The following post discusses what it is like for people with Fibromyalgia & Chronic Fatigue Syndrome (CFS) when they are talking on the telephone and the difficulties it can cause them.
Article link: Telephone Difficulties with Fibromyalgia & Chronic Fatigue Syndrome If you hate the phone, You’re Not Alone, (Updated March 07, 2015.)
What difficulties does dealing with telephone calls and conversations cause you?
Does it zap your battery power?, plus make you weak and tired like you’ve walked 1/2 a mile and need to rest for half an hour. (if a call is as long as 30 -60 minutes it will put me to sleep for sure for about 2 1/2 hours)
Do you find it difficult to focus on the conversation because of your brain fog, or the noises coming from outside are distracting you? (I usually can’t hear properly because of background noise and do have problems understanding what people are saying, especially if they have strong accents/dialects, talk too fast or plainly just mumble)
Were you already doing 2 tasks and the phone call wasn’t one of them so in essence you performed 3 tasks and not just 2? (With me the call usually wipes me out if it’s a long one, longer than 10 minutes, and the other 2 tasks will be left undone or half finished)
Do you have problems understanding what is being said or remembering what is being said. When you hang up can you remember what the call was about 30 minutes later? (I usually can’t)
Does the physical activity of actually holding the phone itself cause you pain and discomfort at the time of the call? Can you feel the aching in your arms and wrists later on from holding the phone for so long. (I must admist I have poor arm strength and arthralgia in my handa, so my arms and hands do hurt afterwards)
Do you have problems recalling information, forgetting what you’re saying and names of people you know because of the fog when talking on the phone? (I know this happens all the time and not just when on the phone)
Please tell us how ‘using a telephone’ affects you and how you work your way around the difficulties it causes you as a Fibro + CFS patient in the reply/comment box.
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Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
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