#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 28 June 2018

A selection of online health related newspapers/magazines/newsletters/blogs/events

Hope you like our newletter’s new title & mini-revamp

Twice daily!  Focus on Disability Newsletter

For disabled people, the elderly and their carers in the UK

  • Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
  • Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links!


Daily!  UK Care Guide

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.


Ronny Allan’s Latest Daily Newsletter via Nuzzel

Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.

Plus a few extras: Not in chronological order!


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 5 February 2018

Meditative Mind  Published on 7 Jun 2018
It’s at the end



FibroFlutters continuously

Advocating for a Multi-Disciplinary / Patientcentric approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!



#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •  &  Trustee • Patient Consultant/Leader




#MEAction Daily Digest ~ Mother Shares Heartbreaking Testimony about Sons with Severe ME | 25 June 2018

Introductory lines:

This mother has testified before the Chronic Fatigue Syndrome Advisory Committee (CFSAC) more than 20 times about the need for urgent action from the Health and Human Services. Her two sons have suffered from severe Myalgic Encephalomyelitis for more than a decade. The photo was taken of her sons one month and one day before ME devastated their lives.

Read more via the following link >>>

Daily Digest: Mother Shares Heartbreaking Testimony about Sons with Severe ME

Visit the #MEAction website for more information and opt-in for a newsletter >>>



#MEAction Daily Digest ~ U.S. – Center for Solutions for ME/CFS Seeks Applicants for Community Advisory Committee | 23 June 2018

Visit the #MEAction website for more information and opt-in for a newsletter >>>

Do want to help with your #patientvoice and #advocate for #MEAction? this link will help show you how you can >>>



#ArthritisAwareness  #arthritis

Arthritis Action eNews |  June 2018

Opening to newsletter:

‘We are delighted to have been featured in the Sunday Telegraph’s special inset ‘Arthritis and You’ on 17th June, to coincide with National Rheumatoid Arthritis Week 18-24 June 2018.’

Arthritis Action eNews – June 2018

Visit the Arthritis Action website for more information, advice and sign-up for their newsletter  >>>




Stanford Looking At TMS to Treat CRPS
unknown source

Stanford Looking At TMS to Treat CRPS  |  Ed Coghlan | National Pain Report | 23 June 2018

Opening paragraph:

Stanford University’s Systems Neuroscience and Pain Laboratory is conducting a study to test if Transcranial Magnetic Stimulation (TMS) can reduce pain related to Complex Regional Pain Syndrome (CRPS).

Read more via this link  >>>

More from  Ed Coghlan

Read more via the National Pain Report website and opt-in for newsletters >>>


#DigitalHealth #NHSEngland #GPatHand 

Digital Health Digest  | 22 June 2018

Digital Health Digest  | 22 June 2018

A few Headlines >>>

FEATURE:  Richard Corbridge: Let’s do the digital delivery dance

HEALTH CIO:  The CIO interview: Mark Stanton, The Dudley Group NHS Foundation Trust

CLINICAL SOFTWARE:  Leeds and York Partnership NHS FT selects CareWorks for new EPR

DIGITAL PATIENT:   Doctor’s union chairman calls for GP at Hand to be “scrapped immediately”

Visit Digital Health for more news  >>>


© Digital Health 2018 Registered No. 9257440



MSWorld, News, Events & More!  |   25 June 2018

Keeping you up-to-date on all things #MS & #MSWorld


The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!


#Arthritis  #HealthCareCosts  #Misdiagnosis  #SunProtection

News and Updates from the Arthritis Foundation ~ MAY 2018| 25 June 2018

Headlines >>> 

Matt Iseman Gets a Grip on Arthritis

Prescription Rebates to Lower Health Care Costs

Red Flags to Help Dodge a Misdiagnosis

Summer Sun Protection Tips

Read them all via the following link >>>

Plus many more articles / posts, and more readables, from The Arthritis Foundation follow this link where you can also opt-in for newsletters >>>


Living With Arthritis
Arthritis is painful. It prevents us from leading active, healthy lifestyles. It means we are more likely to develop other serious illnesses. It means we need to fight harder. The Arthritis Foundation is leading this fight by offering simple, yet effective ways to conquer the everyday battles and take control of your condition.

