There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October

The goal of this Conference is uniting all well-known clinical researchers, biotech professionals, Medical Advisories, Academicians and decision makers to discuss possible ways to accelerate orphan drug development and access to rare disease patients, including the introduction of recent technologies and products to help aid the access of orphan drugs… Read More There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October

Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints. … Read More Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

A selection of posts by chronic bloggers via The Mighty 

Including:
How My ‘One Day at a Time’ Philosophy Helps Me Cope With Chronic Pain  |  by Samantha Moss  on Trigeminal Neuralgia

12 Clothing Brands With Pain-Free Seams That Won’t Hurt Your Skin  |  by Paige Wyant on Chronic Pain

Confessions of People Facing Rare Disease: This Is Life  |  by Ashanthi De Silva on Rare Disease

When the Demands of Motherhood Almost Led to a Nervous Breakdown  |  by Amanda Lynch on Anxiety

Facing Disability as an Adult Who Wants to Work  |  by Alex Tomlinson on Migraine

Plus more…… Read More A selection of posts by chronic bloggers via The Mighty 

3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018

#Migraine #TriggerFoods 3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018 Opening line: ‘Having Chronic Hemiplegic Migraine has taken a lot of things from me, but none has been more frustrating than some of the food I can no… Read More 3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018