(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue?   Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue.  it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

Do have EDS or any other hypermobility syndrome? Are you unsure about what the condition is or whether you may have it or not? Would you like to know more about it?, for instance one of the main questions often asked… … Why the Zebra? The following link takes you to the charity website of… Read More Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

Nomination > LIEBSTER AWARD 2018

Thanks to Afternoon Tea4Two  | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.

The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me. 
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018

May12th |Fundraising – FibroFlutters 4 FMAUK

Hi everyone Please can you help FibroFlutters with our May12th Fibromyalgia Awareness Campaign and help to #fightfibro? I have setup this Just Giving fundraising page in honour of International Fibromyalgia Awareness Day May 12th 2017 on behalf of my Support Group FibroFlutters that I grew with Co-Founding member Vicky Green & our other Founding members… Read More May12th |Fundraising – FibroFlutters 4 FMAUK

Blogger Tips by BACK PAIN BLOG UK | MY TOP 20+ TIPS ON HOW TO MANAGE YOUR FIBROMYALGIA…

I have read this blogpost as a fellow spoonie and think it may hold useful tips for everyone with fibromyalgia so I am pressing / sharing these tips with you.   BACK PAIN BLOG UK | MY TOP 20+ TIPS ON HOW TO MANAGE YOUR FIBROMYALGIA… 1. Rest, rest and more rest, every little helps to… Read More Blogger Tips by BACK PAIN BLOG UK | MY TOP 20+ TIPS ON HOW TO MANAGE YOUR FIBROMYALGIA…

Fibro Flutters October Meet up

Hi everyone I hope you are all as well as you can be as we move into hibernation and the darker months of Autumn and Winter.   Details for next meeting for FibroFlutters A chance to get together and share our worries, woes as well as all things positive. Last ‘scheduled’ meeting until February as… Read More Fibro Flutters October Meet up

Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis

Do you have Irritable Bowel Syndrome (IBS)? #chronicillness Dr Sarah Jarvis discusses and explains the causes and treatments in this video courtesy of Patient via: http://www.youtube.com ~ Patient Once there on the site you will also find info & links for IBS Patient forum and many other useful links too.  🙂 I hope this is… Read More Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis

Petition | Get Hyperbaric Oxygen Therapy (HBOT) on the NHS for Fibromyalgia sufferers.

Do you suffer with fibromyalgia and find it difficult to find a treatment to help ease your everyday chronic pain? Maybe Hyperbaric Oxygen therapy could help you… … only problem with that is that is doesn’t come cheaply and there aren’t too many places which offer this service. If the Government recognised that it is… Read More Petition | Get Hyperbaric Oxygen Therapy (HBOT) on the NHS for Fibromyalgia sufferers.

September is Pain Awareness Month

There are going to be many campaigns during September and October for Pain and Chronic Illness Awareness from a whole variety of organisations, and charities, for many differing illness / diseases / disorders that cause chronic constant pain. In honour of International Fibromyalgia Awareness Week and Pain Awareness Month this post will focus on Fibromyalgia… Read More September is Pain Awareness Month

Ehler’s Danlos Syndrome – places for information

Okay, we often get asked ‘What is EDS’ (Ehler’s Danlos Syndrome)? How do you know what to look for so you know whether or not to ask your GP for a referral, and/or, assessment. This post is designed to offer, you, its readers, links to where you can find information about EDS in the hope… Read More Ehler’s Danlos Syndrome – places for information