#chronicillnessVOICE | 31 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events


It is taking longer than anticipated


In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018

Psst!  It’s at the end!!


Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  Do you have the end-of-summer blues? |  30 August 2018

Main Headline:   Tips to beat the end-of-summer blues

Health tips for the last days of summer  >>>

  • How to get vitamin-ready for autumn and winter
  • Avoiding back-to-school head lice
  • Can you catch a cold when it’s still summer?
  • How to perfect your bedtime routine
  • Does your child have dyslexia?

This week’s recipes: Easy lunches for work and school

  • Vegan pho jar noodles
  • Coconut energy balls

Join our mental health forum >>>

Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>


Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.

#Robotics  #MedicalDevices  #BionicProsthetics  #Prosthetics #WearableRobots

#motorized  #exoskeleton  #nerves  #electrodes

NIH News in Health Monthly News  |  Bionic movements |  August Issue 2018


‘To make motorized hands more intuitive to use, researchers are developing ways to detect the electrical signals in your brain and nerves to help control advanced bionic prosthetics.’


Cholesterol Good and Bad  |  U.S. National Library of Medicine  Published on 26 Jun 2018

This is a brilliant short video explaining what cholesterol types there are, what their purposes are, and how they can affect your health.

Did you know that cholesterol can be “good” and “bad”? What does cholesterol do and how can it affect your health?

 U.S. National Library of Medicine  >>>


More at MedlinePlus  >>>


Animation: Jeff Day Narration: Jennifer Sun Bell Music: Flowing Stream instrumental by Eric Chevalier, via Killer Tracks

Both the above posts were sourced from this newsletter  >>>

NIH Health Information |  Protecting hearing at school | Cholesterol | Brain injury | Bionic movements | Young adult couples  |  30 August 2018

This service is provided to you by the National Institutes of Health.
NIH…Turning Discovery Into Health®
Visit the National Institute of Health Home Page via this link  >>>



The Arthritis Foundation | Healthy Mouth, Healthy Joints  |  30 August 2018

Headlines  >>>  

Could Your Oral Health Be Affecting Your Joints?

RA-80-Mouthbacteria (1).jpg


Fight Mouth Bacteria


Take Care of Dry Mouth

RA-80-badbreath (1).jpg


Cleanse Your Bad Breath


Sink Your Teeth Into Arthritis-Friendly Food

Privacy Policy | Contact Us
© 2018 Arthritis Foundation.
1355 Peachtree Street – Suite 600 – Atlanta, GA 30309.
All Rights Reserved.



World Health Organization | WHO working with Google to promote physical activity | 30 August 2018

From the newsletter:

‘Through the Google Fit app, WHO is looking to reach more people with its recommendations on physical activity, and showing why moving more is good for health.’

WHO working with Google to promote physical activity

Sign up for updates at the WHO website www.who.int

Copyright © 2018 World Health Organization, All rights reserved.
Our mailing address is:
World Health Organization
Avenue Appia 20
Geneva 27 1211

Hot off the Press – #Oncology and #Haematology Updates! | 29 August 2018

European Medical Journal

Critical contributions to care.

Combat cancer and blood disorders with the latest EMJ Oncology and EMJ Hematology newsletter.

Read via this link >>

European Medical Journal ~ Hot off the Press – Oncology and Haematology Updates!

European Medical Journal | Part of the European Medical Group (ID: 08198092) | 88 Wood Street, London, EC2V 7RS (+44 (0) 1245 334450) | VAT No. GB144219234


MedicineNet ~ Newsletter  |  Stages of Alcohol Use Disorder  |  30 August 2018


Alcoholism: Get Facts on Treatment, Signs and Withdrawal Symptoms
Alcoholism is a disease that includes alcohol craving and continued drinking despite repeated alcohol-related problems, such as losing a job or getting into trouble…

NEWS  >>>

  • U.S. Deaths From Suicide, Drugs Surpass Diabetes
  • More Evidence Ties Stress to Heart Trouble


  • Benzodiazepines vs. Cyclobenzaprine

Read all the above via the following link  >>>

FROM OUR WEBMD SPONSORS  arrow   Nursing and Rehabilitation Centers

MedicineNet’s Depression Center

‘MedicineNet’s Depression Center gives you all of the tools necessary to maintain a healthy body and mind…’

Read more and access the Depression Centre via the newsletter link above

MedicineNet respects your privacy – view our Privacy Policy
903 Calle Amanecer, Suite 300 San Clemente, CA 92673 USA
© MedicineNet, Inc. All rights reserved.



NICE Newsletter |  NICE News | August 2018

This month’s podcast:  
Diabetes and weight loss, how do we get it right?


Join the conversation on Facebook: How should we respond to child abuse?

Quiz the panel on:
Wednesday 29 August at 1:15pm

A recording will be available afterwards.

