Article | Telephone Difficulties with Fibromyalgia & Chronic Fatigue Syndrome

The following post discusses what it is like for people with Fibromyalgia & Chronic Fatigue Syndrome (CFS) when they are talking on the telephone and the difficulties it can cause them.

Article link:  Telephone Difficulties with Fibromyalgia & Chronic Fatigue Syndrome    If you hate the phone, You’re Not Alone, (Updated March 07, 2015.)


My brain is like the Bermuda Triangle...
Brain Fog makes me forget what’s said normally, never mind phone calls!

What difficulties does dealing with telephone calls and conversations cause you?

Does it zap your battery power?, plus make you weak and tired like you’ve walked 1/2 a mile and need to rest for half an hour.  (if a call is as long as 30 -60 minutes it will put me to sleep for sure for about 2 1/2 hours)

Do you find it difficult to focus on the conversation because of your brain fog, or the noises coming from outside are distracting you?  (I usually can’t hear properly because of background noise and do have problems understanding what people are saying, especially if they have strong accents/dialects, talk too fast or plainly just mumble)

Were you already doing 2 tasks and the phone call wasn’t one of them so in essence you performed 3 tasks and not just 2?  (With me the call usually wipes me out if it’s a long one, longer than 10 minutes, and the other 2 tasks will be left undone or half finished)

Do you have problems understanding what is being said or remembering what is being said.  When you hang up can you remember what the call was about 30 minutes later?  (I usually can’t)

Does the physical activity of actually holding the phone itself cause you pain and discomfort at the time of the call?  Can you feel the aching in your arms and wrists later on from holding the phone for so long.  (I must admist I have poor arm strength and arthralgia in my handa, so my arms and hands do hurt afterwards)

Do you have problems recalling information, forgetting what you’re saying and names of people you know because of the fog when talking on the phone?  (I know this happens all the time and not just when on the phone)

Please tell us how ‘using a telephone’ affects you and how you work your way around the difficulties it causes you as a Fibro + CFS patient in the reply/comment box.

Author FibroFlutters Logo are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.

FibroFlutters Information banner
FibroFlutters Information banner

We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms. 

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients


  • We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
  • That this site uses google analytics to collect demographic information for content decision making purposes only and not to sell to 3rd parties.

Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.

SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.

FibroFlutters are continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. 
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from. PLUS please remember to read their privacy policies.  

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes. If you have any problems we are always open to discussion, just e-mail Carole

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!  

You all need to pitch in and be socially responsible for each other!!


4 thoughts on “Article | Telephone Difficulties with Fibromyalgia & Chronic Fatigue Syndrome

  1. My very big world shrunk to a small one in 1999. I had the most horrible flu that never got better. With tremendous support from my husband and family, I was diagnosed with Fibromyalgia within 6 months of my first episode. Through years of ups and downs (and lots of medication cocktails) I have lived the spectrum of great and horrible days/weeks/months over the past 17 years.
    The telephone was once my friend. I LOVED talking endlessly to friends and family about anything and everything. I am no longer a fan of this mode of technology. Thankfully, most people genuinely understand my plight. There are people, however, who have counted on me for support over the years
    and truly feel the need to talk to me for a very long time on the phone. I care deeply for these people so I feel guilty because I believe they really need my support. But they know how taxing these conversations are for me. This is an internal battle I struggle with often. I would be interested to hear other
    Fibromyalgia sufferers perspective on this issue.

    1. I understand Jodi.
      I can’t stand the weight of holding the phone, and thenthere’s the factor that I can’t hear it properly if on speaker phone because background noise is always amplified… not to mention the persistent tinnitus in my left ear 😮

      I do feel noise hypersensitivity has a lot to do with mine 🙂

      I have had family members and friends complain for years because I never answer my phone, or even worse… Skype! Video calling when feeling fatigued and looking like death warmed up is not an option!!

      If only they’d understood back then, luckily and thankfully the people that matter in my life all understand now, well almost 🙂

      Life with #chronicillness #chronicpain #JHS #fibro #mentalhealth +more has bore me many a sceptic this last 20yrs but I am surviving it.

      Wishing you wellness and less pain
      Carole Sian 🙂

Comments are closed.