#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

Im-patient UPDATE
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

May 25, 2018Jun 7, 2018 fibrofly73

The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources. Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

May 25, 2018May 25, 2018 fibrofly731 Comment

#chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

A CURRENT Citizen Scientist study opportunity: Testing a new technology to reduce chronic pain
I am currently going through registration for this study after contacting them yesterday. I was asked if I could help to encourage people to come and join the study…. ~ … Read More #chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

May 25, 2018May 30, 2018 fibrofly73

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Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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