#chronicillnessVOICE Aug 17 health, medical, pharma and research news



#chronicillnessVOICE Aug 17 – health, patients, medical, research, pharma related news for everyone #notjustpatients

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Please note that we are not medical professionals

Any information read or shared on, to, or from this website should not override any advice given to you by your own Doctors.

#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth


PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.


#chronicillnessVOICE Aug 17 – NEWS

Editors pick of the industry and patient newsletters

Virtual transformation and re-staining of one tissue biopsy stain (H&E) into three special stains using deep neural networks. Credit: Ozcan Lab @ UCLA
Virtual transformation and re-staining of one tissue biopsy stain (H&E) into three special stains using deep neural networks. Credit: Ozcan Lab @ UCLA

by UCLA Engineering Institute for Technology Advancement

Opening lines: In order to perform medical diagnoses, pathologists visually inspect histochemically stained tissue biopsy sections. The hematoxylin and eosin (H&E) stain is the most used histochemical stain in pathology, covering the majority of the human tissue biopsy stains performed globally…..

More information: Kevin de Haan et al, Deep learning-based transformation of H&E stained tissues into special stains, Nature Communications (2021). DOI: 10.1038/s41467-021-25221-2
Journal information: Nature Communications

Sourced via: Technology newsScience X

Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.

In the Department of Immunology at the University of Washington, Frank Soveg conducts research in Ram Savan's lab, which studies genetic resistance and susceptibility to infectious diseases. Credit: Ram Savan Lab
Sensor spies hideouts for ​virus replication inside cell membranes  |  Phys.org  AUGUST 14, 2021, Biology / Cell & Microbiology / Molecular & Computational biology
In the Department of Immunology at the University of Washington, Frank Soveg conducts research in Ram Savan's lab, which studies genetic resistance and susceptibility to infectious diseases. Credit: Ram Savan Lab

Sensor spies hideouts for ​virus replication inside cell membranes | Phys.org AUGUST 14, 2021, Biology / Cell & Microbiology / Molecular & Computational biology

by University of Washington School of Medicine

Opening lines: While some types of RNA viruses cloak themselves to hide inside a cell and create copies of themselves, a “detective enzyme” might be attuned to their whereabouts. A slight variation in their genomic code gives some people’s cells the capacity to produce this sensor.

More information: Frank W Soveg et al, Endomembrane targeting of human OAS1 p46 augments antiviral activity, eLife (2021). DOI: 10.7554/eLife.71047
Journal information: eLife

Not a plain language summary!


Sourced via: Biology news, – Science X

Science X Daily and the Weekly Email Newsletter are free features that allow you to receive your favorite sci-tech news updates in your email inbox


by Beth Newcomb, University of Southern California

Opening lines: A new study has shown that treating type 1 diabetes-prone mice with the small protein MOTS-c prevented the immune system from destroying insulin-producing pancreatic cells, effectively preventing the onset of the autoimmune disease.

Medical and research news

In mice that had been genetically engineered to develop autoimmune diabetes, “killer” T-cells (darker spots) infiltrate and destroy insulin-producing cells in the pancreas (left). Treatment with injections of MOTS-c reduced T-cell infiltration and prevented the onset of the disease (right). Credit: University of Southern California

Small protein protects pancreatic cells in model of type 1 diabetes  |   Medical Xpress  AUGUST 16, 2021, Medical research / Diabetes

In mice that had been genetically engineered to develop autoimmune diabetes, “killer” T-cells (darker spots) infiltrate and destroy insulin-producing cells in the pancreas (left). Treatment with injections of MOTS-c reduced T-cell infiltration and prevented the onset of the disease (right). Credit: University of Southern California

More information: Byung Soo Kong et al, Mitochondrial-encoded MOTS-c prevents pancreatic islet destruction in autoimmune diabetes, Cell Reports (2021). DOI: 10.1016/j.celrep.2021.109447
Journal information: Cell Reports


Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.

Sourced via Medicine and Health newsScience X


NEWS RELEASES – NIH-funded study suggests a single skills-based session on pain management packs a punch | 08/16/2021

National Center for Complementary and Integrative Health (NCCIH)

Results show that a rapid “empowered relief” approach can add to the range of nonpharmacologic treatment options.

READ MORE: A Single-Session Pain Management Skills Class Benefits Patients With Chronic Low-Back Pain | Publication Date: August 16, 2021


NEWS RELEASES – NIH scientists develop faster COVID-19 test | Monday, August 16, 2021

National Eye Institute (NEI)

Technique avoids RNA degradation and time-consuming extraction.


Illustrator: Alan Defibaugh

Disruptive Leg Movement? – Managing Restless Legs Syndrome | NIH Health Information Newsletter Thursday, July 29, 2021

An overwhelming need to move your legs may be restless legs syndrome. Learn tips to relieve discomfort. (From NIH News in Health)


NIH…Turning Discovery Into Health®

About the National Institutes of Health (NIH): NIH, the nation’s medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases.

For more information about NIH and its programs, visit www.nih.gov.

Inside the deal: Sanofi flipped from sell-off to merger in lead up to $3.2B Translate buyout | Endpoints News – August 16, 2021

Kyle Blankenship – Managing Editor


Opening lines:

Prior to its $3.2 billion acquisition of mRNA player Translate Bio earlier this month, French drugmaker Sanofi considered dumping a quarter of its shares in the firm before ultimately flipping the script and buying the biotech outright at a premium.

Inside the deal: Sanofi flipped from sell-off to merger in lead up to $3.2B Translate buyout | Endpoints News – August 16, 2021

As Biden signals interest in linking drug prices with R&D costs, new study finds costs per NME are increasing | Endpoints News – August 16, 2021

Zachary Brennan – Senior Editor

President Joe Biden last week signaled an interest in linking drug prices to R&D costs as part of his wider pledge to bring down the cost of prescription drugs. The details of how to track such a link between R&D and price still need to be ironed out in Congress.

As Biden signals interest in linking drug prices with R&D costs, new study finds costs per NME are increasing | Endpoints News – August 16, 2021

Sourced via: John Carroll — Endpoints News | Subscription may be required

Endpoints News

Essential biopharma news and analysis
Independent journalism since 2016

Brain Gene Expression Patterns Altered by Chronic Opioid Use | Neuroscience News August 15, 2021

Source: Elsevier

Opioid use disorder affects genes associated with proinflammatory immune molecule encoding and genes associated with remodeling the extracellular matrix, suggesting the connection between neurons may be altered as a result of opioid use. Additionally, those with OUD have higher levels of microglia in the brain.


The affected genes fell into two broad categories: genes encoding proinflammatory immune molecules; and those involved in remodeling of the extracellular matrix, which suggests that connections between neurons may have been altered by opioid use. Image is in the public domain

Original Research: Open access.


Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.


Scientists unlock clues to determining how safe vaccinated people are from Covid-19 | STAT Morning Rounds | Aug. 16, 2021

By Andrew Joseph, covers a range of topics, from addiction to public health to genetics.

It’s a pressing goal for scientists who are still trying to understand what immunity to the coronavirus looks like, how robustly vaccines protect us over time, and how protected people are who’ve had and recovered from Covid-19.


Please note some subscriptions may require a fee.


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RAZ Memory Cell Phone Is A Simple Phone For Individuals With Alzheimer’s, Dementia Or Other Intellectual Disabilities by Venkat, Assistive Technology Blog, August 16, 2021

“To help individuals with Alzheimer’s, Dementia or other intellectual disabilities communicate easily with their loved one and to keep them safe from scammers,  RAZ Mobility has created the RAZ Memory Cell Phone – a one touch dial picture phone that keeps everything really simple for seniors.”

Excerpt: RAZ Memory Cell Phone Is A Simple Phone For Individuals With Alzheimer’s, Dementia Or Other Intellectual Disabilities by Venkat, Assistive Technology Blog, August 16, 2021

See Your Own Potential: Changing Your Mindset By Terri, Reclaiming HOPE August 13, 2021

Mindset is probably the most important — and least addressed — part of making wellness changes. Our mindset about ourselves and our abilities is usually deeply ingrained in us, and a negative mindset can be difficult to overcome.

See Your Own Potential: Changing Your Mindset By Terri, Reclaiming HOPE August 13, 2021

Credit: My Rockin Disabled Life

How Can People With Physical Disabilities Benefit From A FitBit? | by My Rockin Disabled Life July 20, 2021


Road trip anxiety By Zechariah Richardson, SATONMYBUTT August 5, 2021

“I am going to post about something that I have told very few people, and that is my road trip anxiety or anxiety about travelling! I am writing about it because it is something that has had a massive impact on my life and the life of my family and, as many people do, I […]”

Opening lines: Road trip anxiety By Zechariah Richardson, SATONMYBUTT August 5, 2021

From IBD patient to IBD mom: What I’ve learned By Natalie hayden, Me,lights camera crohn’s, July 19, 2021

The perspective and strength IBD has given me when it comes to coping with painful pregnancy-related issues like SI Joint Dysfunction, Symphysis pubis dysfunction, acid reflux that required prescription medication, and C-section recoveries.

Excerpt: From IBD patient to IBD mom: What I’ve learned By Natalie hayden, Me,lights camera crohn’s, July 19, 2021

HEALTH AWARENESS DAYS/WEEKS/MONTH FOR SEPTEMBER… By BACK PAIN BLOG UK…, August 9, 2021


Huge thanks to Blogger Bar for putting this awareness post for September together!



WordPress.com

What to do if your appointment is delayedCoping with medical delays: why it’s important to persist | Heart Matters – British Heart Foundation


If you’ve had an appointment delayed or cancelled, we explain what to do and how to get help if your symptoms worsen.

Woman using an outdoors gym - 10 things to do in a park this summer | Heart Matters - British Heart Foundation

7 healthy summer recipes

Get into the spirit of summer with these mouth-watering recipes. Full of fresh, vibrant flavours, these heart-healthy dishes are also perfect for a picnic or barbecue. 

  • Tandoori salmon kebabs
  • Bulgur wheat salad
  • Summer fruit smoothie ice lollies
  • Piri-piri chicken
  • Pasta with low-fat pesto and peas
  • Banana and mango ice cream sundae
  • Bruschetta starters

Visit bhf.org.uk

British Heart Foundation is a registered Charity No. 225971. Registered as a Charity in Scotland No. SC039426.

women talking outside
Photo by August de Richelieu on Pexels.com

Have you been vaccinated yet?

How to speak to someone who’s hesitant about vaccines | Patient 07-May-21

Authored by Abi Millar · Reviewed by Dr Sarah Jarvis MBE

Despite the success of the COVID-19 vaccination programme, many people have concerns about getting their jab. Here’s how to broach the conversation with vaccine-hesitant family or friends.

How to speak to someone who’s hesitant about vaccines | Patient 17-Aug-2021

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Egton Medical Information Systems Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions

https://patient.info/news-and-features/plantar-fasciitis-how-to-ease-pain-and-find-the-right-treatment

Sign up to receive their e-News in your mailbox!

Registered number: 10004395 / Registered office: Fulford Grange, Micklefield Lane, Rawdon, Leeds, LS19 6BA. Patient is a UK registered trade mark. https://patient.info/


NHS Covid-19 app engineer talks updates, the ‘pingdemic’ and data| Digital Health Andrea Downey 12 August 2021 | DIGITAL PATIENT

“The NHS Covid-19 app will be updated next week to allow people to add their vaccination status to skip isolation.”


Independent news, intelligence, events and leadership networks on health IT

Digital Health provides independent business, policy and technology news, research and events focused on developments in health IT in the NHS and UK health.  Our coverage is focused, original and authoritative.  Over 20,000 readers subscribe to Digital Health’s newsletters.

About Digital Health Intelligence Limited


Rare Disease Focus: Metabolic Diseases – Check Rare

A selection of articles about Rare Disease Focus: Metabolic Disorders

https://checkrare.com/diseases/metabolic-disorders/


FDA Approves New ERT, Avalglucosidase Alfa, for Late-onset Pompe Disease | Check Rare | Published on: Aug 6, 2021


The Food and Drug Administration (FDA) has approved avalglucosidase alfa (Nexviazyme) for the treatment of late-onset Pompe disease in patients 1 year of age and older.

By: Victoria Radke


Keep up to date with Rare Disease and sign up for Check Rare newsletters

CheckRare.com


Fabry Disease: Gene Therapy Shows Promising Results | Patient Worthy August 5, 2021

By James Moore

Opening lines: According to a story from BioPharma Divegene therapy for Fabry disease is still in its early stages of development. However, it is already beginning to show potential as a game-changing therapy for people living with this rare disease. 


What are your thoughts on being a rare disease advocate? Share your stories, thoughts, and hopes with the Patient Worthy community!

Patient Worthy

Subscribe to Their Newsletter


Meeting Coverage – HIMSS
Health IT Needs to Play Catchup With Customer Service for Patients | MedPage Today August 13, 2021

by Joyce Frieden, Washington Editor, MedPage Today

— “In terms of getting data to the patient … healthcare is quite a ways behind”

MedPage Today

Click here to read the August e-News in your browser | Ellen Bayens

A great resource for recipes, podcasts and articles that are appropriate for anyone with Celiac Disease and living a Gluten-free life. No matter where in the world that you live!


“The Celiac Scene™ is your premier resource for fabulous gluten-free living in Victoria, Vancouver Island & the Gulf Islands. Owned & operated by celiacs, we guide you to restaurants we trust and  local gluten-free products we love! We even tell you where to purchase them, at the very best prices. Enjoy national ‘celiac’ news, local reviews and non-stop gluten-free event notices. The Celiac Scene is your gateway to Gluten-Free Paradise!”

Ellen Bayens – https://theceliacscene.com/

EMJ
Explore our dedicated COVID-19 pages

Out Now: New Issue of EMJ Radiology

An open-access eJournal that provides healthcare professionals with peer-reviewed articles written by experts, exclusive interviews, and highlights from the European Congress of Radiology (ECR) 2021. These are accompanied by abstract summaries of presentations from the congress.


DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li

http://news.emjreviews.com

EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates


NEW ISSUE OF GOLD OUT NOW!

Subscription is required

https://www.emg-gold.com/


Garden Rescue’s Charlie Dimmock praised as she shows support for cause close to her heart | JUNE 23, 2021 BY EVE CROSBIE | Hello Magazine

The gardening expert has been talking about this rare genetic condition credit: hello magazine

Charlie had been advocating and raising awareness of Ehler’s-Danlos Syndromes, a set of rare genetic connective tissue disorders.


“It is not known whether Charlie suffers from the condition herself, as she has never explicitly said so. She has, however, opened up in the past about the benefits of gardening on her health.”

Subscription Terms and Conditions for Hello Magazine


Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
Taryn is delivering the Ataxia UKs medical guidelines to her GP in …
Patient Engagement With Patient Focused Medicine Development
The PFMD network is making sure to aggregate existing knowledge and tools, …
Clinician Series is back with a Fresh new format – AIMed
Starting on September 28 and 29, AIMed will go live with a …
Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
Do you have Irritable Bowel Syndrome (IBS)? Irritable Bowel Syndrome can be …

Ehlers-Danlos Awareness

Ehlers-Danlos Syndromes

Regarding Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD’s) we have been providing information and support for a few years now. The difference now is that it is more noticeable that we do. This section for Rare Disease has been a long time in the planning and now EDS has a proper home on FibroFlutters website.

As an organisation FibroFlutters & ZebraStrutters support Ehlers Danlos Support UK (EDS UK) and Ehlers Danlos Society, and the Hypermobility Association (HMSA). Our doors are open to all. We are interested to hear your stories and are willing to share them here for you. You might have interesting articles and research that you think we should have on the site. When you have awareness campaigns or upcoming events we are also happy to help circulate them across our network.

If you are interested in contributing, or have something to share please contact Carole via the button below. 

Also, if you would like us to source some information for you please just ask. We can never promise, but we will always try!



#chronicillnessVOICE Aug 14


Health, Medical, Research, Patient and Pharma related newsletters

A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.

https://fibroflutters.com/2021/02/20/health-medical-research-patient-pharma-newsletters-selfupdating/



The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li


EVENTS & WEBINARS

Patient Engagement with Prime Patient

Putting patients at the heart of the drug development process to deliver value and improve outcomes

Carole is involved as an expert patient in the brand new upcoming event ‘Patient Engagement Day’ by Prime Global on 1st September 21.   The theme for this year is #AmplifyThePatientVoice.

Keen to get involved? Check out the opportunities below!

FREE Webinar registration link: 

https://media1.zoom.us/webinar/register/WN_uMnY-8RuTPGK_VZXWtmpog

Toolkit sign-up link:

https://surveymonkey.co.uk/r/6V2XHDD

https://primeglobalpeople.com/

Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!

Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!

THANK YOU FOR READING #chronicillnessVOICE Aug 17, YOUR SUPPORT IS GREATLY APPRECIATED

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FibroFlutters

We are a Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.

To help develop, nurture and help to create a multidisciplinary approach to all aspects of medical healthcare so that #chronicillness & #raredisease patients can receive the type of care and treatments that they need.

The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.

Bridging the gap between stakeholders is a different type of awareness raising. It involves sharing events and campaigns by clinicians, pharmaceutical companies, patient led projects, healthcare providers… the list is quite variable. We have newsletters to ensue this which uses our slogan – #chronicillnessVOICE for everyone #notjustpatients



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