#chronicillnessVOICE | 14 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

A selection of online health related newspapers/magazines/newsletters/blogs/events


THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE

It is taking longer than anticipated




Including!

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

Psst!  It’s at the end!!



Before you start 

PLEASE NOTE: That myself and fellow FibroFlutters are patients leading a patient support group and a patient led social media network for our advocacy, networking and support services, we are not medical professionals.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


 



 

Image


CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

Including  >>>

 Image September is Pain Awareness Month

90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts


Becoming Zebra Strong: The Ehlers-Danlos Society Tour USA 2018

Join Lara Bloom, International Executive Director of The Ehlers-Danlos Society, on a special screening tour of “Issues With My Tissues” hosted by our US Affiliates from Providence, Rhode Island to Los Angeles, California. All events are free and open to the public.


My Pain is Real

A #myEDS story by Julie F.

“I cried all the way home. I wasn’t crazy, I wasn’t exaggerating. My pain was real and there was a reason for it.”


FREE Webinar next Wednesday

Dr. Petra Klinge will host a webinar Wednesday, September 19th at 4 PM Eastern: “Understanding Neurological Manifestations of EDS” You MUST sign up to attend this webinar. A recording will be available on our website and YouTube page after the webinar is concluded.


Image

Ghent Patient Day: Tools for managing EDS in a world of challenges

Our Ghent conference is right around the corner! Register now for EDS/HSD Patient Day in Ghent, Belgium on 30 September.


Ehlers-Danlos Society Learning Conference Australia

Space is limited! Register today to reserve your spot for our Australia Conferences! Conferences will be held in Sydney on 7-8 December and Perth on 10-11 December.


 

Read all the above via  the following link >>>



Why not visit The Ehlers-Danlos Society website to discover a whole lot more to like and read as well as the choice to opt-in for their their regular CONNECT newsletter >>>

www.ehlers-danlos.com/



First International ‘patient-registry’ for Ehlers-Danlos syndromes

The hope is that this Ehlers-Danlos syndromes patient registry over time will help researchers Worldwide advance the understanding of EDS, HSD, and related disorders:

  • Map the experiences of those living with Ehlers-Danlos syndromes (EDS) and related disorders globally

  • Facilitate research into the frequency of comorbid conditions associated with the various types of EDS and HSD.

  • Enable the gene search for hypermobile EDS and hypermobility spectrum disorders

  • Discover new forms of EDS/HSD and ascertain the relationships between EDS/HSD and chronic pain, anxiety, and other problems such as neurological, mast cell, gastrointestinal, autonomic disorders

Map / Fascilitate / Enable /Discover quoted from the website 

READ all about it here

THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY




The Ehlers-Danlos Society
P.O. Box 87463
Montgomery Village, MD 20886

 



 

"The mighty: undiagnosed"


 

Ashanti signs off …


Remember, The Mighty is here to support you throughout your journey. Share your story with us if you’d like. We’d love to read more from you

Stay #MightyTogether,

Ashanthi

Rare Disease Editor at The Mighty



Remember to join ‘The Mighty Community’ while you’re there especially if you feel like writing as well as reading  >>>



© 2018 Mighty Proud Media, Inc. All Rights Reserved. Privacy | Terms

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


 



 

 

#HeartHealth  #Heartmatters  #Heart  #cardiology #cardiac #healthy #lifestyle

Heart Matters  |  Learn all about the fats in your blood  |  13 September 2018


Information, inspiration and support for a heart-healthy lifestyle



How fats in your blood affect your health
Image from the Heart Matters Newsletter 13 September 2018

Watch: How fats in your blood affect your health

An animation well worth watching as it is very educational as well as a fabulous use of digital technology to help with educating patients,  and non-patients, about heart health related matters.

Watch: How fats in your blood affect your health


All about low blood pressure

 

All about low blood pressure

 

 


The truth about sugary drinks

 

The truth about sugary drinks

 

 


Popular in the last 7 days  >>>

1. Interactive: How to have a healthy picnic

2. Does getting more sleep help your diet?

3. Quiz: How much do you know about eggs?

4. 7 free cycling apps

5. My body and me: How a heart transplant changed my life


Is garlic good for your heart?

Adding garlic is a great way to flavour savoury dishes without adding salt. But does garlic also have health benefits of its own? Our nutrition expert explains all.

(Get their expert’s view via the newsletter link below)


Tell us what you think of Heart Matters

You could win a £50 John Lewis or Marks & Spencer voucher by telling us what you like about Heart Matters, and what you’d like to see more of in the magazine. Help us improve and you could be a winner!

(Start the survey via the newsletter link below)


Recipe of the week:

Summer berry fruit soup

This classic Scandinavian dish makes for a refreshing dessert on a hot summer’s day. It’s quick to make and also works well for breakfast.

