#chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

A selection of online health related newspapers/magazines/newsletters/blogs/events


Hope you like our newsletter’s new title and mini-revamp


Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from Focus on Disability 

Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.

For disabled people, the elderly and their carers in the UK

Why not visit and Opt-in for newsletters >>>

Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links! 

Don’t forget to check this evenings edition for their next update!



Twice Daily!   #HealthNews #ChronicPain  #Autoimmune  #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy  #chronicillness  #invisibleillness

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.  

Rhia Steele

All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.  Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.

The Latest Health News & Related Subjects from Rhia at your fingertips

Why not visit and Opt-in for newsletters >>>


Don’t forget to check this evenings edition for their next update!



Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from UK Care Guide 

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.

Follow the link below for Uk Care News  >>>

Why not visit and Opt-in for newsletters >>>

Don’t forget this evenings edition for their next update!




Daily! #disability #disabilitynews #chronicillness

My Disability Matters News & Opinion Digest |  See TODAY’s headlines | 25 May 2018

Headlines for today >>>

  • Aboriginal and Torres Strait Islander social and emotional wellbeing


Further Reading

  • WOW Campaign is back, and pushing for a second House of Commons debate
  • Access to Elected Office Fund sparks call for ministerial meeting
  • ESA sanctions are counter-productive and dangerous
  • Disabled people face hidden crisis in accessible housing
  • Video catches McVey’s misleading claims about disability job stats

Visit and Opt-in for newsletters here for Worldwide Disability Matters DAILY News




Twice Daily!  #Fibro  #ME #CFS #ChronicPain #invisibleillness

Fibromyalgia ME Chronic Pain is out!  

How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and Opt-in for newsletters >>>

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news

Don’t forget to check this evenings edition for their next update!



#brain #mentalhealth #chronicillness  #invisibleillness

The brain and mental health voice is out! | selection by Valeria Duflot 

Why not visit and Opt-in for newsletters >>>

Valeria Duflot – Paper Li

  • #Socent
  • veneziaautentica.com co-founder
  • Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
  • paper.li/


Updates every couple of days!




 Latest!   #mentalhealth #depression  #anxiety #stress #chronicillness  #invisibleillness

Psych Central  |  Psych Central  Daily Newsletter  |  24 May 2018 


Headlines for today  >>>

The Power Of A Support Group | Polishing the Fragments with John Kaniecki|  Pysch Central | May  2018 

Excerpt  >>>

‘The best thing to me of the support group was the fellowship. I made good friends. After the meeting, some of us would head over to Friendly’s for a late night meal. As everybody either suffered from mental illness or were a relationship to somebody that did there was a natural connection.’

Read more via this following link  >>>

About the Author & Polishing the Fragments with John Kaniecki  >>>

Opt-in for newsletters via the Psych Central Home Page  >>>


#PatientGroupLeader   #PatientVoice

Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>

“I share this post as a firm believer of the power of a support group that enables you to have access to help through others like yourself.  Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources.  Sometimes just knowing you’re not the only one can mean the World when times are so difficult….” 

Read more of my #personalthoughts via this following link  >>>






#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>



DAILY!   #chronicpain  #chronicillness #painmanagement

The Chronic pain Daily |  Support from Coach Amber Rose  | paper.li

Editor’s note

Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.

Check out >>>> www.thrivingwithpain.com 


Visit the paper to find out what stories / articles Amber has selected for today  >>>



Other Newsletters / Magazines / Blogs of interest including  > > >

In the Chillout Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018



 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 
You all need to pitch in!!




Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com


#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy



Im-patient UPDATE 

Thankyou to everyone…

…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing as it has also selected it’s steering Group.

Keep a check on how things are going by visiting the website



We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.


The Im-Patient Summit - Logo



#The Big Leap #MS
Take a leap on the wild side and help stop MS.  |  MS Society

‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’  MS Society

The Big Leap Take a leap on the wild side and help stop MS.


#MillionsMissing  #MEAction

#MEAction |  Daily Digest: Contact Congress to Ask for Support for #MILLIONSMISSING

Daily Digest: Contact Congress to Ask for Support for #MillionsMissing

#ME It is way past time for recognition, ME must be taken seriously!

