Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics!
Humanising healthcare: Carole Scrafton & Cécile Tardy
Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care.
While the benefits of technology to accelerate R&D and innovation are promising, is digital the answer to the human needs of those facing sickness?
How do we ensure that the ‘care’ component of healthcare still remains the focus in an increasingly digital and connected world?
Living with sickness is a truly human experience, how do we balance these emerging tensions, combine the best of both technology and humanity, still provide comfort and when needed hold a hand?”
Take a read of this article written by Tom Murphy that I sourced from ‘Medical Express‘, OCTOBER 8, 2019, that gives you an excellent example of ‘holding a hand’ which goes beyond comforting and the need for quick / immediate access to answers from a doctor.
© 2019 The Associated Press. All rights reserved.
#healthcare #digital #AI #technology
There are other discussions going to be taking place
All the round tables are co-chaired by
Considering Chronic diseases are on the rise…
How can digital help us to become more actively involved in our own health? Disease Mapping through Health Apps for example collecting data that can help pharma understand our diseases better, whilst we get to self manage to a better level!
Should a better understanding of patient experience be the driver behind disease awareness? The question could be… Is it the driver behind disease awareness, which then helps to improve communications, and also, to develop a level of trust between pharma and patients?
October is Health Literacy Awareness Month and an issue that as patients we feel to be a very important issue to address. It is great to be able to debate it, and hopefully, to help build a bridge between pharma and patients by creating possible solutions.
Thinking about medical literature, jargons and general language, and how it is written… Will improving health literacy help to create a better relationship between patients and pharma through having easier, and understandable, communications?
Then, will that help to improve the shared decicion making process?
Having a true understanding of what our diseases are, and how they affect us, will help them to understand our ‘needs’ to a much better level, the kind that brings us closer together and be able to communicate easier. This is my own opinion!
Decision making could become a ‘shared experience’ meaning patient involvement, and engagement, could become more ‘viable’ as well as successful. This is my own opinion!
Is this true? Does having a better understanding of disease awareness improve shared decision making?
Richard Stephens | Alan Thomas
Through learning to understand our diseases better, and how they affect us, it should develop a better understanding of the patient experience.
In my own opinion!! This means that learning about disease awareness, how to create a shared decision making experience through using a communicable language understood by both patients, and pharma, should improve the level of trust!
Considering the above… Would this help to bridge the gap between patients, and pharma, by improving their relationships enough to improve the level of ‘trust’?
Take a look at the video showcase below
eyeforpharma Patient-led round-tables 16th Annual Patient Summit 2019
Many thanks for reading.
Wishing everyone wellness
Carole – CEO & Co-Founder ‘FibroFlutters Advocacy Group’
Projecting the voices of many… not just my own!
However, the ‘opinions’ in this article are completely my own, and no-one else took part in its writing!!
I am attending this event at the discretion of eyeforpharma and its ‘patient policy‘.
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
- RAREfest22 – At the forefront of this event are the patients themselves!RAREfest22 is the world’s only rare disease-inspired festival attracting an audience of stakeholders alongside the public. Festival-goers listen to expert talks, watch films, interact with around 25 exhibits, hear powerful patient stories and mingle with those taking part and others attending.… Read More RAREfest22 – At the forefront of this event are the patients themselves!
- International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFluttersIt doesn’t matter where you live in the World when you are given your fibromyalgia diagnosis, one of the first things you want to know is where to get information that you can rely on.… Read More International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters
- Redevelopment and rebranding underway at Flutters and StruttersOur site is currently old and sporting some posts that need attention. We need to get rid of dead links and update everything. Redevelopment and rebranding is essential to us moving forwards.… Read More Redevelopment and rebranding underway at Flutters and Strutters
- Real World Evidence Live: Rare Diseases & Innovative TherapiesReal-World Evidence 2022: Rare Diseases and Innovative Therapies will unite healthcare stakeholders to discuss and advance agile strategies for accelerating collaboration and patient focus in a post-COVID Europe.… Read More Real World Evidence Live: Rare Diseases & Innovative Therapies
- My experience – First face-to-face event in 2 years!This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.… Read More My experience – First face-to-face event in 2 years!
- Patient Engagement Day with Prime Patient – Did you miss it?Patient Engagement Day with Prime Patient – Did you miss it? UPDATED to include an article by Olivia Kersey, Patient Strategist, at PEP Talks, which outlines the highlights of the very first annual Patient Engagement Day.… Read More Patient Engagement Day with Prime Patient – Did you miss it?
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