Featured news  >>>

NICE would welcome further discussions about access to spinal muscular atrophy (SMA) drug nusinersen

Other news  >>>

Antibiotics should not be issued as first line treatment for a cough, says NICE and PHE

Feedback sought to allow life extending treatment on NHS for those with blood cancer

Blog  >>> 

Allied Health Professionals into action

The NICE impact on falls and fragility fractures

Events  >>>

NICE Into Action: FREE lunchtime webinar series for AHPs

Read all the above and much more via this link  >>>

Visit the NICE home page and opt-in for newsletters  >>>




Digital Health Digest | 30 August 2018

News  >>>

INTEROPERABILITY | Health secretary highlights lack of national interoperability standards

DIGITAL PATIENT |  Welsh patients know best after being given access to their records

INTEROPERABILITY |  EPR divergence in a local area ‘will not be supported’ under HSLI

NEWS |  NHS England planning further waves of Global Digital Exemplars

Features  >>>

FEATURE |  Digital jam for NHS providers a welcome start

FEATURE | Digital natives will change the way we think about healthcare delivery

FEATURE | Joe’s View: On the value of patient-centric records


Upcoming Webinars  >>>

Digitally driven workflows and patient journeys – how can we get from ‘good’ to ‘great’?

In today’s NHS, system planning, assurance, evaluation and continuous improvement are essential in delivering coordinated patient care. Join Accenture for our webinar where we will discuss our experience in digitising patient journeys and empowering patients and staff.

How NHS trusts can benefit from real-time data to improve cyber security

The webinar will provide you with insights into how and why the trust selected and implemented Fortinet. You will also learn how the use of SIEM has helped improve compliancy, driven efficiencies and enabled the trust to better utilise information from their existing technology assets to gain useful and insightful knowledge from their network.

Read the above and more via this link  >>>

Digital Health Intelligence Limited
China Works
Black Prince Road
LondonLnd SE1 7SJ
United Kingdom
Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved. 


#EDS  #EhlersDanlosSyndrome  #HSD #HypermobilitySpectrumDisorder #Zebra

#Rheumatology  #MSK  #Musculoskeletal  #PatientSupport  #Professionals

#Research  #HealthInformation

The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

Featuring  >>>

  • Ehlers-Danlos Society receives major gift to accelerate research into EDS and related disorders.
  • Join the EDS and Related Disorders Global Registry
  • Free Webinar: The Emotional Dimensions of EDS/HSD
  • Reminder: Free EDS and Podiatry Webinar Tomorrow
  • Newly diagnosed webinar recording available
  • Putting the Pieces Together

Read all the above via this link to the CONNECT newsletter  >>>

Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link.  You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.

A great place for EDS,… and HSD’s

Here’s the link >>>


The Ehlers-Danlos Society
P.O. Box 87463
Montgomery Village, MD 20886
© 2018 The Ehlers-Danlos Society | Web Privacy Policy



The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

Featuring  >>>

  • Love Amazon? Sign up to Amazon Smile and support EDS UK!
  • Meet our new Medical Advisory Panel Members
  • Cheer on our Great North runners!
  • I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
  • Kirsty’s Big Fun Run challenge
  • Ezra the Zebra book coming soon!

Your local EDS UK support group

Please visit the support group section of our website to find your next support group meeting.

Read all the above via this link to the EDS UK weekly newsletter  >>>

Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the UK? Visit the The Ehlers-Danlos Support UK website for information, advice and #patient support via this following link.  You will be able to opt-in for their newsletters and gain access to professionals, research, health information, and also others like yourself if you join in and register with a local support group.

A great place for EDS,… and HSD’s

Here’s the link >>>


Copyright © 2018 The Ehlers-Danlos Support UK

The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ


girl reading a newspaper
Photo by Kaboompics .com on Pexels.com

paper.li newsletters have also moved to their own ‘digested’ post and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today


The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 

Click the link above for access to these paper.li’s

Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!

 About paper.li  |   paper.li/introduction.html



Neuroscience Newsletter |  30 August 2018

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary. 


Great Minds May Think Alike, But All Minds Look Alike
Researchers report dendritic learning leads to a universal phenomenon that all brains are composed of the same wide spectrum of links.


How the Brain and Personality Provide Protection Against Emotional Distress
A new study reports personality traits can help protect an individual’s brain against symptoms of emotional distress, such as anxiety and depression.

Neuroscience News | Neurology | Robotics| Psychology | Submit News

Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381


eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech


The Big Trends Transforming Pharma | 28 August

Big trends in marketing according to Bayer, Janssen and Lilly c-suites

The industry is fast approaching a promising new future. How is it getting there?

Eyeforpharma asked some industry heavyweights what their vision of the future looks like for pharma.

