#chronicillnessVOICE | 21 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   The list includes >>>

DAILY!  | European Medical Journal

The Patient Registry  |  Daily News & more on patient registries and their impact on healthcare today

A WEEKLY paper | The Receptive Sound Therapy Daily
DAILY! | PHARMAGEEK NEWS, le Journal 

The Immunology  | DAILY!

Twice Daily!   |   News from Focus on Disability 

Daily!  | Above The Fold in Healthcare is out!

Daily! | Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide … Read More #chronicillnessVOICE | 21 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

#chronicillnessVOICE | 20 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

Creating 3-D printed ‘motion sculptures’ from 2-D videos | 19 September 2018

Body support device helps people learn to walk again after a stroke, trauma | Purdue University  |  19 September 2018

TINY cancer detection device proves effective in Uganda testing  |  Cornell University  | 17 September 2018

I can’t sleep. What drugs can I (safely) take? |  by Ric Day And Andrew Mclachlan, The Conversation  | 19 September 2018

Customer Journeys Start With Smartphones, But Brands Still Don’t Get Mobile | Brian Solis   | 13 August 2018

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there?
#pharmanews #eyeforpharma #pharma #tech
Patient Summit Europe
16-17 October 2018, London UK

paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 20 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

September is Pain Awareness Month

90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY… Read More CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

MSK services survey – Please let us know what is happening locally
As part of our Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements.… Read More Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

Wear Jeans, Change Lives on September 21st 
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.… Read More The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

Featuring  >>>

Love Amazon? Sign up to Amazon Smile and support EDS UK!
Meet our new Medical Advisory Panel Members
Cheer on our Great North runners!
I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
Kirsty’s Big Fun Run challenge
Ezra the Zebra book coming soon!… Read More The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link.  You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.… Read More The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018
Harnessing a collective focus to transform MSK services… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018

About Us -How we began

There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us  but we spanned 3 counties!… Read More About Us -How we began

CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More!  | 8 July 2018

#myEDS stories
The Friend Who Keeps Me Going When My Body Won’t Go Anymore – Lisa T

The Only Body I Have  – Shannon B… Read More CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More!  | 8 July 2018