#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

Im-patient UPDATE
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

May 25, 2018Jun 7, 2018 fibrofly73

The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources. Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

May 25, 2018May 25, 2018 fibrofly731 Comment

#chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

A CURRENT Citizen Scientist study opportunity: Testing a new technology to reduce chronic pain
I am currently going through registration for this study after contacting them yesterday. I was asked if I could help to encourage people to come and join the study…. ~ … Read More #chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

May 25, 2018May 30, 2018 fibrofly73

Friendly and charitable donations

Hello and thank you for reading our website and supporting us. FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers and we are striving to become registered as a community interest organisation. We provide health advice and support locally, nationally and across the globe to other chronic patients and to all stakeholders within the medical healthcare industry, AIMING to provide appropriate healthcare comminications and information to all. Our Chronic illness web portal is used by many across the globe and helps us to raise awareness and educate people about varying chronic illnesses and to provide resources for patients and professionals alike. We strive to be patient / health /research /pharma advocates and work tirelessely to better the end outcoomes for patients whilst promoting patient / person centred and multi-disciplinary approaches to medical healthcare. If you like the work that we do please can help us by donating to help us keep going and to raise the funds required to register our organisation. We thank you again for supporting us. All donations will be gratiously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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