There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us but we spanned 3 counties!… Read More About Us -How we began
At a similar time that I got fascinated by what was occurring in the world of pharma I was also engaging within the realms of research advocacy and getting more involved wherever I could.… Read More About Us – Research
Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders
Our wish is to share the experiences of others & know theyare not alone, advise & share useful information & also to help raise awareness of our chronic/invisible illness… Read More About Us – Raising Awareness
Opening lines:
Researchers from the University of Illinois at Chicago are the first to conduct a large-scale analysis of treatments and outcomes for children with Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN), rare skin conditions caused by medications and infections.… Read More Rare pediatric skin conditions often get expensive, inconsistent care | University of Illinois | 9 July 2018
Wellness across different dimensions shown to facilitate independence in older adults | University of Maine | Medical Express | 11 July 2018
How a Mediterranean diet could reduce osteoporosis | University of East Anglia | Medical Express | 11 July 2018
Extreme heat and reduced cognitive performance in adults in non-air-conditioned buildings | Harvard T.H. Chan School of Public Health | Medical Express | 10 July 2018 … Read More Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018
I haven’t read the full report only the article and it is interesting to read as a patient, patient group leader and as a non-pharma reader,. I do think it important to share these reports so that people can read them no matter which area of the med care industry they are based in. FibroFlutters… Read More Pharma Intelligence | 2018 R&D Review: 5 Key Takeaways
