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    • FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters
    • Freshly updated Selected Newsletters from News Medical
    • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    • The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
    • Continuing the discussion for successful translation of #AI into #clinicalradiology – AI Med
    • Accessing specialist doctors faster after a brain injury
    • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
    • National Psoriasis Foundation: Psoriatic Arthritis Screening
    • This #healthapp is definitely worth trying if like me you’re dreadful at remembering to take your #medications
    • How to treat and manage scalp psoriasis | National Psoriasis Foundation
    • How Clinical Trials Are Evolving | CheckRare.com
    • 7th annual Health & Justice Summit event in November 2019 at Bristol, UK | Convenzis Group
    • Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
    • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
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    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
  • CHRONIC BLOGGERS & SPOONIE TALK
    • TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
    • I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jensen from There is Always Hope
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • This Woman Was Fired for Using CBD Oil | By Jaime A. Heidel  |  I told you I was sick 3 September 2018
    • Fibromyalgia and Personality – Counting My Spoons, Julie Ryan
    • Spoonie Talk: Diagnosing Fibromyalgia by Fibro Files
    • MY FIRST HAND ACCOUNT OF HOW THE NHS IS STRUGGLING…
    • Vertigo, My Newest Companion  |  Kyky Knight  |  Migraine.com  | 6 July 2018
    • Do you blog about your Chronic Illness?
    • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • Fibromyalgia / CFS / Anxiety & Depression / Invisible Illness: The viscious circle of ‘Catch 22’ & Setbacks versus Flares: Which is which?
    • The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
    • Spoonie talk – What came first? Your pain?, or, your depression? | by Fibrofly73
    • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
  • Pharma / Science / Tech / Digital / AI
    • Continuing the discussion for successful translation of #AI into #clinicalradiology – AI Med
    • eyeforpharma |Articles | Events | News
      • FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters
      • The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
      • Up for debate next week | Patient Summit | Humanising Healthcare, Building trust, Health Literacy and Disease Awareness
      • #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review
      • Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019
      • Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
      • Oh! the ‘im-patients’ of it all!
      • We’re all-a-flutter | Paul Simms Chairman of eyeforpharma  |  21 March 2018
    • Patient-Centred; Centric; Included #patients and #caregivers
    • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
    • Get to know about AI in Medicine with ‘AI Med’
    • #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources
    • Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)
    • #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
  • Mental Health
    • Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
    • Welcome to the Samaritans Monthly Newsletter | Samaritans | May 2019
    • MedicineNet ~ Newsletter |  Stages of Alcohol Use Disorder  |  30 August 2018
    • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
    • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
    • This Is Your Body On Anxiety
    • NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
    • How does our brain process fear? Study investigates | Medical News Today
  • Treatments and Therapies
    • Therapies and Treatments
      • THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
      • Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
      • WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
      • Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
      • Hydrotherapy – Heaven or hell? Part Two – session one / week one
      • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
      • Product Review | Nrem Sleep System | Sponsored Post
  • Musculoskeletal
    • Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
    • MSK services survey – Please let us know what is happening locally | ARMA
    • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
    • MSK ~ Rheum ~ Arthritis ~ Pain | A selection taken from FibroFlutters #chronicillnessVOICE
    • DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018
    • Fibromyalgia & Chronic Pain
      • Fibro – What’s that? Find out here!
      • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
      • Fibromyalgia – What’s that? Find out where to find relevant information :-)
      • What are the Symptoms of Fibromyalgia? UPDATED POST
      • Fibromyalgia – Symptoms – NHS Choices
      • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
      • #PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness
      • Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017
      • Questions and Answers About Fibromyalgia – Information resource | NIAMS
      • Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
      • Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
      • A selection of Migraine related readables from Migraine.com Weekly (July 18-20)
      • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
      • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
      • Central nervous system and Sympathetic Skin Response
      • Skin Rashes and Fibromyalgia Syndrome
    • EDS, JHS, HMS & all things collagen / connective-tissue
      • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
      • Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
      • The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018
      • The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018
      • The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
      • Hypermobility disorders & EDS reclassification as of 15th March 2017
      • How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
      • Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
      • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
      • Could Medication Overuse Be Causing Your Headaches? Join a Study
      • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
      • Central Sensitivity Syndromes – Difficult to Classify
      • I love to nap. Do you? |You may enjoy reading these – ‘Fibromyalgia: Need to Nap Increases as Symptoms Worsen’ & ‘Napping: the expert’s guide’