#biopharmanews #pharmanews #pharma

BioPharma Dive’s Top News | Daily edition  | 26 June 2018

Top headliners:

  • FDA OK’s first marijuana-based drug
  • DEEP DIVE | Why be a vaccine company?
  • DIA18: Value-based contracts pose more questions than answers

Connecting in context: Leveraging geo-location campaigns to drive ROI

  • FDA to pub surrogate endpoints used in cancer drug approvals
  • Jardiance shows potential in type 1 diabetes, clearing Phase 3 tests

Read the above and much more via the following link  >>>


#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication

12 things you can do to pamper yourself|  BARMAC5  |  BACK PAIN BLOG UK…  |  26 June 2018

About ‘BackPainBlog’, Quoted from the site:



Follow the link below to read more  >>>

12 things you can do to pamper yourself

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 



#alzheimers  #dementia  #care  

Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  Light Exposure in Nursing Homes Decreases Sleep Disturbances, Depression and Agitation in Alzheimer’s Patients | 19 June 2018

Also including:

  • How Often Should You Visit a Memory Care Patient
  • Should you correct someone living with dementia?
  • The Effect of Emotional Super Glue in Alzheimer’s Care

and much more…

Why not subscribe to the AlzheimersReadingRoom.com. This is a free service. Join 40,000 active readers.

The Award Winning Alzheimer’s Reading Room Knowledge Base is considered to be the highest quality, deepest collection, of information on Alzheimer’s and dementia in the world.

#light #brightlight #nursinghome #assistedliving #adultdaycare #activitydirector #education #society #alzheimersreadingroom


#men get migraine too #menshealth #migraine 

Living the Minority: Life as a Man with Migraine |  BY JASON (GUEST WRITER)  | The Migraine Mantras | 17 June 2018

Opening lines:

‘Males are the migraine minority. Women are 3x more likely to have migraines than men. Being a male with migraine, let me share a bit of my experience with migraines.’

Read more via this link  >>>

Visit ‘The Migraine Mantras’ website for more migraine related posts >>>

#healthcarenews  #patientengagement  #healthcare #patients 

Latest! MedCity News | Title: Meet the “preeminent AI company on earth,” but can it succeed in healthcare? | 20 June 2018

Second paragraph of About Us page of the MedCity News website:

‘Healthcare leaders must stay on top of new technologies, new companies, future trends and the latest policies, with a perspective that includes the entire healthcare ecosystem: health IT, medical devices, health systems, venture investing, mobile apps, biotech and pharma. In this interconnected market, there is no “Silicon Valley” for healthcare but nearly a dozen hubs of healthcare and life science innovation, including Philadelphia, Cleveland, Research Triangle Park, and Minnesota’s Twin Cities, Seattle and San Diego’

Follow this link to MedCity News About Us page  >>>

Read the MedCity News ~ TOP STORIES newsletter via the following link >>>


Follow this link to MedCity News ~ patient engagement section  >>>

Follow this link to MedCity News Home Page where you can opt-in for their newsletters  >>>



#PatientExperience  #professionals 

WHITEPAPER ~ Improving Patient Experience |   | Siemens Healthineers  |  13 June 2018  

Introductory line:

Do measures to improve patient experience increase quality of care, hospital efficiency, and patient loyalty?

Read the report by following this link  >>>

Who are the ‘Siemens Healthineers’?  >>>

Opening paragraph from About Us page:

At Siemens Healthineers, our purpose is to enable healthcare providers to increase value by empowering them on their journey towards expanding precision medicine, transforming care delivery, and improving patient experience, all enabled by digitalizing healthcare.

Visit this link to opt-in and register for newsletters  >>>

Siemens Healthcare GmbH ©2018


#Rheumatology resources for #professionals and #patients


EULAR websites >>>

EULAR Congress website: www.congress.eular.org

EULAR Congress 2018 documents: www.congress.eular.org/download.cfm

EULAR website: www.eular.org

EMEUNET website: emeunet.eular.org

EULAR Young PARE website: www.youngpare.org

Welcome message from Johannes W. J. Bijlsma for the ‘Annual European Congress of Rheumatology’ who is EULAR President  >>>

Welcome message from the EULAR President

Did you not get to Amsterdam for the ‘Annual European Congress of Rheumatology‘?

Well don’t worry too much there are a few ways that you can keep up to date with what went on.


The (EMJ) European Medical Journal will have a full congress review of in their next edition of EMJ which is FREE to subscribe to via this link >>>

In the Meantime…

… you can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there  >>>


Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.


#healthcareprofessionals #MedicineMatters

Medicine Matters | medwireNews@EULAR2018

Medicine Matters is developed for healthcare professionals as a premier resource for the latest clinical information in medicine.

