About Us -How we began

There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us  but we spanned 3 counties!… Read More About Us -How we began

About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed.  I am also using these new opportunities in the ‘REAL WORLD’ to help  myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Opening lines:

Researchers from the University of Illinois at Chicago are the first to conduct a large-scale analysis of treatments and outcomes for children with Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN), rare skin conditions caused by medications and infections.… Read More Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018

Wellness across different dimensions shown to facilitate independence in older adults  |  University of Maine  |  Medical Express |  11 July 2018

How a Mediterranean diet could reduce osteoporosis  |  University of East Anglia  |  Medical Express |  11 July 2018  

Extreme heat and reduced cognitive performance in adults in non-air-conditioned buildings  |  Harvard T.H. Chan School of Public Health  |  Medical Express |  10 July 2018 … Read More Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018