Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics!
Humanising healthcare: Carole Scrafton & Cécile Tardy
Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care.
While the benefits of technology to accelerate R&D and innovation are promising, is digital the answer to the human needs of those facing sickness?
How do we ensure that the ‘care’ component of healthcare still remains the focus in an increasingly digital and connected world?
Living with sickness is a truly human experience, how do we balance these emerging tensions, combine the best of both technology and humanity, still provide comfort and when needed hold a hand?”
Take a read of this article written by Tom Murphy that I sourced from ‘Medical Express‘, OCTOBER 8, 2019, that gives you an excellent example of ‘holding a hand’ which goes beyond comforting and the need for quick / immediate access to answers from a doctor.
© 2019 The Associated Press. All rights reserved.
#healthcare #digital #AI #technology
There are other discussions going to be taking place
All the round tables are co-chaired by
Considering Chronic diseases are on the rise…
How can digital help us to become more actively involved in our own health? Disease Mapping through Health Apps for example collecting data that can help pharma understand our diseases better, whilst we get to self manage to a better level!
Should a better understanding of patient experience be the driver behind disease awareness? The question could be… Is it the driver behind disease awareness, which then helps to improve communications, and also, to develop a level of trust between pharma and patients?
October is Health Literacy Awareness Month and an issue that as patients we feel to be a very important issue to address. It is great to be able to debate it, and hopefully, to help build a bridge between pharma and patients by creating possible solutions.
Thinking about medical literature, jargons and general language, and how it is written… Will improving health literacy help to create a better relationship between patients and pharma through having easier, and understandable, communications?
Then, will that help to improve the shared decicion making process?
Having a true understanding of what our diseases are, and how they affect us, will help them to understand our ‘needs’ to a much better level, the kind that brings us closer together and be able to communicate easier. This is my own opinion!
Decision making could become a ‘shared experience’ meaning patient involvement, and engagement, could become more ‘viable’ as well as successful. This is my own opinion!
Is this true? Does having a better understanding of disease awareness improve shared decision making?
Richard Stephens | Alan Thomas
Through learning to understand our diseases better, and how they affect us, it should develop a better understanding of the patient experience.
In my own opinion!! This means that learning about disease awareness, how to create a shared decision making experience through using a communicable language understood by both patients, and pharma, should improve the level of trust!
Considering the above… Would this help to bridge the gap between patients, and pharma, by improving their relationships enough to improve the level of ‘trust’?
Take a look at the video showcase below
eyeforpharma Patient-led round-tables 16th Annual Patient Summit 2019
Many thanks for reading.
Wishing everyone wellness
Carole – CEO & Co-Founder ‘FibroFlutters Advocacy Group’
Projecting the voices of many… not just my own!
However, the ‘opinions’ in this article are completely my own, and no-one else took part in its writing!!
I am attending this event at the discretion of eyeforpharma and its ‘patient policy‘.
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in and be socially responsible for each other!!
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PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.
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MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole
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- Guest content: Managing Diabetes: How Technology Can Help'…The Dario LC Blood Glucose Management System features a lancing device, glucose meter, smartphone app, and Bluetooth connectivity to allow you to easily analyze readings, spot trends, and share results.'
- Guest content: Diabetes resources by Dana Brown from Health Conditions resource website.Check out these resources provided to us by Dana Brown from healthconditions.info who kindly helped me to add new listings for our readers looking for information and articles related to Diabetes. A kind offering, and hopefully a great new resource relationship! HealthConditions.info : Connecting You to the Health Information You Need Most. Here is what … Read more
- Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole ScraftonIn all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn't I. – closing thoughts
- Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.It is time to pat yourselves on the back for being actively involved to help create change.
- Happy ThanksgivingWishing you all wellness from FibroFlutters Happy Thanksgiving Huge #gratitude to all of our #American #friends for your #support of our #healthcare #advocacy + for your #friendships. #strongertogether #chronicillness.Wishing you all wellness + a fabulous day from @FibroFlutters + me @Scrufton73 aka Carole
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