Visit #MEACTION website and join many other ME and CFS patients >>>




#WHO  #WorldHealthOrganisation  #MemberStates #delegations  #HealthAgenda

WHO ~ World Health Organisation | Seventy-first World Health Assembly | 21–26 May 2018 in Geneva, Switzerland.  

Quoted from the ‘Seventy-first World Health Assembly’ webpage:

About the Health Assembly

The World Health Assembly is the decision-making body of WHO.  It is attended by delegations from all WHO Member States and focuses on a specific health agenda prepared by the Executive Board.


Find out what’s going on via this link  >>>

Visit the WHO website for more news and information, you can also opt-in for newsletters  >>>




#chroniclife #patientvoice #chronicblogger #gratitude  #chronicillness #faith #fatigue 

Gratefully Taking Nothing For Granted |  Sam ~ My Medical Musings |  25 May 2018


‘If you are struggling with your chronic disease and finding it really hard to find anything to be grateful for, think about what you can still do. What part of your body is still working?’

Read more via the following link  >>>

Visit Sam’s blog for more posts and opt-in for her newsletters >>>




Connecting You to the Chronic Illness Community    chronicillnessbloggers.com

#fibromyalgia #research #music #sound

#chroniclife #patientvoice #chronicillnessblogger #chronicillness

Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017


‘Then, I came across a study that made me rethink this choice: Listening To Music Can Reduce Chronic Pain And Depression By Up To A Quarter.[1] Researchers found that when people with chronic pain listen to music for an hour a day, they experienced up to a 21% reduction in pain and a 25% reduction in depression. Another important finding was that listening to music made participants feel less disabled by their condition and more in control of their pain. It did not appear to matter whether individuals listened to their favourite music or relaxing music selected by the researchers.’

Read more via the following link  >>>

Read more of Katarinas posts and articles by visiting her blog on WordPress where you can also Opt-in for newsletters  >>>  


I have shared the above post ‘Tune in: How Listening to Music Improves Fibromyalgia‘ with regards to one of my current, personal endeavours when it comes to research and getting involved where I can.

There is currently a research project looking for participants to take part in a study that is for people with Fibromyalgia and / or Osteoarthritis to research into the effect of sound on their symptoms and levels of pain.

It is good to see that Research in this area is still being pursued

~ Carole Sian ~ CEO FibroFlutters & Founding Five Member



Please read the Citizen Scientist post below to find out more >>>

Get involved with #healthresearch in #Salford and #Manchester

Are you interested in #research?

Would like to get more involved, or know what research is going on around you?

Visit The ‘Citizen-Scientist’ website and take a look around, if you like what you read you can opt-in for newsletters  >>>


About #CitizenScientist  >>>


A CURRENT study opportunity:  Testing a new technology to reduce chronic pain

I am currently going through registration for this study after contacting them yesterday.  I was asked if I could help to encourage people to come and join the study by:

Lauren Arendsen

  • Research Associate
  • Clinical Neuroscience
  • Human Pain Research Group
  • University of Manchester

Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.

The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.

 Citizen-Scientist Tags ~  

Read more via this link  >>>


Posted on 14th March 2018 by Jess Zadik



A study update:  Cloudy with a chance of pain – preliminary findings

Citizen-Scientist Tags ~    

Cloudy with a Chance of Pain is a large smart-phone based research study examining the link between weather and pain. 

Read more via this link  >>>


Posted on 14th March 2017 by Natalie Balmain




#MEAction | Daily Digest: Open Medicine Foundation Announces Harvard Collaborative Research Center   | 24 May 2018

Catch up on the latest actions and news:

  • It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two
  • Who is advising the Australian government on ME and CFS research and treatment guidelines?
  • The NIH Plan for ME is Dismal
  • Calling all Patients: Fill Out the Research Survey about PEM
  • Just Invisible: Medical Access Issues for Homebound/Bedridden People

Visit #MEAction website and register, you can also opt-in for the ‘Daily Digest’ newsletters  >>>



Patient Research Ambassadors Initiative Issue 3 | 12 April 2018

#whywedoresearch #ResearchAmbassador #PRAI  

Patient Research Ambassadors Initiative Issue 3

Would you like to be a research ambassador? Visit here to check out the varying ways you can help.





