#chronicillnessVOICE Aug 17 – health, patients, medical, research, pharma related news for everyone #notjustpatients
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
Please note that we are not medical professionals
Any information read or shared on, to, or from this website should not override any advice given to you by your own Doctors.
#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth
PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.
#chronicillnessVOICE Aug 17 – NEWS
Editors pick of the industry and patient newsletters
AI re-stains images of tissue biopsy with new stains, improving accuracy of diagnoses | Tech Xplore AUGUST 16, 2021 / Machine learning & AI
by UCLA Engineering Institute for Technology Advancement
Opening lines: In order to perform medical diagnoses, pathologists visually inspect histochemically stained tissue biopsy sections. The hematoxylin and eosin (H&E) stain is the most used histochemical stain in pathology, covering the majority of the human tissue biopsy stains performed globally…..
More information: Kevin de Haan et al, Deep learning-based transformation of H&E stained tissues into special stains, Nature Communications (2021). DOI: 10.1038/s41467-021-25221-2
Journal information: Nature Communications
Sourced via: Technology news – Science X
Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.
Sensor spies hideouts for virus replication inside cell membranes | Phys.org AUGUST 14, 2021, Biology / Cell & Microbiology / Molecular & Computational biology
by University of Washington School of Medicine
Opening lines: While some types of RNA viruses cloak themselves to hide inside a cell and create copies of themselves, a “detective enzyme” might be attuned to their whereabouts. A slight variation in their genomic code gives some people’s cells the capacity to produce this sensor.
More information: Frank W Soveg et al, Endomembrane targeting of human OAS1 p46 augments antiviral activity, eLife (2021). DOI: 10.7554/eLife.71047
Journal information: eLife
Not a plain language summary!
Sourced via: Biology news, – Science X
Science X Daily and the Weekly Email Newsletter are free features that allow you to receive your favorite sci-tech news updates in your email inbox
Small protein protects pancreatic cells in model of type 1 diabetes | Medical Xpress AUGUST 16, 2021, Medical research / Diabetes
by Beth Newcomb, University of Southern California
Opening lines: A new study has shown that treating type 1 diabetes-prone mice with the small protein MOTS-c prevented the immune system from destroying insulin-producing pancreatic cells, effectively preventing the onset of the autoimmune disease.
In mice that had been genetically engineered to develop autoimmune diabetes, “killer” T-cells (darker spots) infiltrate and destroy insulin-producing cells in the pancreas (left). Treatment with injections of MOTS-c reduced T-cell infiltration and prevented the onset of the disease (right). Credit: University of Southern California
More information: Byung Soo Kong et al, Mitochondrial-encoded MOTS-c prevents pancreatic islet destruction in autoimmune diabetes, Cell Reports (2021). DOI: 10.1016/j.celrep.2021.109447
Journal information: Cell Reports
Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.
Sourced via Medicine and Health news – Science X
NEWS RELEASES – NIH-funded study suggests a single skills-based session on pain management packs a punch | 08/16/2021
National Center for Complementary and Integrative Health (NCCIH)
Results show that a rapid “empowered relief” approach can add to the range of nonpharmacologic treatment options.
READ MORE: A Single-Session Pain Management Skills Class Benefits Patients With Chronic Low-Back Pain | Publication Date: August 16, 2021
NEWS RELEASES – NIH scientists develop faster COVID-19 test | Monday, August 16, 2021
National Eye Institute (NEI)
Technique avoids RNA degradation and time-consuming extraction.
Disruptive Leg Movement? – Managing Restless Legs Syndrome | NIH Health Information Newsletter Thursday, July 29, 2021
An overwhelming need to move your legs may be restless legs syndrome. Learn tips to relieve discomfort. (From NIH News in Health)
NIH…Turning Discovery Into Health®
About the National Institutes of Health (NIH): NIH, the nation’s medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases.
For more information about NIH and its programs, visit www.nih.gov.
