Info site - Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome - FibroFlutters Patient Advocacy Organisation

Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

Do have EDS or any other hypermobility syndrome?

Are you unsure about what the condition is or whether you may have it or not?

Would you like to know more about it?, for instance one of the main questions often asked…

… Why the Zebra?

The following link takes you to the charity website of Ehlers-Danlos Support UK (EDS UK) Ehlers-Danlos Support UK . It is a place for information and meeting others with the condition.

Taken from their About us Page

EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos syndrome. We aim to help them live a full, active and positive life. Over 25 years later, we remain the only UK based charity that exclusively represents and supports people with all types of EDS.

The charity holds fundraising events to help towards research into EDS and also helps people learn to live with and manage their condition through providing relevant information in pamphlets and booklets, poster and fliers. They also have a free helpline available to people with EDS, their families, friends and even carers and is run by a registered nurse with a specialist interest in EDS.

They survive solely on donations and fundraising and offer varying membership options, including free.

Contact information:

Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
The Ehlers-Danlos Support UK is a Charity registered in England and Wales No. 1157027
Registered Company No. 8924646.

Featured image from onekind.org – zebra amazing facts about zebras (nothing to do with EDS just zebras)