#MedicalProfessionals #Dermatologists 

#Rosacea  #skin #dermatology  #mentalhealth

The Psychosocial Impact of Rosacea: Should Dermatologists Be Concerned? | Suzanne Bujara | Dermatology Advisor  | 22 May 2018


‘Rosacea breeds low self-esteem, which in turn leads to social isolation.1 Historically, rosacea was thought to be a sign of psychiatric illness or alcoholism, which only contributes to existing poor perceptions of the disease.1 Anxiety associated with rosacea creates a vicious cycle, as embarrassment tends to exacerbate the physical blushing associated with the disorder.1’

Visit Dermatology Advisor for more readables aimed at PROFESSIONALS  >>>




#MedicalProfessionals #MentalHealth #Psychiatry  #PsychiatryAdvisor  #CurrentTherapies  #EmergingTherapies

Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies | Ask the experts:  James Murrough, MD, PhD  |  Psychiatry Advisor  


  1. Why are high rates of partial or inadequate responses to first-line antidepressant therapy seen in patients with major depressive disorder (MDD)?
  2. What are the risks associated with partial or inadequate MDD treatment?
  3. What are the current challenges associated with treating patients with selective serotonin reuptake inhibitors (SSRIs) and serotonin-norepinephrine reuptake inhibitors (SNRIs)?
  4. Can you discuss the potential therapeutic role of modulating pathways outside of the monoamine oxidase pathway in MDD? This may include opioidergic, ionotropic, and metabotropic glutamatergic receptor modulation.
  5. Can you briefly review your general treatment algorithms for patients with treatment-resistant depression?


Read James Murrough’s, MD, PhD answers via this link  >>>

Quoted from end of article  >>> 
Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies
Disclosures: Dr Murrough has provided consultation or scientific advisory services to Allergan, Novartis, Fortress Biotech, Janssen, Medavante-Prophase, and Global Medical Education.

Visit Psychiatry Advisor for more readables aimed at PROFESSIONALS  >>>



#Cybersecurity #Healthcare #EMR #HIPAA

The State Of Healthcare Cybersecurity (Part 2) | Anne Zieger|  EMR and HIPAA | 22 May 2018

Opening paragraph:

‘In Part 1 of this series, which drew data from a study by Black Book Market Research, I described how insecure healthcare leaders felt their cybersecurity protections to be. I also noted that a large number of providers are struggling to recruit senior health IT experts, and as a result are basically winging it when it comes to breach protection.’

Read more via this link  >>>

Visit the EMR and HIPAA website to opt-in for their newsletter >>>



#digitalhealthnews #digitalhealth #NHS #EDM

Special Report on Electronic Document Management 

Is EDM the answer to the NHS’ slippery paper-light target? | Digital Health | 25 May 2018

Text taken from webpage:

Many agree that properly implemented electronic document management (EDM) could revolutionise care, however, several technological and cultural barriers remain. Read this

Special Report by Jennifer Trueland to find out: 

Read the new Special Report on EDM  >>>


#digitalhealthnews #digitalhealth #speechrecognition #medicalspeechrecogniton

Dictate.it launches next generation medical speech recognition | Digital Health | 22 May 2018

Quote from the text:

“The engine, a first for a UK health supplier, is available to all registered primary care practitioners on a free trial basis from the 22nd May 2018.”


#digitalhealthnews #digitalhealth #healthmanagement  #LHCRE

Will population health management make or break the LHCRE programme? Read the Advisory Series  | Digital Health | 22 May 2018

Quoted from text:

‘Population health management (PHM) is often touted as key to ensuring the sustainability of the NHS. But, as Owen Hughes reports, there will be barriers to overcome along the way – not least the challenges of linking previously disparate datasets.’