Inside the deal: Sanofi flipped from sell-off to merger in lead up to $3.2B Translate buyout | Endpoints News – August 16, 2021
Kyle Blankenship – Managing Editor
Opening lines:
Prior to its $3.2 billion acquisition of mRNA player Translate Bio earlier this month, French drugmaker Sanofi considered dumping a quarter of its shares in the firm before ultimately flipping the script and buying the biotech outright at a premium.
Inside the deal: Sanofi flipped from sell-off to merger in lead up to $3.2B Translate buyout | Endpoints News – August 16, 2021
As Biden signals interest in linking drug prices with R&D costs, new study finds costs per NME are increasing | Endpoints News – August 16, 2021
Zachary Brennan – Senior Editor
President Joe Biden last week signaled an interest in linking drug prices to R&D costs as part of his wider pledge to bring down the cost of prescription drugs. The details of how to track such a link between R&D and price still need to be ironed out in Congress.
As Biden signals interest in linking drug prices with R&D costs, new study finds costs per NME are increasing | Endpoints News – August 16, 2021
Sourced via: John Carroll — Endpoints News | Subscription may be required
Endpoints News
Essential biopharma news and analysis
Independent journalism since 2016
Brain Gene Expression Patterns Altered by Chronic Opioid Use | Neuroscience News August 15, 2021
Source: Elsevier
Opioid use disorder affects genes associated with proinflammatory immune molecule encoding and genes associated with remodeling the extracellular matrix, suggesting the connection between neurons may be altered as a result of opioid use. Additionally, those with OUD have higher levels of microglia in the brain.
The affected genes fell into two broad categories: genes encoding proinflammatory immune molecules; and those involved in remodeling of the extracellular matrix, which suggests that connections between neurons may have been altered by opioid use. Image is in the public domain
Original Research: Open access.
Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.
Scientists unlock clues to determining how safe vaccinated people are from Covid-19 | STAT Morning Rounds | Aug. 16, 2021
By Andrew Joseph, covers a range of topics, from addiction to public health to genetics.
It’s a pressing goal for scientists who are still trying to understand what immunity to the coronavirus looks like, how robustly vaccines protect us over time, and how protected people are who’ve had and recovered from Covid-19.
Please note some subscriptions may require a fee.
Selection of posts by WordPress chronic bloggers that we support and follow
RAZ Memory Cell Phone Is A Simple Phone For Individuals With Alzheimer’s, Dementia Or Other Intellectual Disabilities by Venkat, Assistive Technology Blog, August 16, 2021
“To help individuals with Alzheimer’s, Dementia or other intellectual disabilities communicate easily with their loved one and to keep them safe from scammers, RAZ Mobility has created the RAZ Memory Cell Phone – a one touch dial picture phone that keeps everything really simple for seniors.”
Excerpt: RAZ Memory Cell Phone Is A Simple Phone For Individuals With Alzheimer’s, Dementia Or Other Intellectual Disabilities by Venkat, Assistive Technology Blog, August 16, 2021
See Your Own Potential: Changing Your Mindset By Terri, Reclaiming HOPE August 13, 2021
Mindset is probably the most important — and least addressed — part of making wellness changes. Our mindset about ourselves and our abilities is usually deeply ingrained in us, and a negative mindset can be difficult to overcome.
See Your Own Potential: Changing Your Mindset By Terri, Reclaiming HOPE August 13, 2021
How Can People With Physical Disabilities Benefit From A FitBit? | by My Rockin Disabled Life July 20, 2021
Road trip anxiety By Zechariah Richardson, SATONMYBUTT August 5, 2021
“I am going to post about something that I have told very few people, and that is my road trip anxiety or anxiety about travelling! I am writing about it because it is something that has had a massive impact on my life and the life of my family and, as many people do, I […]”
Opening lines: Road trip anxiety By Zechariah Richardson, SATONMYBUTT August 5, 2021
From IBD patient to IBD mom: What I’ve learned By Natalie hayden, Me,lights camera crohn’s, July 19, 2021
“The perspective and strength IBD has given me when it comes to coping with painful pregnancy-related issues like SI Joint Dysfunction, Symphysis pubis dysfunction, acid reflux that required prescription medication, and C-section recoveries.“
Excerpt: From IBD patient to IBD mom: What I’ve learned By Natalie hayden, Me,lights camera crohn’s, July 19, 2021
HEALTH AWARENESS DAYS/WEEKS/MONTH FOR SEPTEMBER… By BACK PAIN BLOG UK…, August 9, 2021
Huge thanks to Blogger Bar for putting this awareness post for September together!
