#chronicillnessVOICE | Daily News | 23 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients


A selection of online health related newspapers/magazines/newsletters/blogs/events


In the Chillout Lounge!

852 Hz ❯ AWAKEN INTUITION || Remove Fear, Self Doubt & Subconscious Fears || 852Hz | Meditative Mind 4 July 2018

Psst!  It’s at the end!!



KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 5 February 2018

Meditative Mind  Published on 7 Jun 2018

Via:  www.youtube.com



#ArthritisNews #Arthritis

Arthritis Action eNews | Despina Koniordou  | July 2018

Headlines  >>>

New Guidelines for Rheumatoid Arthritis  |  National Institute for Health and Care Excellence 


Rheumatoid arthritis in adults: management  |  NICE guideline [NG100] Published date: July 2018

July Highlights  |  Latest Events

Happy Birthday NHS  |  #NHS70

Upcoming Events!  |  Don’t miss their next events in your local area 

Read the latest ‘Arthritis Action eNews’ via this link  >>>

Arthritis Action 2018 eNews All Rights Reserved – www.arthritisaction.org.uk

Remember if this newsletter interests you please opt-in 



Morning Rounds

Genomics pioneer Craig Venter accused of stealing trade secrets  |  Stat Morning Rounds  | 23 July 2018

In lawsuit, Human Longevity alleges that Craig Venter stole trade secrets | 22 JULY 2018
The genomics pioneer Craig Venter is being accused of stealing trade secrets by Human Longevity, the San Diego genomics company he founded and recently departed.


Link to the article  >>>



#PHARMA #pharma #pharmanews #pharmaphorum

#medicalinnovation #blockchain #healthcare #nanotechnology #medicine #realworld

Deep Dive Oncology special: reflections on ASCO | Pharmaphorum  | 6  July 2018

This is a special edition of ‘Deep Dive’ which focuses exclusively on oncology. 

Subscribers can follow this link >>>

Below you will find the link to subscribe to Deep Dive Magazine by Pharmaphorum

‘This is the first of a series of Deep Dive issues which combine unique insight and opinion with intelligence gathered at a leading medical conference.

The conference in question this time around is the 2018 American Society of Clinical Oncology (ASCO) conference, which pharmaphorum’s senior reporter Richard Staines attended in June.’  qouted from the newsletter

Adam Jeffery
Commercial Director, Deep Dive

Deep Dive Magazine ~ Future Pharma 2018| Pharmaphorum  | 6  June 2018

“As pharma’s model is increasingly disrupted, how will health care and drug development progress? Click the button to read our preview article from the Medicines Discovery Catapult.” Quoted from the cover

What you can read about via the link below  >>>

  • Chris Molloy, Medicines Discovery Catapult, explains why the future of medical innovation lies with the industry’s SMEs
  • Karen Taylor, Deloitte, offers six predictions for the course of our industry into 2022, both evolutionary and revolutionary
  • How Blockchain could enable a truly global healthcare ecosystem
  • And a look into real-world examples of how nanotechnology is now advancing medicine, and the challenges faced
  • Sign up here to ensure you receive our next Deep Dive Oncology special report from ASCO when it is published at the end of this month, and future issues free on publication.You can read our previous editions here: Deep Dive: Patient CentricityDeep Dive Market Access II.

If you like what you see then you can subscribe to the ‘Deep Dive’ magazine and daily updates via the Pharmaphorun website.

Link to the magazine >>>

Sign up for the pharmaphorum daily newsletter and /or the ‘Deep Dive’ magazine via this link  >>>

Kind regards
Adam Jeffery
Commercial Director, Deep Dive

Copyright © 2018 pharmaphorum media limited, All rights reserved.
Subscribed to receive Deep Dive via registration form.

A fabulous pharma magazine!


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.


First Opinion


  • The medical community is changing its mind on chronic fatigue syndrome. Why aren’t insurers?  |  By STEVEN LUBET AND DAVID TULLER

The medical establishment is acknowledging that chronic fatigue syndrome is a real disease. Brian Vastag’s case shows that insurers aren’t doing that.