#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient   

LATEST! Digital Health Newsletter |  18 May 2018

Feature  >>>

  • The secret blog of an NHS CCIO, aged 39 ¾

News headlines >>>

  • Will Smart: England to get first HIMSS 7 hospitals before year’s end
  • Research suggests digital skills gap in health sector blocks innovation
  • E-obs provider Patientrack to be acquired by Aussie informatics firm
  • Swindells names and shames NHS trusts not submitting RTT reports
  • A&E check-in app gets £150k funding for expansion up north

Link to the newsletter with many more stories / posts and news to read >>>

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440
Vat No. 198 3531 71



#chronicpain #opioidcrisis #patientvoice

Chronic Pain Survey Showing Gaps in Care| Ed Coghlan  | National Pain Report  | 22 May 2018

Opening lines:

‘They are interested in speaking with patients and providers about their experience. I filled out the form recently–identified myself as the editor of the National Pain Report and received a response email asking that we tell you about the opportunity to comment.’

Visit the National Pain Report website for more posts  >>>



#Diabetes #advocacy

Diabetes Blog – Happy-Medium.net | So, you want to be an advocate | StephenS  |  17 May 2018


‘A survey is underway to gauge the quality of care that chronic pain patients are receiving. The survey, prepared by Terri Lewis PhD and being promoted by the National Pain Report and others, is receiving brisk response.

Dr. Lewis, who is a pain patient advocate, is using the survey to present at the July 9 FDA Public Meeting for Patient-Focused Drug Development on Chronic Pain.’

Read more via this link >>>

Visit Stephens blog for more posts >>>



#Migraines #olfactoryhallucinations #smells #senses #hypersensitivities

The Truth About Phantom Smells  | Jennifer |  Migraine Mantras  |  18 May 2018


‘The other night, I experienced a different smell that wasn’t nearly as delightful as blueberry muffins. I smelled smelly feet! No matter where I moved around… smelly feet were there! I even made my husband move a hamper… just in case it was actually real.’

Read more via this link>>>

Visit the ‘MigraineMantras’ WordPress blog  or more posts >>>



#infograph #chronicpain #backpain #paintreatments  #patientvoice #chronicwarrior #fibromyalgia

Ice vs heat for pain, which works for you ~ Infograph | Barmac5 | backpainblog UK | 20 May 2018

Check our Bar’s WordPress Blog for more posts and useful reads >>>



#hypersensitivities #Foodallergies  #Food  #Allergies  #Prevention #Treatment #chronicillness #MDvoice

Straight, No Chaser: Prevention and Treatment of Food Allergies |  JEFFREY STERLING, MD  |  20 May 2018

You can read more advice from MD Jeffrey Sterling via his WordPress website >>>

Rather poignant read for me this morning as I am off to be tested for coeliac sensitivities today, just a blood test.  If it comes back negative I guess I’ll be going through food sensitivity testing of some kind to hopefully find the cause of my #stomachpain #sensitivegut  ~ Carole Sian aka fibrofly73


I love this!

#pharmavoice #health #socialcare #jargonbuster 

Health and social care jargon buster  |  A Prescription for M.E.  |  Emily Beardall  | 19 May 2018

Quotes from post:

This great A-to-Z from Think Local Act Personal is good to have handy:

Visit Emily’s WordPress blog for more information, news, and articles related to the medications and treatments for ME  >>>

About the Author  >>>



#STATnews  #FirstOpinion #FemaleLeaders  #Innovation #Biotech #Medtech 

STAT NEWS ~ First Opinion  | More female leaders will help drive innovation in the medtech and biotech industries | MELISSA BURSTEIN  |  15 May 2018

See what other news stories are under the category of ‘First Opinion’ by STAT news  >>>

Opt-in for their newsletters when you visit the website via this link  >>>



#STATnews  #FirstOpinion  #Diabetes  #Insulin  #MedicationCosts #MedPricing

STAT NEWS ~ First Opinion  | Paying the price for insulin   | IRL HIRSCH  | 17 May 2018

Opening paragraph:

‘The debate about drug costs can be hard to follow because it is both broad and deep. Between patients not being able to afford their medication, the role of “middlemen” (pharmacy benefit managers), and lawyers filing class-action lawsuits, the topic is complex and can be emotional for many. I’d like to put it into perspective with insulin, a lifesaving drug used by most of my patients — and millions of Americans — that is a perfect case study of the drug pricing issue.’

Read more via this link  >>>

See what other news stories are under the category of ‘First Opinion’ by STAT news  >>>

Opt-in for their newsletters when you visit the website via this link  >>>



Breath test breakthrough for early diagnosis of oesophageal and gastric cancer
photo credit:   Imperial College London

#oesophagealcancer  #gastriccancer  #diagnostictest  #breathtest  #research  #science  #cancerresearch

Breath test breakthrough for early diagnosis of oesophageal and gastric cancer |  Maxine Myers | Imperial College London |   18 May 2018


‘There are more than 15,000 new cases of gastric and oesophageal cancers in the UK and those cancers account for 15 per cent of cancer-related deaths globally. Both cancers are usually diagnosed in the advanced stages as symptoms only become noticeable once the disease develops. As a result, the long-term survival rate is about 15 per cent in the UK. Detection of oesophageal and gastric cancers at an early stage can improve survival rates.’

Read more of this article via the following link  >>>

Why not visit ‘The Imperial College of London’ website and take a look around  >>>




Particle shows promise to prevent the spread of triple-negative breast cancer
A tiny lipid-based particle could deliver a drug that would fight the spread of triple-negative breast cancer. Credit: Illustration/Diana Molleda

#breastcancer #research shows promise!

Particle shows promise to prevent the spread of triple-negative breast cancer | Cristy Lytal |  University of Southern California  |  18 May 2018


‘USC researchers have pinpointed a remedy to prevent the spread of triple-negative breast cancer. Metastatic breast cancer is a leading cause of death for women. The findings appear today in Nature Communications.’

Why not visit ‘University of Southern California’ website and take a look around  >>>




Humira does not improve aortic vascular inflammation in psoriasis patients
Severe psoriasis. Credit: Penn Medicine


A bit of a blow?! #Research #aorticvascularinflammation  #Humira  # Psoriasis

Humira does not improve aortic vascular inflammation in psoriasis patients  | Perelman School of Medicine at the University of Pennsylvania  |  18 May 2018 

I have heard many of my fellow Psoriasis Warriors who love this medication for their psoriasis as it works wonders, apparently, so this is a blow regarding future treatment for ‘aortic vascular inflammation’,… but not overall. (my opinion of course but I’m not a scientist!).  Psoriasis is a chronic inflammatory skin disease that is associated with increased vascular inflammation.

Why not visit ‘Perelman School of Medicine at the University of Pennsylvania’ website and take a look around  >>>




#Wearabletech and Emergency Rooms, will they help with overcrowding!?

Could wearable tech address issues caused by overcrowding in emergency departments?  |  Ellen Goldbaum  |  University at Buffalo  |  18 May 2018 

Opening lines:

‘It isn’t surprising that when hospital emergency departments become overcrowded, care becomes more fragmented, but a recent study by University at Buffalo researchers has found that technologies designed to track and eventually improve staffing levels must be judiciously chosen.’

Why not visit ‘University at Buffalo’ website and take a look around  >>>




#GDPR & the new Privacy Laws.  What do they mean for you?

What’s changing and what’s not under new data privacy rules | Anick Jesdanun  | physorg.com  | 18 May 2018 


‘Not much will change for you, at least right away; companies will keep on collecting and analyzing personal data from your phone, the apps you use and the sites you visit. The big difference is that now, the companies will have to justify why they’re collecting and using that information.’

Read more by following this link  >>>





 Latest!   #mentalhealth #depression  #anxiety #stress #chronicillness  #invisibleillness

An Update During Awareness Week: How Is My Mental Health? | ribbonrx | 17 May 2018

About ribbonrx  >>>

Read more from ribbonrx via this link to their WordPress blog >>>



LATEST ISSUE! #Nutrition #Vegetarian #diet #Recipes #HealthyFood

Patient Newsletter  |  Subject:  Is it time to go vegetarian?  |  16 May 2018

Opening to newsletter >>>

‘The big benefits of a plant-based diet

It could be time to shift the focus on our plates and make room for plants. Such eating habits would lower the risks of diseases like type 2 diabetes, heart disease, stroke and certain cancers.’ 