      • How does Chronic Illness / Pain affect your Sleeping Habits
  • The Chillout Lounge
    • The CHILLOUT LOUNGE
    • Alternative / Complementary Therapies & Treatments
      • Your Aromatherapy Guide  |  Jan Randall  | 14 April 2018
      • ‘OIL’ have you know!
        • Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
        • Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
        • INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
        • Are You in Chronic Stress Mode? Seastones natural therapies
        • Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
        • Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
        • Places for relaxing & tranquil times
        • Touch Heals
    • Relaxation Techniques
      • Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
      • Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
      • Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
      • The Therapeutic Benefits of Gardening | By: Virgil Anderson
      • Sunday Inspiration: Guided Meditation – Julie Ryan – Counting My Spoons
      • Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
      • Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
      • Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
      • Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
  • Newsletters/Papers/Magazines
    • Ellen Bayens | The Celiac Scene News | Issue: June 2019
    • Psych Central Newsletter |WEEKLY Mental Health Break | 22 May 2018
    • Selected Newsletters from News Medical
    • #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • Patient Newsletters  |    17 March / 14 March 2019
    • NEW! Disability Rights Magazine Out Now! Disability Rights UK Training  | UNITE Magazine
    • Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
    • The RARE Revolution – Youth Takeover is here!!!! –  #RareYouthProject
  • Awareness campaigns
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • Patient Newsletter  |  Subject:  Have you signed up to save a life? |  5 September 2018
    • Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org
    • #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018
    • # PAM2018 | THE MEDICAL HISTORY OF FIBROMYALGIA | THE FIBROMYALGIA PAIN CHRONICLES | 12 September 2018
    • #PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness
    • British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018
    • Chronic Pain Survey Showing Gaps in Care| Ed Coghlan  | National Pain Report  | 22 May 2018
    • Patient Research Ambassadors Initiative Issue 4 | 12 June 2018 | #PRAI
    • FMAUK | Fighting for the freedom from Fibromyalgia
    • AWARENESS Video | The 28th February 2018 ‘Rare Disease Day’ video! 
    • Scope Blog Post  |  “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
  • Research related readables
    • Study: rheumatic and musculoskeletal disease (#RMD) | shared via Simon Stones
    • Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
    • Selected Newsletters from News Medical
    • NIHR Life Sciences Industry Newsletter |  NIHR  |  30 August 2018
    • A selection of posts from around the National Institutes of Health (NIH) Family
    • Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018
    • Somatic Symptom Disorder. Learn about this disorder. | Patient
    • Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois | 9 July 2018
    • Are you interested in #research? Would like to get more involved, or know what research is going on around you?
    • Ronald W. Davis, PhD, Presents An Overview of the Recently Funded NIH Project Open Medicine Foundation – OMF | Published on 5 Jul 2018
    • ARMA has a new #knowledgehub
    • Study: rheumatic and musculoskeletal disease (#RMD) | shared via Simon Stones
    • You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018
    • Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  | WEBINAR  |  ARMA MSK HUB  |  Posted by Sue Brown | 6 July 2018
    • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Food, drink and recipes
    • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
    • Simple and easy Cauliflower English Muffins.
    • Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
    • Ellen Bayens | The Celiac Scene News | Issue: August 2019
    • Patient Newsletter  |  Subject:  The best foods for fighting skin problems | 11 July 2018
    • Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
    • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    • Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
  • The hints and tips station
    • How to sleep when pregnant: Best positions and sleep aids
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
    • A few FREE Health apps & e-books
    • Live Better with Rheumatoid Arthritis  |  Arthritis Foundation 
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • HOW TO KEEP A PAIN DIARY (free download)…
    • THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
    • How to employ your own Personal Assistant (PA)
    • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
    • Spoonie Talk by Jaime A. Heidel: I Told You I Was Sick » How to Treat a Person With Chronic Illness – A Step-By-Step Guide
  • FibroFlutters Sunderland ~ HOME news
    • I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jensen from There is Always Hope
    • Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • FibroFlutters celebrates being one of the Top-10 Best UK Fibromyalgia Blogs via Feedspot
    • FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000
    • At last! I’m finally back online.
  • SoMe Patient Platforms
    • Psych Central Newsletter |WEEKLY Mental Health Break | 22 May 2018
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
    • Are you a ‘SAVVY’ patient? come and check it out!
    • Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
    • www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’ | New treatment information functionality is live for members!
      • RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
    • New Patient platform! patient-patient registry
  • For the Professionals
    • A few FREE Health apps & e-books
    • Public Speaking Workshop | Speakers Trust
    • ARMA has a new #knowledgehub
    • Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies | Ask the experts:  James Murrough, MD, PhD  | Psychiatry Advisor
  • @FibroFlutters on Twitter – Global Community Patient Organisation – Public
  • FibroFlutters (Sunderland & NE UK) on FACEBOOK ~ Closed Discussion Group
  • Fibro Flutters HQ – Facebook – Global Community Patient Organisation – Public
  • FibroFlutters – LinkedIn Global Community Patient Organisation – Public
  • Fibrofly73 (Carole Sian) – Pinterest
  • FibroFlutters – YouTube Playlists

