ME Association campaign for May12th 2018 > Walk the distance, make a difference! Walk for M.E. on ME Awareness Day! | 19 January 2018 Walk the distance, make a difference! Walk for M.E. on ME Awareness Day! | 19 January 2018 ME Association > Helping to make the UK a better place for people with ME/CFS… Read More ME Association campaign for May12th 2018 > Walk the distance, make a difference! Walk for M.E. on ME Awareness Day!
Do have EDS or any other hypermobility syndrome? Are you unsure about what the condition is or whether you may have it or not? Would you like to know more about it?, for instance one of the main questions often asked… … Why the Zebra? The following link takes you to the charity website of… Read More Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
Thanks to Afternoon Tea4Two | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.
The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me.
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018
I’m a sufferer myself alongside many others where I live and my group members need this change as much as I do. That is why I signed this petition >>> Carole Sian Scrafton Will you join in the fight for fibro to be recognised by the UK Government as a disabling condition, rather than ‘an… Read More PETITION to UK Parliament > Make Fibromyalgia a disability | originated by Adrienne Lakin
There are going to be many campaigns during September and October for Pain and Chronic Illness Awareness from a whole variety of organisations, and charities, for many differing illness / diseases / disorders that cause chronic constant pain. In honour of International Fibromyalgia Awareness Week and Pain Awareness Month this post will focus on Fibromyalgia… Read More September is Pain Awareness Month
Find out more about FMAUK via http://www.fmauk.org and here on this CAMPAIGN post by FibroFlutters fibroflutters.com/2016/05/12 | fmauk fighting for the freedom from fibromyalgia Sunderland Mind Centre can be found via http://www.sunderlandmind.co.uk Alternatively you can give them a call for confidential support and advice via these numbers: 0191 5657218, or, 07961064117 Or, drop by the… Read More Home News | FibroFlutters Information Poster
Okay, we often get asked ‘What is EDS’ (Ehler’s Danlos Syndrome)? How do you know what to look for so you know whether or not to ask your GP for a referral, and/or, assessment. This post is designed to offer, you, its readers, links to where you can find information about EDS in the hope… Read More Ehler’s Danlos Syndrome – places for information
Hi everyone Here’s an opportunity to help the direction of future research studies into the ‘Priorities of Adults with Fibromyalgia.’ This text is taken from the James Lind Alliance: Adults with Fibromyalgia Survey this explains the basic details of the study that can be found on the link given below: ‘The CIHR Institute of Musculoskeletal… Read More Research study: James Lind Alliance – Determining the Research Priorities of Adults with Fibromyalgia, their Caregivers and Clinicians: A Priority Setting Partnership for Fibromyalgia
Originally posted on Fibro Fantastic:
Our journeys with Fibromyalgia are often long and very lonely. It is difficult it seems for our loved ones, friends and colleagues to contemplate ever feeling so awful and wracked with pain when, in most cases you look surprisingly well. Doctors, if you get a sympathetic one, are busy and how do you…