May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

May 12, 2019 fibrofly73

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

April 18, 2019April 30, 2019 fibrofly73

Patient Newsletters | 17 March / 14 March 2019

Dreaming is crucial to normal brain function, but certain sleep and dream behaviours may be an indicator of underlying health issues. We examine what your dream patterns can reveal about your health ahead of World Sleep Day.
Patient Newsletter | Subject: Give us a smile! | 17 March 2019… Read More Patient Newsletters | 17 March / 14 March 2019

March 24, 2019April 29, 2019 fibrofly73

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

March 10, 2019September 1, 2019 fibrofly73

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

January 28, 2019September 1, 2019 fibrofly73

Patient Newsletter | Subject: The best hangover prevention tips | 30 December 2018

How to practise self-care
Can mindful drinking improve your health?
How to run a 10k with no experience
How to eat healthily on a budget
How to be a healthy vegetarian or vegan… Read More Patient Newsletter | Subject: The best hangover prevention tips | 30 December 2018

December 31, 2018May 16, 2019 fibrofly73

Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | December 2018

@SuzanneRastrick @SueBrownSB @BritOrthopaedic @HMSACharity @NASSexercise @thecsp @VersusArthritis @eular_org Edgar Stene Prize @TheKingsFund @WorkFoundation … Read More Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | December 2018

December 17, 2018May 16, 2019 fibrofly73

Asking all #patients! Would you like to help shape the direction of ‘Im-patient’ and help design a conference for #pharma

Let’s not lose momentum – Im-patient’s must go onwards to keep achieving results! We want your support to ensure that we can run another im-patient event in Barcelona, which is where the idea was first forged – and where there will be quite a large #pharma audience of around 1300 people. I am of course… Read More Asking all #patients! Would you like to help shape the direction of ‘Im-patient’ and help design a conference for #pharma

November 20, 2018September 1, 2019 fibrofly73

Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

It will make it easier for chronic organisations and groups that offer support to find each other once it get’s going. It is currently a free service too and they build your page saving you the hassle and energy.… Read More Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

November 19, 2018November 27, 2018 fibrofly73

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton