#chronicillnessVOICE May 7 health, medical, pharma and research news

#chronicillnessVOICE May 7 – health, patients, medical, research, pharma related news for everyone #notjustpatients

#chronicillnessVOICE May 7:

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.


#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth

#chronicillnessVOICE May 7

PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.

#chronicillnessVOICE May 7 – NEWS

Editors pick of the days newsletters


Cardiovascular disease could be diagnosed earlier with new glowing probe | Medical Xpress MAY 5, 2021

by  Hayley Dunning, Imperial College London

Illustration of the probe’s molecular interactions. Credit: Angelo Frei / Imperial College London

https://medicalxpress.com/news/2021-05-cardiovascular-disease-earlier-probe.html

Sourced via Medicine and Health newsScience X

More information: Edward R. H. Walter et al, A Coumarin–Porphyrin FRET Break-Apart Probe for Heme Oxygenase-1, Journal of the American Chemical Society (2021). DOI: 10.1021/jacs.0c12864

Journal information: Journal of the American Chemical Society


New map reveals genes that control the skeleton | Medical Xpress

by Garvan Institute of Medical Research


X ray of knees. Credit: Garvan Institute of Medical Research


https://medicalxpress.com/news/2021-05-reveals-genes-skeleton.html

Sourced via Medicine and Health newsScience X Newsletter

More information: Nature Communications (2021). DOI: 10.1038/s41467-021-22517-1

Journal information: Nature Communications

Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.



Using flexible microparticles as drug carriers to shuttle nanoparticles to the vascular wall| Phys.org

Provided by Thamarasee Jeewandara , Phys.org


Material properties of NP-loaded hydrogel MPs. (A) Schematic and representative confocal microscopy fluorescence images of hydrogel MPs evaluated, having varied modulus and NP loading. Red is MP hydrogel, green is 50-nm PS NPs, and the two are overlaid to show colocalization of NPs and hydrogel MPs. Scale bar, 5 μm. Swollen shear moduli for (B) 15% PEG and (C) 50% PEG hydrogels showing the influence of adding NPs to bulk material rheometry. Statistical analyses were performed using one-way analysis of variance (ANOVA) with Fisher’s least significant difference (LSD) test, where (***) indicates P < 0.001 in comparison to the nonloaded hydrogels. N = 3. Error bars plot SE. Credit: Science Advances, doi: 10.1126/sciadv.abe0143


https://phys.org/news/2021-05-flexible-microparticles-drug-carriers-shuttle.html

Sourced via: Nanotechnology newsScience X Phys.org

More information: 

Fish M. B. et al. Deformable microparticles for shuttling nanoparticles to the vascular wall, Science Advances, DOI: 10.1126/sciadv.abe0143

Nel A. E. et al. Understanding biophysicochemical interactions at the nano-bio interface. Nature Materials, doi.org/10.1038/nmat2442

Tasciotti, E. et al. Mesoporous silicon particles as a multistage delivery system for imaging and therapeutic applications. Nature Nanotechnology, doi.org/10.1038/nnano.2008.34

Journal information: Nature Materials , Science Advances , Nature Nanotechnology

Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.



See What Doctors Do to Boost Their Immune Systems | MedicineNet

Reviewed By: Hansa Bhargava, MD, FAAP

Reviewed on 10/23/2020


Cold and Flu: What Doctors Do to Boost Their Immune Systems

How can you make your immune system stronger? Why not try what the pros try?


https://www.medicinenet.com/what_doctors_do_to_boost_their_immune_systems/article.htm

Healthy Eating: Foods That Help Increase Blood Flow Circulation | MedicineNet

Reviewed By: Charles Patrick Davis, MD, PhD – Reviewed on 4/23/2020


The food you eat impacts circulation. You can eat to boost blood flow.


https://www.medicinenet.com/deep_vein_thrombosis_dvt_foods_help_circulation/article.htm


Sign up for their FREE newsletters and get the latest health and medical information delivered direct to your inbox.

© 1996-2021 WebMD, LLC. All rights reserved.
Source slideshow on OnHealth

MedicineNet does not provide medical advice, diagnosis or treatment. See additional information.


#chronicillnessVOICE May 7


Selection of posts by WordPress chronic bloggers that we support and follow


8 Ways Gardening Can Improve Wellness Reclaiming HOPE by Terri May 5, 2021

“This was originally written a couple of years ago, but I thought this might be a good time to revisit and update it just in case I can convince you to come over to the ‘green side’….”


Dual Tracer (68Ga-DOTATATE and 18F-FDG) PET Imaging in G2 & G3 Gastroenteropancreatic Neuroendocrine Tumours Ronny Allan – Living with Neuroendocrine Cancer April 30 2021


Another Trip Around The Sun! Reflections with Terry May 3, 2021


Why Is It Important To Teach Disabled People Independence? My Rockin Disabled Life April 29, 2021



ARE STEROID INJECTIONS FOR SIJ ARTHRITIS THE BEST TREATMENT?… by barmac5BACK PAIN BLOG UK… May 5, 2021



Mindfulness Can Make Independent-Minded People Less Likely To Help Others by BPS Research Digest / Emily Reynolds – The British Psychological Society, April 19, 2021


WordPress.com



Its Ehlers-Danlos Awareness Month Blooming Mindfulness by BeverleyButterfly May 5, 2021


Listening to Calming Music at Bedtime Promotes Better Sleep | Neuroscience News


Researchers also learned that listening to music for longer than four weeks is better at improving sleep quality than listening to music for a shorter length of time. Image is in the public domain

Older adults who listened to calming music before sleep, or while falling asleep, had better sleep quality than those who did not.

https://neurosciencenews.com/sleep-music-18274/


Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.