Try something new for National Vegetarian Week


  • How to go vegan healthily
  • Is red meat bad for your health?
  • How to eat more vegetables without even realising
  • Can eating spicy food help you lose weight?
  • Sweet potato and spinach chilli recipe
  • Coconut energy balls recipe

Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>

Patient work in partnership with the NHS




#Diabetes #DiabetesManagement #MedicationTherapy

Diabetes Self-Management Magazine | Managing Diabetes / Treatment Approaches | Title: Medication Therapy | Updated May 15, 2018

Published July 22, 2014 by Laura Hieronymus, DNP, MSEd, RN, MLDE, BC-ADM, CDE, FAADE, and Gordon Parmley, PharmD


‘Healthy eating and physical activity are always components of a diabetes treatment plan. For people with Type 1 diabetes, insulin is always a necessary part of treatment, and it is often used by people with Type 2 diabetes as well. However, people with Type 2 diabetes usually start medication therapy with oral medicines.’

Read more by following this link >>>

You can subscribe for the magazine and / or the Diabetes Self-Management  e-zine via their website >>>




#Migraine #ChronicPain #chronicillness #healthadvocacy #Migraineawareness

The Migraine Mantras | May E-Newsletter | 16 May 2018

The Migraine Mantras ~ May E-Newsletter

The Migraine Mantras have partnered with Chronic Migraine Awareness Inc.

for #MHAM18!

Find out how you can get involved via visiting the link above



#Migraine #migrainesymptoms #patientvoice #bloggers #ChronicPain #chronicillness #caregivers

Main Headline: Survey Sheds Light on Common Migraine Symptom | Migraine.com weekly | 16 May 2018

Headlines >>>

  • A Survey Sheds Light on a Common Migraine Symptom Lisa Robin Benson
  • The Unfunny Meme #purpleproject
  • Booking My Birthday Vacation at Last The Migraine Girl
  • Pulling Up Roots: Envisioning a Life Free of Migraine Holly Baddour
  • As A Caregiver: Do You Know What to Do? Steven Workman
  • You’re Too Expensive Amanda Workman

Featured story:  Tough Cookie 

Read all of the above via this link >>>

Check out their website for information and more posts / articles.  If you enjoyed this newsletter you can opt-in for the magazine or newsletters via this link  >>>



#patients #patientcommunity #patientsnetwork #chronicillness #invisibleillness

http://www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’

Join a Caring Network
healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.

About healtheo360  >>>

Opening paragraph:

‘The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition. Members share their health related stories and learn from each other through discussion. We encourage you to upload your story via video testimonies but we also offer blogging for those who are more comfortable with that method of sharing. At healtheo360 we believe in the healing power of story telling and how beneficial it is to share your story as well as to learn from other people with similar experiences.’

Follow this link to join in  >>>







#EDSawarenessmonth  #EDS #HSDs #JHS #hypermobility #May2018EDS 

MOVING INTO THE LIGHT | The Invincible Summer | 15 May 2018

Opening paragraph:

May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. – Author, Kathleen Elizabeth

Read more via the following link  >>>

Visit Kathleen at her WordPress blog for more posts and real-life reads  >>>

For EDS support – US – The Ehler’s Danlos Society >>> 

For EDS support – UK – Ehler’s Danlos Support UK  >>> 




#chronicblogger #painmanagement #science #technology #paindevice

I Told You I was Sick | My Review of the Benepod Pain Management Device | 15 May 2018


‘Since the rise of the opioid crackdown, more and more people just like you are seeking alternative pain relief. Dietary changes, supplements, and electronic pain relief devices are among the most popular choices for drug-free pain relief.

Benepod offers electronic pain management in a small, convenient, and affordable unit.’

Visit Jaime’s site for more reviews to read and opt-in for newsletters  >>>

  • itoldyouiwassick.info/
  • Jaime’s Disclaimer: I have been given a Benepod for review as a gift, but this has in no way influenced my comments on this piece.