FREE registration for Medicine Matters ~ Rheumatology, you can opt-in via this link >>>

Rheumatology Matters twitter feed >>> 



Improve NHS testing for Lyme Disease, fund research & revise current treatment protocols

Can you help to bring better awareness of #lymedisease to the UK & sign this #Petition to improve #NHStesting, #research & recieve better funding to help this cause.

NHS Choices say ‘Lyme disease is a bacterial infection that can be spread to humans by infected ticks. It’s usually easier to treat if it’s diagnosed early.’

Read more via the petition link below the butterflies

#LymeAction  #Lymetoo 
Many thanks for reading & helping to raise awareness


Improve NHS testing for Lyme Disease, fund research & revise current treatment protocols.

Petition Via >>>  www.change.org


#arthritis #rheumatologists #rheumatology #fellowships #ACR

Arthritis Foundation ~ Champion Connection |June 2018  Newsletter  | 15 June 2018

Opening paragraph:

‘The Arthritis Foundation is actively expanding the number of rheumatologists by naming five universities that will receive fellowship awards. The program is designed to address the growing shortage that the American College of Rheumatology cautions is expected to increase and will lead to worsened disease outcomes, lower quality of life and increased mortality rates.’

Read more via the following link  >>>

Plus many more articles / posts…

For more readables from The Arthritis Foundation follow this link  >>>

Living With Arthritis
Arthritis is painful. It prevents us from leading active, healthy lifestyles. It means we are more likely to develop other serious illnesses. It means we need to fight harder. The Arthritis Foundation is leading this fight by offering simple, yet effective ways to conquer the everyday battles and take control of your condition.



#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication

Esential Oils for Fibromyalgia… |  BARMAC5  |  BACK PAIN BLOG UK…  |  19 June 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Essential oils to help with the pain of fibromyalgia is beautifully illustrated in this graphic on Pinterest from Jess Wilmington Health & Beauty Blog. Her blog post goes into much more detail about the different types of essential oils and is a great read for any fibromyalgia sufferer.’

Follow the link below to read more  >>>

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 


#patientVOICE #chronicVOICE #chroniclife

MIA by Trish Dyne – AutoImmunity Girl |  17 June 2018

Opening paragraph:

‘I have noticed a growing number of chronically ill / Autoimmune sufferers and I share something in common as the years stretch on, and we have been battling for many years. The similarity is this … we slowly just stop going to doctors and specialists.’

Read more by following this link >>>

MIA by Trish Dyne – AutoImmunity Girl


#careactionplan #carersweek2018 #carers #policypaper

Policy paper | Carers action plan 2018 to 2020 |  Published 5 June 2018

The plan sets out how the government will improve support for carers in England over the next 2 years.


For all kinds of useful Gov type information and useful links visit their home page  >>>



#EMR  #HIPAA  #Healthcare #Technologies #digitaldevices #digitaltechnology

Creating Provider Loyalty – And Why Communication Matters |  John Lynn | EMR and HIPAA Newsletter | 15 June 2018

Featured Health IT Resource

FREE DOWNLOAD  Top 5 Medical Device Industry Trends in 2018

Digital device technology continues to move at a fast pace, which means device manufacturers should keep a close watch on emerging trends and be ready to adapt to new ideas and methodologies.

Read Creating Provider Loyalty – And Why Communication Matters via the following link  >>>

The following is a guest blog post by Chelsea Kimbrough from Stericycle Communication Solutions, as part of the Communication Solutions Series of blog posts. Follow and engage with them on Twitter: @StericycleComms

For more articles / posts visit the website where you can also opt-in for newsletters  >>>

HEADLINES: Your Daily Dose During National Migraine and Headache Awareness Month. 2018: You Are Not Alone! Partnering For Better Headache and Migraine Care. #MHAM #NotAlone


Daily #MHAM Headlines

Daily MHAM Headlines for June 25th 

Posted in 

©2018 Coalition For Headache And Migraine Patients. All Rights Reserved




It’s that time of year to recognise your peers, your fellow advocates and patients leaders.

WEGOHealth Awards

Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.

Everyone can be a part of the #WEGOHealthAwards!

Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including

#chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement

#patientadvocacy #healthadvocacy #researchadvocacy

#ChronicillnessVOICE  #NotJustPatients


#science #cancer #cancerresearch #immunotherapy

#lungcancer #vaping #breastcancer

News digest -scienceblog~Cancer Research UK  |  lung and breast cancer immunotherapy and vaping |  Katie Roberts  |  9 June 2018

Breast cancer immunotherapy first ~ opening lines

A woman’s advanced breast cancer has apparently been eradicated by an experimental therapy made from her own immune cells, reports the Mail Online. The woman remained cancer-free two years after the “highly personalised” therapy, after existing treatments had failed.

You can visit the scienceblog~Cancer Research UK via this link >>> 

Change-over NEW PODCAST

Airing Pain Programme 103: Pain and Relationships |  Pain Concern  | 6 June 2018

Airing Pain ~ Informing the pain community
Programme 103: Pain and Relationships
How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

In this edition of Airing Pain, Paul Evans and eminent psychotherapist Dr Barry Mason speak about their personal experiences with fibromyalgia and ankylosing spondylitis.


How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

This edition of Airing Pain is funded by the JTH Charitable Trust and the Persula Foundation.

Airing Pain channel on Audioboom >>>

Pain Concern website >>>

 Copyright © 2017 Pain Concern, All rights reserved.


#John’sCampaign #NHS

#dementia #dementiacare #ageuk #health #healthandwellbeing
#CareQualityCommission #CQC #carers #hospitalcaredementia #hospitalcarealzheimers  #olderpeople #dementiasurvey #hospitalinspection

A new milestone for improving dementia care in hospitals | Age UK |  Age UK Blog  |  11 June 2018

Opening paragraph:

‘Today, John’s Campaign is celebrating that all acute trusts in England have voluntarily signed up to the Campaign. In this blog, we celebrate what this means for people with dementia and their carers during a hospital stay.

For more stories and posts visit the ‘Age UK’ blogsite on WordPress where you can also opt-in for their newsletters  >>>

A blog for everyone interested in later life and our ageing society


#MEAction  |  You’ve Helped Us Expand Our Team!  |  1 June 2018

You’ve Helped Us Expand Our Team!

Thank you,

Jen, Laurie, Jaime, Ben, Adriane, and Kim


Daily Digest: #MEAction Read the new parliamentary briefing | 15 June 2018

Read more stories and opt-in for their newsletters via the following link  >>>




#Fibromyalgia  #Research #FibroResearch

Fibromyalgia Research Newsletter  | UK Fibromyalgia |  June 2018

Fibromyalgia Research Newsletter June 2018

The home of the Fibromyalgia Magazine- The independent voice of UK Fibromyalgia.

This newsletter is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.
The advertising of a product, therapy or clinic in this email does not imply that it has been tested or its use endorsed by UK Fibromyalgia.

#ME #MEresearch #research 

Latest plain English M.E. research round-up|  A Prescription for M.E.
 | EMILY BEARDALL | 8 June 2018


This M.E. research round-up covers studies published from 17 March 2018 to 16 May 2018: Standing unaided, Glucose and muscle cells, Unwanted effects of rituximab, Blood sample analysis. Read the research round-up

About A Prescription for M.E. >>>



#OMF #DrRonDavis #LindaTannenbaum #IIMEC13  #BRMEC8  #Italy |  (OMF) Open Medicine Foundation | 12 June 2018

Tour impressions after a unique event in Italy:
“My heroes, the fighting patients, parents & caregivers.”


Opening lines:

‘We arrived Thursday, June 7, on our last stop of our End ME/CFS Worldwide Tour in Zanè, a town in the province of Vicenza, Veneto, Italy. We were welcomed with a lovely dinner we shared with Giada Da Ros, President of the CFS Italian Association, Paolo Maccallini , Dr. Eligio Pizzigallo, and other new friends.

Giada, also coordinator of OMF’s Italian Translations Team, did an absolutely amazing job planning the event on Friday with the teams of the CFS Associazione Italiana onlus and the Associazione CFS onlus.’

Linda signing off:
‘We are all in this together. Don, myself, and all our OMF colleagues can’t thank the organizers enough for their excellent work and warm welcomes. Thank you from the bottom of my heart.
With hope for all,’
Linda Tannenbaum

Open Medicine Foundation®
Fast-tracking revolutionary research for ME/CFS
and related chronic complex diseases
OMF is a non-profit 501(c)(3) organization
(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.