(Get the recipe via the newsletter link below)


Read all the above via this link  >>>

Heart Matters 13 Sept 2018 | Learn all about the fats in your blood



Could you, or someone you know, benefit from receiving Heart Matters?

Encourage them to <<< sign up here >>>

Sarah Brealey

Heart Matters Editor


 



 


#MEAction Team  |  Daily Digest: Scottish Lib. Dems Pass Motion for ME, with Amendment  |  13 September 2018

Catch up on the latest actions and news:

  • Beauty Sleeping: A Real Life Fairytale
  • How To Protest HHS with #MEAction
  • HHS Secretary Kills CFSAC!
  • Scottish Liberal Democrats will Vote on Motion for ME
  • Enrolling: Cornell Brain Imaging


Copyright © 2018 #MEAction, All rights reserved.
Mailing address is:
#MEAction
3900 San Fernando Rd, Unit #1010
Glendale, CA 91204

 



 

#professionals  #PeerReview # diversity  # minoritygroups  #inclusion 

THE IMPORTANCE OF DIVERSITY AND INCLUSION IN PEER REVIEW |  Written by Harriet Lacey  |  Editorial Administrator, European Medical Journal  | 13 September


An important discussion topic and this article is a great read, please share!



Excerpt: 

It is not enough to simply include more women, ethnic minority groups, and people from developing countries within the peer review system. For there to be true diversity, these groups need to be represented equally. When including these groups of individuals, their ability to review and to review well should be recognised and celebrated.


Read the article via the following link  >>>


 

#Dermatology  #Venereology  #EADV

European Medical Journal  |  2 September 2018

Preview of the 27th European Academy of Dermatology and Venereology (EADV) Congress – European Medical Group  |  29 AUGUST 2018 | DERMATOLOGY

www.europeanmedical-group.com – Written by James Coker | Reporter, European Medical Journal | @EMJJamesCoker From 12th–16th September 2018,


Why not check out today’s edition of ‘European Medical Journal, and many other health related newspapers via our Paper.li post where the issues all self-update, via this link  >>>

My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73


Website by Vercossa

 



 

GOV.UK

Press release  |  Jail time to double for assaulting an emergency worker 

Press release Jail time to double for assaulting an emergency worker

New law protecting emergency workers from assault to receive Royal Assent today (Thursday 13 September 2018).



All content is available under the Open Government Licence v3.0, except where otherwise stated

 



#pharmanews #eyeforpharma #pharma #tech


EVENT

Marketing and Customer Experience USA 2018

Nov 14, 2018 – Nov 15, 2018, Philadelphia

A best in class marketing show for Pharma – not just another Pharma marketing show!


Article  >>>

Patient Services Bring Pharma into a New Era – Are You Ready?


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.

social.eyeforpharma.com/about-us

Get the latest industry insights in your inbox:

social.eyeforpharma.com/
Follow eyeforpharma on Twitter:
www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
www.youtube.com/user/eyeforpharma

 


Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


eyeforpharma logo

 



 


Neuroscience Newsletter | 13  September 2018

Neuroscience News

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary

The Scent of a Woman
2018-09-12 
University of Bern researchers report that reproductive hormones don’t only regulate fertility, they also are related to how attractive a woman smells to the opposite sex.

Your Genes Determine How Your Heart Rate Responds to Exercise
2018-09-12 
A new study reports your genes may determine how your heart rate and blood pressure respond to exercise.

The Art of Storytelling: Why We Relate to Characters
2018-09-13
A new neuroimaging study sheds light on how we relate to characters in stories. Researchers report, no matter how a story is relayed, brain networks associated with theory of mind are activated when participants associate with the protagonist. The study concludes our brains relate best to characters, no matter how the narrative is expressed.

Disrupting Genetic Processes Reverses Aging in Human Cells
2018-09-13 
Researchers report certain genes and pathways that regulate slicing factors play a critical role in the aging process. Disrupting these genetic processes, researchers say, could reverse signs of aging in human cells.

Regret is a Gambler’s Curse
2018-09-13 
Researchers report the orbitofrontal cortex replays aspects of past decisions, and the main driver of activity in the OFC is regret when it comes to gambling.

People Show Confirmation Bias Even About Which Way Dots are Moving
2018-09-13 
A new study reports people use confirmation bias, even when a decision they make has little to no consequence.

 




Neuroscience News | Neurology | Robotics| Psychology | Submit News

Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381
USA



 

Neuroscience is a multidisciplinary science that is concerned with the study of the structure and function of the nervous system.