Ymchwil Iechyd a Gofal Cymru bwletin / Health and Care Research Wales bulletin – Health and Care Research Wales – Fri, 13 Aug
What to do if your appointment is delayed – Coping with medical delays: why it’s important to persist | Heart Matters – British Heart Foundation
If you’ve had an appointment delayed or cancelled, we explain what to do and how to get help if your symptoms worsen.
7 healthy summer recipes
Get into the spirit of summer with these mouth-watering recipes. Full of fresh, vibrant flavours, these heart-healthy dishes are also perfect for a picnic or barbecue.
- Tandoori salmon kebabs
- Bulgur wheat salad
- Summer fruit smoothie ice lollies
- Piri-piri chicken
- Pasta with low-fat pesto and peas
- Banana and mango ice cream sundae
- Bruschetta starters
British Heart Foundation is a registered Charity No. 225971. Registered as a Charity in Scotland No. SC039426.
Have you been vaccinated yet?
How to speak to someone who’s hesitant about vaccines | Patient 07-May-21
Authored by Abi Millar · Reviewed by Dr Sarah Jarvis MBE
“Despite the success of the COVID-19 vaccination programme, many people have concerns about getting their jab. Here’s how to broach the conversation with vaccine-hesitant family or friends.“
How to speak to someone who’s hesitant about vaccines | Patient 17-Aug-2021
Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Egton Medical Information Systems Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions
https://patient.info/news-and-features/plantar-fasciitis-how-to-ease-pain-and-find-the-right-treatment
Sign up to receive their e-News in your mailbox!
Registered number: 10004395 / Registered office: Fulford Grange, Micklefield Lane, Rawdon, Leeds, LS19 6BA. Patient is a UK registered trade mark. https://patient.info/
NHS Covid-19 app engineer talks updates, the ‘pingdemic’ and data| Digital Health Andrea Downey 12 August 2021 | DIGITAL PATIENT
“The NHS Covid-19 app will be updated next week to allow people to add their vaccination status to skip isolation.”
Independent news, intelligence, events and leadership networks on health IT
Digital Health provides independent business, policy and technology news, research and events focused on developments in health IT in the NHS and UK health. Our coverage is focused, original and authoritative. Over 20,000 readers subscribe to Digital Health’s newsletters.
About Digital Health Intelligence Limited
Rare Disease Focus: Metabolic Diseases – Check Rare
A selection of articles about Rare Disease Focus: Metabolic Disorders
https://checkrare.com/diseases/metabolic-disorders/
FDA Approves New ERT, Avalglucosidase Alfa, for Late-onset Pompe Disease | Check Rare | Published on: Aug 6, 2021
The Food and Drug Administration (FDA) has approved avalglucosidase alfa (Nexviazyme) for the treatment of late-onset Pompe disease in patients 1 year of age and older.
By: Victoria Radke
Keep up to date with Rare Disease and sign up for Check Rare newsletters
Fabry Disease: Gene Therapy Shows Promising Results | Patient Worthy August 5, 2021
By James Moore
Opening lines: According to a story from BioPharma Dive, gene therapy for Fabry disease is still in its early stages of development. However, it is already beginning to show potential as a game-changing therapy for people living with this rare disease.
What are your thoughts on being a rare disease advocate? Share your stories, thoughts, and hopes with the Patient Worthy community!
Meeting Coverage – HIMSS
Health IT Needs to Play Catchup With Customer Service for Patients | MedPage Today August 13, 2021
by Joyce Frieden, Washington Editor, MedPage Today
— “In terms of getting data to the patient … healthcare is quite a ways behind”
Click here to read the August e-News in your browser | Ellen Bayens
A great resource for recipes, podcasts and articles that are appropriate for anyone with Celiac Disease and living a Gluten-free life. No matter where in the world that you live!
