Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics!
Humanising healthcare: Carole Scrafton & Cécile Tardy
Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care.
While the benefits of technology to accelerate R&D and innovation are promising, is digital the answer to the human needs of those facing sickness?
How do we ensure that the ‘care’ component of healthcare still remains the focus in an increasingly digital and connected world?
Living with sickness is a truly human experience, how do we balance these emerging tensions, combine the best of both technology and humanity, still provide comfort and when needed hold a hand?”
Take a read of this article written by Tom Murphy that I sourced from ‘Medical Express‘, OCTOBER 8, 2019, that gives you an excellent example of ‘holding a hand’ which goes beyond comforting and the need for quick / immediate access to answers from a doctor.
© 2019 The Associated Press. All rights reserved.
#healthcare #digital #AI #technology
There are other discussions going to be taking place
All the round tables are co-chaired by
Considering Chronic diseases are on the rise…
How can digital help us to become more actively involved in our own health? Disease Mapping through Health Apps for example collecting data that can help pharma understand our diseases better, whilst we get to self manage to a better level!
Should a better understanding of patient experience be the driver behind disease awareness? The question could be… Is it the driver behind disease awareness, which then helps to improve communications, and also, to develop a level of trust between pharma and patients?
October is Health Literacy Awareness Month and an issue that as patients we feel to be a very important issue to address. It is great to be able to debate it, and hopefully, to help build a bridge between pharma and patients by creating possible solutions.
Thinking about medical literature, jargons and general language, and how it is written… Will improving health literacy help to create a better relationship between patients and pharma through having easier, and understandable, communications?
Then, will that help to improve the shared decicion making process?
Having a true understanding of what our diseases are, and how they affect us, will help them to understand our ‘needs’ to a much better level, the kind that brings us closer together and be able to communicate easier. This is my own opinion!
Decision making could become a ‘shared experience’ meaning patient involvement, and engagement, could become more ‘viable’ as well as successful. This is my own opinion!
Is this true? Does having a better understanding of disease awareness improve shared decision making?
Richard Stephens | Alan Thomas
Through learning to understand our diseases better, and how they affect us, it should develop a better understanding of the patient experience.
In my own opinion!! This means that learning about disease awareness, how to create a shared decision making experience through using a communicable language understood by both patients, and pharma, should improve the level of trust!
Considering the above… Would this help to bridge the gap between patients, and pharma, by improving their relationships enough to improve the level of ‘trust’?
Take a look at the video showcase below
eyeforpharma Patient-led round-tables 16th Annual Patient Summit 2019
Many thanks for reading.
Wishing everyone wellness
Carole – CEO & Co-Founder ‘FibroFlutters Advocacy Group’
Projecting the voices of many… not just my own!
However, the ‘opinions’ in this article are completely my own, and no-one else took part in its writing!!
I am attending this event at the discretion of eyeforpharma and its ‘patient policy‘.
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
- Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah JarvisDo you have Irritable Bowel Syndrome (IBS)? Irritable Bowel Syndrome can be quite debilitating and many members of FibroFlutters have been diagnosed with it. To help people understand the condition better, and raise awareness, I share this video and information leaflet. The intense pain leaves me pacing and then writhing, and pacing and writhing…. …… Read More Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
- Precision Medicine Forum PATIENT WEEK – Change of date.Precision Medicine Forum – Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.… Read More Precision Medicine Forum PATIENT WEEK – Change of date.
- Voice your opinions to improve medical products and servicesGet paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!… Read More Voice your opinions to improve medical products and services
- RARE Summit 21 – it’s more than an event – it’s where the magic happens!RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.… Read More RARE Summit 21 – it’s more than an event – it’s where the magic happens!
- Fibromyalgia Awareness Week 2021 – #BecomeFibroAwareUnfortunately, there is no one-size fits all solution to the management of fibromyalgia.… Read More Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
- International Ataxia Awareness Day 25th September with ‘Ataxia and Me’The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’. Our mission is to bring back some of the order to the lack of order It is the term used for a group of neurodegenerative diseases that affect balance and coordination.… Read More International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
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