The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018



The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

Featuring  >>>

  • Love Amazon? Sign up to Amazon Smile and support EDS UK!
  • Meet our new Medical Advisory Panel Members
  • Cheer on our Great North runners!
  • I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
  • Kirsty’s Big Fun Run challenge
  • Ezra the Zebra book coming soon!

Your local EDS UK support group

Please visit the support group section of our website to find your next support group meeting.


Read all the above via this link to the EDS UK weekly newsletter  >>>


Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the UK? Visit the The Ehlers-Danlos Support UK website for information, advice and #patient support via this following link.  You will be able to opt-in for their newsletters and gain access to professionals, research, health information, and also others like yourself if you join in and register with a local support group.

A great place for EDS,… and HSD’s

Here’s the link >>>

www.ehlers-danlos.org/


Copyright © 2018 The Ehlers-Danlos Support UK

The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ




 

FibroFlutters

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FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Please can you read our Disclaimer & Privacy notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com


 

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Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


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