“The Celiac Scene™ is your premier resource for fabulous gluten-free living in Victoria, Vancouver Island & the Gulf Islands. Owned & operated by celiacs, we guide you to restaurants we trust and local gluten-free products we love! We even tell you where to purchase them, at the very best prices. Enjoy national ‘celiac’ news, local reviews and non-stop gluten-free event notices. The Celiac Scene is your gateway to Gluten-Free Paradise!”
Ellen Bayens – https://theceliacscene.com/
EMJ
Explore our dedicated COVID-19 pages
Out Now: New Issue of EMJ Radiology
An open-access eJournal that provides healthcare professionals with peer-reviewed articles written by experts, exclusive interviews, and highlights from the European Congress of Radiology (ECR) 2021. These are accompanied by abstract summaries of presentations from the congress.
DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li
EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates
NEW ISSUE OF GOLD OUT NOW!
Subscription is required
Garden Rescue’s Charlie Dimmock praised as she shows support for cause close to her heart | JUNE 23, 2021 BY EVE CROSBIE | Hello Magazine
Charlie had been advocating and raising awareness of Ehler’s-Danlos Syndromes, a set of rare genetic connective tissue disorders.
“It is not known whether Charlie suffers from the condition herself, as she has never explicitly said so. She has, however, opened up in the past about the benefits of gardening on her health.”
Subscription Terms and Conditions for Hello Magazine
Ehlers-Danlos Awareness
Ehlers-Danlos Syndromes
Regarding Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD’s) we have been providing information and support for a few years now. The difference now is that it is more noticeable that we do. This section for Rare Disease has been a long time in the planning and now EDS has a proper home on FibroFlutters website.
As an organisation FibroFlutters & ZebraStrutters support Ehlers Danlos Support UK (EDS UK) and Ehlers Danlos Society, and the Hypermobility Association (HMSA). Our doors are open to all. We are interested to hear your stories and are willing to share them here for you. You might have interesting articles and research that you think we should have on the site. When you have awareness campaigns or upcoming events we are also happy to help circulate them across our network.
If you are interested in contributing, or have something to share please contact Carole via the button below.
Also, if you would like us to source some information for you please just ask. We can never promise, but we will always try!
#chronicillnessVOICE Aug 14
Health, Medical, Research, Patient and Pharma related newsletters
A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.
The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li
EVENTS & WEBINARS
Patient Engagement with Prime Patient
Putting patients at the heart of the drug development process to deliver value and improve outcomes
Carole is involved as an expert patient in the brand new upcoming event ‘Patient Engagement Day’ by Prime Global on 1st September 21. The theme for this year is #AmplifyThePatientVoice.
Keen to get involved? Check out the opportunities below!
FREE Webinar registration link:
https://media1.zoom.us/webinar/register/WN_uMnY-8RuTPGK_VZXWtmpog
Toolkit sign-up link:
https://surveymonkey.co.uk/r/6V2XHDD
https://primeglobalpeople.com/
Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!
Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!
THANK YOU FOR READING #chronicillnessVOICE Aug 17, YOUR SUPPORT IS GREATLY APPRECIATED
Flutters and Strutters
FibroFlutters and ZebraStrutters
We are a Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
To help develop, nurture and help to create a multidisciplinary approach to all aspects of medical healthcare so that #chronicillness & #raredisease patients can receive the type of care and treatments that they need.
The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.
Bridging the gap between stakeholders is a different type of awareness raising. It involves sharing events and campaigns by clinicians, pharmaceutical companies, patient led projects, healthcare providers… the list is quite variable. We have newsletters to ensue this which uses our slogan – #chronicillnessVOICE for everyone #notjustpatients
Follow us
SYNAPSE Powered by The Synergist.
The global Patient Engagement map and network
Find everything about patient engagement and make your content available to the community.
The UK’s First Network of Connected Community Maps by It’s A Doddle
Incorporated under the Companies Act 2006 as a private company, that the company is limited by guarantee, and the situation of its registered office is in England and Wales. Reg. No. 14065901