  • What Philip Roth’s ‘The Anatomy Lesson’ can teach us about pain and addiction  |  By KEN GORDON 

“The Anatomy Lesson” offers lessons in understanding the mechanisms and psychology of pain and addition, and how to engage in a dialogue about them.


  • Treatment privacy laws protect me and 43 million other Americans living with addiction or in recovery  |  By ROBERT D. ASHFORD
  • SPONSOR CONTENT BY STAT PLUS  |  In-depth biopharma, business, and policy analysis at your fingertips
  • Hospitals can save money on drugs without Washington’s help  | By PATRICK YODER
  • Doctors could prescribe drugs more accurately — if they could get the data
  • We need to improve Medicare’s annual wellness visit to better detect early dementia  |  By NOAM KIRSON AND URVI DESAI AND NICOLE FOWLER
  • Child abuse and neglect must be treated as a public health issue  |  By RICHARD KRUGMAN AND MARY WOOLLEY
  • Insurers are helping shape the future of our health care system  |  By MATT EYLES

Read these in the newsletter via this link  >>>

STAT: First Opinion ~ A week’s worth of perspectives on science and medicine

Do you like this newsletter and enjoyed the read, why not ‘opt-in’ for STAT morning rounds, and others via this link  >>>


1 Exchange Pl, Suite 201, Boston, MA 02109 
©2018, All Rights Reserved.



Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


#hearthealth #bhf  #healthmatters  #healthyheart #heartdisease

Heart Matters ~ British Heart Foundation |  Are you hungry for a healthy snack?  |
19 July 2018

’10 low-calorie snacks to fill gaps

When you’re hungry in between meals, staying on track and making healthy choices is easier than you might think. Our 10 quick and easy snack ideas hit the spot without too many calories.’ Quoted from the newsletter

PLUS >>>

‘When you’re not very mobile due to chronic illness it is very easy to develop a cholesterol problem as I found many years ago.  Not many people realise the dangers of it and associate it with people who carry more weight than they should, but they shouldn’t because even people of the fitter, and slimmer builds, can still have a cholesterol problem.

I am of course highlighting the importance of this to try and rectify this misconception within chronic communities and as well the public in general.

This article by The British Heart Foundation is a useful and educational read’

Carole Sian

Recipe of the week:

Baked spiced peach with raspberries

Read the newsletter via this link  >>>

Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters  >>>

The British Heart Foundation >>>

Sent via e-news by Sarah Brealey  | Heart Matters Editor

British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426


#ResearchNews #PatientStudies  #patientvolunteers

Citizen Scientist  |  NHS turns 70 – July 2018  |  19 July 2018

Patient Volunteer Studies

  • Getting the right treatment for diabetes
  • Diabetic foot ulcers
  • Diabetic foot ulcers
  • Language and memory problems after a stroke

Healthy Volunteer Studies

  • How does the brain control movement?
  • Studying babies’ first steps
  • How are walking aids used during the day?

Patient & Public Involvement

  • Help design new research into knee osteoarthritis
  • Have your say on malnutrition research

News & updates

  • Recruitment success for patient safety research

Does any of the above sound interesting then please sign up with Citizen Scientist to receive their newsletter.

To read the latest issue follow this link  >>>

About Citizen Scientist  >>> www.citizenscientist.org.uk/about/

Copyright © 2018 Citizen Scientist [Salford],
All rights reserved.
Our mailing address is:
Citizen Scientist [Salford]
Research and Development
Salford Royal NHS Foundation Trust
Stott Lane
Lancashire M6 8HD
United Kingdom


#MultipleSclerosis  #MSmagazine  #MS

The Buzz, MS Society Newsletter  |   Staying cool in a heat wave, tips for festival goers and re-purposing existing drugs  |  20 July 2018

  • Top tips for staying cool
  • Which existing drugs could help in progressive MS?
  • Walk, roll or stroll to stop MS
  • 10 things festival goers with MS need to know
  • The ups and downs of travelling with MS

Read the newsletter via this link  >>>

Privacy & Cookie Notice

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#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient

#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS

Digital Health Newsletter | Digital Health | 20 July 2018

Link to the newsletter and links to other news sections >>>

Digital Health Newsletter – 20 July

Features  >>>

FEATURE The CNIO interview: Jacqui Cooper, Wirral University Teaching Hospital NHS Foundation Trust