How to gain control over #osteoarthritis #OA and keep it

Get and Keep Control of Your RA | Rheumatoid Arthritis Blog | Arthritis Foundation  |  14 May 2018 

Get and Keep Control of Your RA

When your disease is under control, you may be tempted to stop taking your medication. But doing so is NOT a good idea.

Advice from Arthritis Foundation


‘Most doctors begin hard-hitting treatment as soon as rheumatoid arthritis (RA) is diagnosed. Research shows that even in the first months after diagnosis, joint damage can occur if the disease is not treated aggressively, says Paul Howard, MD, a rheumatologist at Arthritis Health in Scottsdale, Ariz.’

Link to the post >>>

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>


fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!



#developmental #MentalHealth #Personality #TheSelf

Study suggests your adulthood self-esteem has its roots in the way you were raised as a child  |  Christian Jarrett | 14 May 2018

About the Author  >>>

‘Dr Christian Jarrett is the author of PERSONOLOGY, Using the Science of Personality Change to Your Advantage, forthcoming from Simon and Schuster (North America) and Little Brown (UK and Commonwealth).

He is editor of the Research Digest blog published by the British Psychological Society, and presents their TechCrunch podcast.’ from his bio page


Sourced via Research Digest on WordPress  >>>


#Pharma #Japan #Leadership #DrugPricingReform #LONGREAD

Leadership In Japan | Ross Davies | eyeforpharma | 11 May 2018

‘In the face of new drug pricing reforms, the need to nurture strong leadership is imperative, but not without its challenges.’

eyeforpharma logo

Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued.
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.

Get the latest industry insights in your inbox:

Follow eyeforpharma on Twitter:

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Subscribe to eyeforpharma youtube channel:



#PsoriaticArthritis  #Arthritis #PatientVoice #Patients 

Meet 3 People Living with Psoriatic Arthritis | Arthritis Foundation | 11 May 2018

Meet Richard, Nandi and Andre

If you have PsA, you might be inspired by the stories of three people living with the disease. 

Follow this link to read more  >>>

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>



#Arthritis #LivingwithArthritis #Arthritisdiet #Musculoskeletal #Rheumatology #nutrition 

Arthritis Foundation | Living with Arthritis|12 Best Foods For Arthritis 

  • Best Foods for Osteoarthritis
  • Twelve food choices that can help treat your OA symptoms.

Arthritis Foundation advise >>>

‘To ease the symptoms of your osteoarthritis, watch what you eat.
There are a dozen best food choices that can help fight inflammation and fortify your bones.’ (from the e-news link I subscribe to)

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>



Latest!  #stressresources #stress #mindfulness #meditation

May 2018 Newsletter from Stress Resources  |  Pamela Ressler  |  May 2018

Quoted from the home page:

‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’  

For more articles and information visit the Stress Resources website where you can also sign up for their newsletter  >>>







Latest!  RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter| 30 April 2018


Ronny’s Community Newsletter  >>>

 RonnyAllan.NET – Community Newsletter April 2018

Blog Home Page  >>>




#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>



#HeartHealth #bhf #nutrition #100calories

British Heart Matters – magazine, nutrition | What does 100 calories look like?  | British Heart Foundation  |  5 May 2018

A fabulous post showing you the different food types as 100 calories!

Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters  >>>

The British Heart Foundation >>>

British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426




#Healthcare #health #care #NICE

Latest issue!  NICE Newsletter | 25 April 2018

National Institute for Health and Care Excellence – NICE –  provides national guidance and advice to improve health and social care.

‘Improving health and social care through evidence-based guidance’

Sign up for alerts and newsletters >>>


Newsletters via News Medical

Latest!  News Medical |Diabetes Newsletter | 14 May 2018 


News Medical |  Endocrinology  Newsletter |  10 April 2018


News Medical |  Respiratory Diseases  |  23 April 2018


News Medical |Sleep Disorder Newsletter | 9 April 2018


News Medical | Pediatrics Newsletter | 25 April 2018


Change around in the Chill out Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018

Why not visit NuMeditationMusic to see what other tubes they have?  >>>



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73


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