Header image from ‘The British Neuroscience Association’ | About Neuroscience

 




 

September is #PAM2018 #painawarenessmonth chronic pain awareness month

 




 

back-pain

#sleepshow #SOMNEX   #chronicpain #sleep 

#PAM2018

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER… |  BARMAC5 | BackPainBlog  | 10 September 2018


Excerpt:

‘At this show, you can get exclusive access to expert advice, innovative new products, specialist exhibitors, multiple interactive workshops and immersive classes – all designed to help you understand how to improve your sleep and give you and your family a fun day out!’



Read  Barbs Blog post via this link  >>>

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER…


BACK PAIN BLOG UK…
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.

 



#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare

The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

Articles  >>>





Get your Better-Living Toolkit via this link  >>>


 

© 2018 Arthritis Foundation. 1355 Peachtree Street – Suite 600 – Atlanta, GA 30309. All Rights Reserved.

 



#Celiac  #GlutenFree

Celiac-Scene-Gluten-Free-News-September-2018 FB

Ellen Bayens | The Celiac Scene News | Issue: September 2018

For gluten-free news and information including  >>>


CELIAC EXPERT CORNER


The Celiac Scene

  • NCGS Patients Not Able to Identify When Glutened
  • Victoria & Westshore: Meet Up Group for Gluten-Free Families
  • Celiac Disease – Is There a Surge in Diagnosis Rates?
  • What Not to Say to a Celiac
  • Antibody Therapy Could Stop Celiacs’ Immunological Trigger in its Tracks
  • Introducing Gfreewiki.com
  • Osteoporosis Diagnosis Does Not Warrant Celiac Disease Screening
  • 5 Detection Strategies for Celiac Disease

CANADIAN CELIAC PODCASTS


OUR FAVOURITE GLUTEN-FREE PRODUCTS & SERVICES


GLUTEN-FREE RECIPES


GLUTEN-FREE EVENTS

  • Hornby Organic Energy Bar Tasting at Lifestyle Markets – September 15
  • Emergency Preparedness Garage Sale at TOTAL PREPARE – September 22
  • Free Emergency Preparedness Workshop at TOTAL PREPARE – September 22
  • Kelowna Celiac Support Group Meeting – September 26
  • Showcasing Schar Gluten-Free Baking at Lifestyle Markets – September 29

Visit bit.ly/GlutenFreeVancouverIsland for more gluten-free happenings!
Follow The Celiac Scene Facebook Page for daily announcements!


OUR FAVOURITE CELIAC-FRIENDLY RESTAURANTS


Read all the above via the following link  >>> 

Ellen Bayens ~ The Celiac Scene News – September 2018


Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!



Follow The Celiac Scene on Twitter  >>>




Header image is from the newsletter 


© 2018 Copyright – Site by Victoria’s PPC Solutions

The Celiac Scene

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in




#PAM2018

#patientvoice  #chronicillness  #patientjourney  #healthblog

My Medical Musings
Medically Retired and Living a Life of Faith and Hope with a Rare Disease

  |  Sam  |  7 September 2018


Excerpt:

‘Expectations and tangible outcomes can begin to diminish the longer you live with a particular disease. Especially when all known treatment options have been exhausted.’


Read the post via the following link  >>>

 



 

#PAM2018

Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Harnessing a collective focus to transform MSK services


In this issue

  • Guest Blog – Adopting the holistic approach | by Professor Anthony Woolf, Chair, ARMA

Webinar: Setting up a MSK Service

  • Webinar: Setting up a MSK Service 
  • Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
  • 5 October 2018, 12.30 – 1.30

  • Webinar: Rheumatology commissioning in a community
  • Commissioning for Quality: Community-based Rheumatology Service
  • 19 October 2018, 12.30 – 1.30

MSK services survey – Please let us know what is happening locally

MSK services survey – Please let us know what is happening locally

As part of our Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements.


  • Members’ News and Resources

Primary Care Rheumatology Society Conference 2018
“Improving MSK Medicine & Rheumatology”

Starts: Thursday, 22 November 2018 – 09:00
Ends: Saturday, 24 November 2018 – 13:00

And  more… 


Link to the newsletter where there are lots of things to read in this issue! >>>

ARMA SEPTEMBER Newsletter


Who are ARMA? >>> About ARMA


  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.

 



 

#PAM2018

Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  10 September 2018


How Blue Light can Affect People with Chronic Illness |  By Heidi (Guest Writer)  |  9 September 2018


Excerpt:

‘Blue light disrupts the sleep-wake cycle, so downloading a free program like F.lux will change the blue light on your computer screen to match your sleep cycle. You can also use it on Android phones, but you have to manually change to night time mode in the settings on iPhones.’