UPCOMING EVENT | Digital Health Rewired

News  >>>

NEWS | Digital Health Awards 2018: Winners revealed

AI AND ANALYTICS | NHS England to publish AI code of conduct later this year

NEWS |  South Tees CGG placed under special measures following £8m overspend

NEWS |  Birmingham digital GP centre rated ‘Outstanding’ by the CQC

INFRASTRUCTURE |  Connected care homes ‘could slash £1bn from NHS demand’

Upcoming Webinars  >>>

Implementing a Single Sign On Solution – Key findings of the third edition of the annual Digital Heath NHS IT Leadership Survey, 2018

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>


Our new Advisory Series is now live  | Digital Health  |  12 July 2018 

Mobile and Modern Working
New Advisory Series now live

Our new Advisory Series is now live

Digital Health Intelligence Limited
China Works,
Black Prince Road,
London,, Lnd, SE1 7SJ
United Kingdom
Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved. 
Registered No. 9257440 | Vat No. 198 3531 71



eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech

Tackling Stigma  |    |  eyeforpharma  |  17 July 2018

~ How pharma and patient groups are tackling negative attitudes around health 


Some diseases are heavily stigmatized – including mental health, HIV/AIDS, hepatitis and some skin conditions – leading people to restrict their participation in society, impairing their chances of living happy, healthy lives.

Read more via this link  >>>



Selling The Value Story | Adam Chapman  | eyeforpharma  |  19 July 2018

~ To get a drug to market, payers, physicians and patients must buy into its narrative — is yours a compelling read?


The stakes for story-telling could not be higher than in healthcare. With pricing obstacles strewn across route to patient access for innovative drugs, pharma companies must construct a narrative that resonates deeply with its target readership. Lives depend on it.

Read more via this link  >>>


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.



My Disability Matters News & Opinion Digest has moved to it’s own space and will still be updated regularly.  Why not pop along and join the MDM Club / Community Platform and meet Dale Reardon, it’s founder, while your there.

Paper.Li newsletters have also moved to their own ‘digested’ post and they update themselves. 



For the next few weeks we shall be helping to endorse our fellow friends from the chronic illness communities for their Wego Health Awards.  I would like you to help us to help them get recognised for the advocacy work that they do, including our co-editor, ‘Gabrielle Lopez / Rie of Letters’, who has a few nominations that we can help her along with.  See our special endorsements post coming soon!

It’s that time of year to recognise your peers, your fellow advocates and patients leaders.

WEGOHealth Awards

Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.

Everyone can be a part of the #WEGOHealthAwards!

Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including

#chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement

#patientadvocacy #healthadvocacy #researchadvocacy

#ChronicillnessVOICE  #NotJustPatients


Check out the nominees

Vote your favourite Patient Leader?

Who is making a difference within the communities that you engage with? Do they deserve a little recognition?  

Then follow the link >>>


Follow @wegohealth and the WEGOHealth Awards via Twitter

#WEGOHealthAwards ~Twitter

WEGO Health ~ Website


WEGO Health ~ FaceBook


WEGO Health ~ Instagram


WEGO Health ~ You Tube




fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>



Newsletters via News Medical

News Medical |Dermatology Newsletter |  31 May 2018

News Medical |Diabetes Newsletter | 09 July 2018 

News Medical |  Endocrinology  Newsletter |  10 April 2018


News Medical |  Respiratory Diseases  |  09 July 2018


News Medical |Sleep Disorder Newsletter | 2 July 2018


News Medical | Pediatrics Newsletter | 11 July 2018



Chillout Lounge!

852 Hz ❯ AWAKEN INTUITION || Remove Fear, Self Doubt & Subconscious Fears || 852Hz | Meditative Mind 4 July 2018

Why not visit Meditation and Healing to see what other tubes they have?  >>>


Many thanks for reading and helping to share the news that other folks like you write, or, find.


Many thanks SQUARE POSTER Communit


  • That here at fibroflutters.com we are not medical professionals unless clearly stated.  We are just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
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  • Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews.  It also does not mean that we are affiliated with anyone unless it is clearly stated.
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018