Advocacy Organisation & online social media communications network
FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.
We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.
We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms.
SLOGAN: #chronicillnessVOICE for everyone #notjustpatients
- We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
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Social and useful links
Its A Doddle – Mapping the communities that care
By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.
SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019
Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!
Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.
FibroFlutters are continuously…
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
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Online Events, Online Parties, Online Community Parties #dance #free #charity #awareness #donation #global #online #socialevents #raredisease #family_friendly