Visit the OMF website for news and other interesting readables, you can also opt-in for newsletter updates >>>


#stemcells #Lyme  #LymeDisease ##healing #healthjourney

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey |  Terry Mayfield, The Blathering Lymie |  Color Me Lyme  | 31 May 2018


‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’

Read more via this link  >>>

About the Author  >>>

For more blog posts and newsletter opt-in visit the site  >>>

#ThePsychologist  #Research  #magazine  #BPSResearchDigest

BPS Research Digest  | 31 May 2018

‘Every week we bring you engaging reports on the latest psychology research. Anyone can subscribe free. We also provide daily updates on the latest psychology research via our app and on varying social media channels.’

The Psychologist is the monthly magazine of the British Psychological Society that you can find via this link  >>>

Visit The BPS website and opt-in for news updates and newsletters  >>>

Find BPS Research Digest  >>>


The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society, All rights reserved.


#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy


Societal Impact of Pain


SIP Newsletter May 2018 

SIP Newsletter May 2018

Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed  >>>


#Research #Datacentre #ME #CFS #collaborative  #OMFScienceWednesday

OMF funds Harvard Collaborative Center and expands Data Center  |  Open Medicine Foundation | 23 May 2018

From the introduction:

ME/CFS Collaborative Research Center at the Harvard:

We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’

Read more via this link  >>>

Visit the Open Medicine Foundation website for more readables and useful information including research news  >>>


#endometriosis explained for #men #husbands

Straight, No Chaser: Endometriosis  |  JeffreySterling MD  |  18 May 2018


‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’

Read more via this link  >>>

Excellent newsletter!

Girls With Guts  (GWG)| May 2018 Newsletter | Get in the spirit! |  2 May 2018

Visit the site to find out more about GWG and the work they do >>> 


#backpain #chronicpain #muscles #rhomboidmuscles

Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018

Home Page >>>


#RareRevolution #raredisease #rarebabies 

Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018

Quoted from e-news mail:

‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’

Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>


Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue  |  May 2018


Read the magazine via this link >>> 

Flare – The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue

Why not visit Flare magazine website and sign up for the magazine >>>

 Flare Magazine website 

#MHAM #MigraineAwareness #HeadacheAwareness 

June is National Migraine & Headache Awareness Month (MHAM)  

2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History

Click this link to find out all about the campaign and how to get involved  >>>

MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.

Need your help NOW for June 2018 launch

June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.

CHAMP Home page >>>  headachemigraine.org/

 Research & Clinical Trial matching

Headache and Migraine Clinical Trials  |   Research & Clinical Trials > Headache and Migraine Clinical Trials  | National Headache Foundation

Match to clinical trials in 60 seconds

Know your options
Access the latest treatments
Receive world class care

Click the link below to check it out and subscribe to their newsletter  >>>

‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation

About the National Headache Foundation  >>>

Voices required!  Nursing associate consultation |  The Nursing and Midwifery Council  |  9th April to 2 July

We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.

This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.

Visit the link below >>> 

The Nursing and Midwifery Council  >>>

“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”

Newsletters from News-medical | Life Sciences >>>

News Medical | Arthritis Newsletter | 3 April 2018


NEW!  News Medical |Allergies Newsletter | 15 May 2018 


News Medical |Dermatology Newsletter | 31 May 2018


NEW! Newsletters from News Medical |Genetics | 6 June 2018  

Headliner:  Researchers call for new genetic tests for congenital diseases

Article information:

Researchers have discovered that genetic mutations called epivariations are the cause of certain neurodevelopmental disorders and congenital diseases.


News Medical |Neurology / Neuroscience Newsletter | 29 May 2018

News Medical |Pharmacy / Pharmacology Newsletter | Headliner:  People who use medical marijuana have higher rates of prescription drug use, study finds |  27 April 2018


New!  News Medical |Psychiatry Newsletter |  7 June 2018  



Latest!  News Medical  |  Rare Diseases  |  23 May 2018 


Latest!  |  News Medical |Rheumatology Newsletter |  Headliner:  Simple changes to diet could help reduce osteoarthritis symptoms|  1 June 2018  


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | June 2018

Meditative Mind  Published on 7 Jun 2018

If you enjoy this then please visit >>>

Via:  www.youtube.com


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Also like to share other posts by fellow bloggers and organisations too

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com and let me know, always happy to help 🙂

Many thanks for reading and helping to share the news that other folks like you write, or, find.


Many thanks SQUARE POSTER Communit


  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
  • FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t! 
  • The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
  • Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews.  It also does not mean that we are affiliated with anyone unless it is clearly stated.
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
  • Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
  • Always be aware of Internet security and note that we cannot be held responsible for external websites.
  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018