Read the post via the following link  >>>


 

The Best Free Apps to Combat Migraine & Chronic Pain  |  migrainemantras  | By Alexandria  |  7 September 2018


Excerpt:

‘Since you can listen to the entire self-hypnosis narration free, I advise you to listen to both Migraine Relief and Chronic Pain Relief as long as you want. These are only a few differences between the free and the paid versions of this app, and none of those differences concerns the actual content of the self-hypnosis meditation itself.’


Read the post via the following link  >>>


 

An Open Letter About The Opioid Crisis  |  migrainemantras  | By Wanda |  4 September 2018


Excerpt:

‘There is another “opioid crisis” in America today. It is the crisis of patients being turned away because doctors are judged by insurance companies and legislators for prescribing such medications. It is the crisis of the side-lined, those whose lives are ruled by pain but are unable to treat it adequately. It is the patient who has chosen to take the “lesser” medication and now finds it being stigmatized as well.’


Read the post via the following link  >>>


The Migraine Mantras  >>>

 



#PAM2018


Airing Pain

Informing the pain community


Programme 106:

Pain Education for Doctors, Chronic Pain and Resilience
What can be done to implement better pain educaiton for doctors, patients and parents, and trusting your pharmacist when in doubt.


From e-mail: Production Team, Pain Concern


This edition is incredibly informative, focusing on the gaps in pain education that are present in the UK, which is why we thought your organisation would be interested.

The programme will cover the Essential Pain Management Course, research into patients’ expectations of pain management, and parent appraisals of injustice when their child has chronic pain.

Adam

Broadcast Assistant

Pain Concern



PLEASE share and help us to join in raising awareness for chronic pain through the use of education like this latest ‘Airing Pain Podcast’ which is aimed at medical professionals and everyone #notjustpatients

Many thanks Carole Sian (CEO) Co-Founder FibroFlutters 


106: Pain Education for Doctors, Patients, and Parents


Registered Office: Unit 1-3, 62-66 Newcraighall Road, Edinburgh Eh15 3HS
Company Limited by Guarantee, Registered In Scotland No: 546994
Scottish Charity No: SC 023559
Tel: 0131 669 5951
www.painconcern.org.uk
Helpline: 0300 123 0789 E-Help: help@painconcern.org.uk
Find us: Twitter  Facebook  Forum

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


 



#PAM2018

#NeuroendocrineCancer  #NETS

RonnyAllan.NET – Community Newsletter Covering August 2018

ronnyallan.net/2018/08/31/ronnyallan-net-community-newsletter-covering-august-2018/

International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients

 



paper.li’s

girl reading a newspaper
Photo by Kaboompics .com on Pexels.com

paper.li newsletters have also My favourite health related paper.lis and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today

PHARMAGEEK NEWS, le Journal 

The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 

Click the link above for access to these paper.li’s


Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!

 About paper.li  |   paper.li/introduction.html


 



#PAM2018

#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 


Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us


Visit the website to check out their latest disability news >>>



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in



Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com

 



#PAM2018

#Awareness CAMPAIGN #EDS #EDSUK #HSD #EhlersDanlosSyndrome


Wear Jeans, Change Lives on September 21st 

Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 


Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.


Read more via the newsletter here  >>>


Subscribe to ‘Fragile Links’ a regular members magazine >>>


Join, become a member and find a support group near you  >>>

EDS UK Membership Choices

  • Free – Membership for life
  • plus Fragile Links (digital) £5.00 – Membership expires after 1 year
  • plus Fragile Links (UK delivery) £8.00 – Membership expires after 1 year
  • plus Fragile Links (Eur & Ireland) £13.00 – Membership expires after 1 year
  • plus Fragile Links (rest of World) £18.00 – Membership expires after 1 year

You can join via this link  >>>



Copyright © 2018 The Ehlers-Danlos Support UK
The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ

 



 

 

 





#PAM2018

         

 FIBROfLUTTERS LOGO ON WHITE PHOTOTASTICFMAUK SUPPORT GROUP LOGO  WorkingWith-200_100[1]


FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness


Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!


PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share


Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro

twitter.com/rock_off_fibro

 



 

#EpilepsyAwareness  #Epilepsy

The Turning the World Purple Foundation  |  Epilepsy | 


MOTTO:

We are more than our diagnosis. Epilepsy is NOT who you are.

We are working to smash stigmas associated with Epilepsy through advocacy and education.

www.turningtheworldpurple.org/

Maybe you could help out in some way and get involved 🙂

 



 

chronicillnessbloggers.com
Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers

 



“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



 

 #notjustpatients

fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>

https://www.facebook.com/groups/FFHQMentalHealth/



Something new

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

 

Why not visit Meditation and Healing to see what other tubes they have?  >>>

 



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

🙂

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73



Got something you’d like to suggest or even just talk about please contact us via this form

Advertisements

We'd like to know what you think...

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.