Survey casts doubt on utility of wearable devices in healthcare | Healthcare Dive: IT

By Ron Shinkman


Courtesy of Amazon wearable devices in healthcare

Forrester’s report, based on interviews with doctors, patients and vendors, suggests data gaps and physician skepticism of the popular products is too high for widespread adoption, although design changes could remedy that.


Image courtesy of Amazon


https://www.healthcaredive.com/news/survey-casts-doubt-on-utility-of-wearable-devices-in-healthcare/598846/

Sourced via Healthcare Dive: IT Newsletter Apr 22 (Doctors doubt clinical uses of wearables)

© 2021 Industry Dive


Warning Signs of Ulcerative Colitis | Slideshow

Reviewed by Arefa Cassoobhoy, MD, MPH on July 27, 2020


UC is a bowel disease that causes inflammation of the cells lining your large intestine. This may lead to sores that can bleed and keep your body from digesting food like it should. Here’s what to watch for.

Image by VEM/Photo Researchers


https://www.webmd.com/ibd-crohns-disease/ulcerative-colitis/ss/slideshow-uc-overview



This tool does not provide medical advice. See additional information.


EMJ
Explore our dedicated COVID-19 pages

Out Now: New Issue of EMJ Radiology

An open-access eJournal that provides healthcare professionals with peer-reviewed articles written by experts, exclusive interviews, and highlights from the European Congress of Radiology (ECR) 2021. These are accompanied by abstract summaries of presentations from the congress.


DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li

http://news.emjreviews.com

EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates



Covid-19 roundup: Pfizer submits vaccine for full approval; Merkel opposes Biden proposal to suspend IP for vaccines by Zachary Brennan – Senior Editor


Sourced via: John Carroll — Endpoints News 7 May | Subscription may be required

Endpoints News

Essential biopharma news and analysis
Independent journalism since 2016

#chronicillnessVOICE May 7


Health, Medical, Research, Patient and Pharma related newsletters

A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.

https://fibroflutters.com/2021/02/20/health-medical-research-patient-pharma-newsletters-selfupdating/



The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li


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EVENTS & WEBINARS

Virtual Public Genomics Café

Friday 14 May 2021, 12 – 2pm

(this café is taking place as part of the Genomics Showcase)

The Café is free to join and will be an informal opportunity to meet others and find out about new advances in the area of genomic medicine in Wales. It will also be a chance for people to come together, and let us know how we can better support those affected by rare or genetic conditions.

The special café is being held as part of the first ever Genomics Showcase in Wales and will feature relaxed talks from speakers including:

  • Covid-19 a year on: Professor Keir Lewis, Hywel Dda University Health Board
  • Experiences of a Rare Disease Parent Advocate: Marie James
  • The Role of Rare Copy Number Variants in psychiatric disorders: Dr Kim Kendall, MRC Centre for Neuropsychiatric Genetics and Genomics, Cardiff University
  • Getting involved in Genomics in Wales: Patient & Public Sounding Board Members, Genomics Partnership Wales
  • Opportunity for discussion and networking

As the café is part of the Genomics Showcase, you will need to register for the via the specific link below. This will give you access to the entire Showcase (including talks, stands, activities, films and more) including the café.

The Wales Gene Park
Cardiff University
The Institute of Medical Genetics
Heath Park
Cardiff   CF14 4XN
Parc Geneteg Cymru
Prifysgol CaerdyddY
Sefydliad Geneteg Feddygol
Y Mynydd Bychan           
Caerdydd  CF14 4XN 


Advancing Research Through the Global PNH Patient Registry

Date:
May 12, 2021

Time:
1:00 – 2:00pm ET


The Global PNH Patient Registry is a collaborative effort between the Aplastic Anemia and MDS International Foundation (AAMDSIF), industry sponsors and the National Organization for Rare Disorders (NORD) to study paroxysmal nocturnal hemoglobinuria (PNH). It supports research, provides insight on treatment for the PNH community and helps understand the progression of PNH over time.

Register for this webinar to learn more about this patient registry.

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization members, is committed to the identification, treatment ​and cure of rare disorders through programs of education, advocacy, research and patient services. rarediseases.org55 | Kenosia Ave, Danbury, CT 06810

2021 RARE Drug Development Symposium: Registration Now Open

Sign up for the 2021 RARE Drug Development Symposium

The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.


New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.


Register now for this year’s event to deepen your understanding of rare disease drug development efforts!

2021 RARE Drug Development Symposium
June 9, 2021—June 11, 2021
LOGO

Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!

#chronicillnessVOICE May 7

Raise your #chronicillnessVOICE

Campaigns

Add your story to The Disability Account | Scope

“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”

OVER THIRTEEN HEALTH RELATED AWARENESS DAYS, WEEKS AND FOR THE MONTH OF MAY 2021… | VIA BACK PAIN BLOG UK… barmac5

https://backpainbloguk.com/2021/04/13/over-thirteen-health-related-awareness-days-weeks-and-for-the-month-of-may-2021/

BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA and ARTHRITIC CONDITIONS. BLOG AT WORDPRESS.COM.

Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!

THANK YOU FOR READING #chronicillnessVOICE May 7, YOUR SUPPORT IS GREATLY APPRECIATED

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