FibroFlutters Chronic*Invisible*Rare Illness Support

Patient * Health * Research * Pharma * Advocacy

Day: Oct 24, 2019

Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Oct 24, 2019Oct 24, 2019 fibrofly731 Comment

Google translate:

PLEASE CLICK THE LINK BELOW TO ENDORSE FOR THIS AWARD

https://badges.wegohealth.com/ha-awards-2019.js?referrer=5EqrFJ_-MSKPBms4aaLiSAPLEASE CLICK TO ENDORSE

Please endorse us / Carole for this award, many thanks and wishing you wellness

Please endorse me / FibroFlutters for this awardhttps://badges.wegohealth.com/ha-awards-2019.js?referrer=1YcEFqk-vPEacUvZEidHYg

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Popular Posts

  • Muscle Cramps (Charley Horse) and Muscle Spasms  |By John A. Daller, MD
    Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
  • How to sleep when pregnant: Best positions and sleep aids
    How to sleep when pregnant: Best positions and sleep aids
  • Accessing specialist doctors faster after a brain injury
    Accessing specialist doctors faster after a brain injury
  • Fibromyalgia - Symptoms - NHS Choices
    Fibromyalgia - Symptoms - NHS Choices
  • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
  • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
    Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia

MEDICAL DISORDERS

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EDS, JHS, Hypermobility & HSD’s News and info

  • EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST
  • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
  • The Mighty > Ehlers Danlos Syndrome ‘We face disability, disease and mental illness together.’ ~ The Mighty Motto – A plac where people read and write about their #chronicillnesses
  • Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.
  • Home Page: Pain News Network non-profit online news service

Pharma

  • eyeforpharma ~ Home page
  • eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017
  • Pharmaphorum Pharma news and events – Home page

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Fight or Flight?

How does our brain process fear? Study investigates | Medical News Today

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Great day of discussions with WG1 Patient Focused Medicines Development #patientengagement #collaboration of minds #madewithpatients #patients #research #pharma #clinicaltrials #patientcentricity

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Review eligibility of Paramedic Science students for the NHS Learning Support Fund

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Chronic Illness Bloggers

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FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

Medical news stories / blog posts / research / pharma /science

  • Medical news stories, blogs and research
  • Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
  • Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
  • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
  • New edition of Airing Pain | Pain Concern | 2 July 2019
  • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
  • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
  • A – Z of Clinical Research – Making Research Better | NIHR
  • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
  • Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
  • British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018
  • Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
  • Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA |  Andy Oram  |  2 July 2018
  • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
  • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
  • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
  • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
  • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
  • How does our brain process fear? Study investigates | Medical News Today
  • Product Review | Nrem Sleep System | Sponsored Post
  • #NeuroendocrineCancer  #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
  • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
  • Scope Blog Post  |  “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
  • Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
  • How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of  (Human Data Project) HDP Health
  • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
  • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
  • Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
  • A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
  • 30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
  • Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
  • 5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
  • The most underrated scientific breakthroughs of 2017 | Quartz
  • 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
  • The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
  • Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
  • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
  • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
  • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
  • Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
  • # PAM2018 | THE MEDICAL HISTORY OF FIBROMYALGIA | THE FIBROMYALGIA PAIN CHRONICLES | 12 September 2018
  • #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018
  • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
  • #NeuroendocrineCancer  #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
  • A few FREE Health apps & e-books
  • A selection of posts from around the National Institutes of Health (NIH) Family
  • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
  • Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
  • Central nervous system and Sympathetic Skin Response
  • Central Sensitivity Syndromes – Difficult to Classify
  • Categories 1
  • HOME – Categories
Great day of discussions with WG1 Patient Focused Medicines Development #patientengagement #collaboration of minds #madewithpatients #patients #research #pharma #clinicaltrials #patientcentricity
Bollywood night at Delhi 6 in South Shields with fibro friends night out
@ataxia_and_me and me hehe 🤣🤣🤣 #efpbarca 2019

Picture Gallery

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
Great place for sound imagery, hear the watery echoes
Great place for sound imagery, hear the watery echoes
Feel the stillness and breathe long and deep
Feel the stillness and breathe long and deep
What will you find if you wander through the gate
What will you find if you wander through the gate
Who would you like to sit and chat with?
Who would you like to sit and chat with?
A place of serenity by the pool
A place of serenity by the pool
Guide yourself down the path to the...?
Guide yourself down the path to the…?
... forget about the world and spend some time on yourself
… forget about the world and spend some time on yourself
A scented garden to take your mind on a soothing aromatic journey.
A scented garden to take your mind on a soothing aromatic journey.
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
aving a tough time, can't figure things out? Here's a pretty place for self reflection
aving a tough time, can’t figure things out? Here’s a pretty place for self reflection
StillnessSpeaks.com
StillnessSpeaks.com
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
An eye into the unknown
An eye into the unknown
An image to guide your mind to anywhere whilst laying on the beach
An image to guide your mind to anywhere whilst laying on the beach
A picture for using your imagination to take you on a peaceful journey
A picture for using your imagination to take you on a peaceful journey
Fantasy land
Fantasy land

Blogs I Follow

MAY 12TH Awareness Day

  • IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME AWARENESSDAY 2015 Poster: IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME International Awareness Day Fibromyalgia 2015
  • Home Page: National Fibromyalgia and Chronic Pain Association US Organisation raising awareness and giving support where they can
  • Link to @FibroFlutters TWITTER

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