Read the article here to hear from:

  • Sebastian Guth, Executive Vice President and Chief Marketing Officer, Bayer
  • Christi Shaw, Senior Vice President and President, Lilly Bio Medicines, Eli Lilly
  • Kris Sterkens, Company Groups Chairman, Europe, Middle East and Africa, Janssen
  • Julie Gerberding, EVP & Chief Patient Officer, MSD
  • Jim Robinson, President & COO, Alkermes
  • Andrin Oswald, Director of Life Sciences Partnerships, Global Health, Gates Foundation

Enjoy the read.


Lauren Robertson
Global Project Director  |  eyeforpharma



Marketing and Customer Experience USA 2018

Nov 14, 2018 – Nov 15, 2018, Philadelphia

A best in class marketing show for Pharma – not just another Pharma marketing show!


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.

MSWorldNewsletter  |  Latest from MSWorld, News, Events & More!  | 27 August 2018

Latest from MSWorld, News, Events & More!

Information published online by MSWorld volunteers is not intended to be used toward the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.
– MSWorld Management

Our mailing address is:
MSWorld, Inc.
PO Box 2643
Sarasota, FL 34230-2643




Event registration opens today for National Drug & Alcohol Facts Week  |  National Institutes of Health (NIH) |  29 August 2018

Observance to be held January 22-27, 2019, with new resources for parents and educators.


‘NDAFW is an annual, week-long series of educational events that link teens with scientific experts to SHATTER THE MYTHS about substance use and addiction. NIDA and NIAAA are both part of the National Institutes of Health.’

Opt-in for the e-newsletter about NDAFW planning, organizations can e-mail NIDA >>>



Follow the conversation on social media and look for the hashtag #NDAFW.

@NIDAnews and @NIAAAnews

Details about a NDAFW twitter chat will be shared later this year. To see press highlights and previous articles about NDAFW, go to: 

For all information related to NDAFW, go to: 

NIH…Turning Discovery Into Health®



Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


fibroflutters mental heal discussion group cover pic

For the #Professionals

Psychiatry Advisor’s Daily Updates  | Featuring:  Antipsychotics Adversely Affect Adiposity and Insulin Sensitivity in Youths |  August 29 2018

Psychiatry Advisor’s Daily Updates email features the latest NewsClinical Features, and Opinions for psychiatric health-care providers.

Featuring >>>

  • Deep Transcranial Magnetic Stimulation Combined With SSRIs Possibly Effective for Treatment-Resistant Depression
  • Cortisol Levels May Contribute to Global Cognitive Decline in Elderly Adults With Depression
  • Examining the Effect of Chronic Opioid Use on 2016 Presidential Voting Patterns
  • Higher Risk for Mental Health and Substance Use Disorders in Psychiatry Interns
  • Factors of Inclusivity Promote Workforce Wellness and Engagement
  • NYU Becomes First Medical School to Cover All Tuition
  • Amount of Physical Exercise Affects Mental Health Burden
  • Teen Smoke Exposure Tied to Increase in Related Symptoms
  • Strategy Outlined for Shooter Incident in Healthcare Facility
  • Small Practices Also at Risk for Data Breaches


Pediatric Anxiety Disorders: A Comprehensive Overview


Bipolar Disorder: Is There a Hereditary Connection?

Study suggests that family history of psychiatric illness may be related to a younger age at onset of bipolar disease. See details.


Patient Safety in Psychiatry: Improving Systems and Practices 
This program is a series of 5 Clinical Dialogues taking an immersed look into the issues of patient safety in psychiatry, focusing on aggression, medication errors, handoffs, suicide risk, and elopement. 
2.50 AMA PRA Category 1 Credit(s)TM

Read all the above via this link  >>>

Psychiatry Advisor’s Daily Updates

© 2018 Haymarket Media Inc | 275 7th Ave, 10th Floor, New York, NY 10001



Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine.

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine

‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental health campaigns.’

From the Disability Rights UK Training newletter 8 July 2018

Click here to subscribe, a fee may be required  >>>

Visit the magazine website home page  >>>

Visit the Disability Rights website for all kinds of information, advice and also opt-in for e-news  >>>


Disability Rights UK

14 East Bay Lane
Here East, Queen Elizabeth Olympic Park
StratfordLondon E20 3BS
United Kingdom

020 7250 8181


#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>


 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com





FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro




#EpilepsyAwareness  #Epilepsy

The Turning the World Purple Foundation  |  Epilepsy | 


We are more than our diagnosis. Epilepsy is NOT who you are.

We are working to smash stigmas associated with Epilepsy through advocacy and education.


Maybe you could help out in some way and get involved 🙂



Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers


“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>


Something new

In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018


Why not visit Meditation and Healing to see what other tubes they have?  >>>


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

Got something you’d like to suggest or even just talk about please contact us via this form