#chronicillnessVOICE | Morning Edition | 8 June 2018 ~ a health newsletter for everyone! #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events


Please note that I have opted-in to receive all the newsletters that I post from


Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from Focus on Disability 

Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.

For disabled people, the elderly and their carers in the UK

Why not visit and opt-in for their newsletters  >>>

Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links! 

Don’t forget to check this evenings edition for their next update!



Twice Daily!   #HealthNews #ChronicPain  #Autoimmune  #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy  #chronicillness  #invisibleillness

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.  

Rhia Steele

All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.  Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.

The Latest Health News & Related Subjects from Rhia at your fingertips

Why not visit and opt-in for newasletters  >>>


Don’t forget to check this evenings edition for their next update!



Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from UK Care Guide 

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.

Follow the link below for Uk Care News  >>>

Why not visit and opt-in for newsletters  >>>

Don’t forget this evenings edition for their next update!




Daily! #disability #disabilitynews #chronicillness

My Disability Matters News |  See the latest headlines | 8 June 2018

Headliners  >>>  

TUC Disabled Workers’ Conference: ‘Discriminatory train firm should be stripped of franchise’

There is “a clear and direct link between universal credit and starvation”, with food bank referral rates more than double the national average in areas where there has been a full UC roll-out.

EHRC will examine the new policies to ensure they are lawful and adequately consider equality and human rights implications for their patients.

Other Headlines for today >>>

  • Rail company to run services with no wheelchair spaces
  • TUC Disabled Workers’ Conference: Government ‘has created hostile environment for disabled people’
  • Project into social isolation of young people with learning difficulties
  • Relegated Premier League clubs ‘should use funds on disability access’
  • Trio of disabled politicians welcome ‘partial victory’ on Access to Elected Office Fund

Visit and opt-in here for Worldwide Disability Matters DAILY News  >>>



Twice Daily!  #Fibro  #ME #CFS #ChronicPain #invisibleillness

Fibromyalgia ME Chronic Pain is out!  

How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and opt-in for newsletters  >>>

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news

Don’t forget to check this evenings edition for their next update!



#brain #mentalhealth #chronicillness  #invisibleillness

The brain and mental health voice is out! | selection by Valeria Duflot 

Why not visit and opt-in for newsletters >>>

Valeria Duflot – Paper Li

  • #Socent
  • veneziaautentica.com co-founder
  • Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
  • paper.li/


Updates every couple of days!


 Latest!   #mentalhealth #depression  #anxiety #stress #chronicillness  #invisibleillness

Psych Central  |  Psych Central  Daily Newsletter  |  10 June 2018 

Headlines for today  >>>

  • By The Grace Of God
  • ‘Eat Cake For Breakfast’: A Tribute to Kate Spade
  • Mom’s Mood May Help or Harm Child’s Sleep
  • Stressful Job Tied to Greater Risk of Heart Rhythm Disorder

Opt-in for newsletters > Home Page:




#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>




DAILY!   #chronicpain  #chronicillness #painmanagement

The Chronic pain Daily |  Support from Coach Amber Rose  | paper.li

Editor’s note

Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.

Check out >>>> www.thrivingwithpain.com 


Visit the paper to find out what stories / articles Amber has selected for today  >>>



Latest!  RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 7 June 2018


Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer



#patients #patientcommunity #patientsnetwork #chronicillness #invisibleillness

http://www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’

Join a Caring Network:

healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.

About healtheo360  >>>

Opening paragraph:

‘The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition. Members share their health related stories and learn from each other through discussion. We encourage you to upload your story via video testimonies but we also offer blogging for those who are more comfortable with that method of sharing. At healtheo360 we believe in the healing power of story telling and how beneficial it is to share your story as well as to learn from other people with similar experiences.’

Follow this link to join in  >>>



Other Newsletters / Magazines / Blogs of interest

(not in chronological order) 

including  > > >

In the Chillout Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018



 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 
You all need to pitch in!!




Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com




#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •   Trustee • Patient Consultant/Leader




OA and your lifestyle
constantly texting?!

#arthritis #osteoarthritis #lifestyle #knucklecracking #texting #highheels #vitaminE

Arthritis Foundation E-news | Lifestyle Factors & Osteoarthritis Outcomes | Five lifestyle factors that may be linked to OA.

Here are five lifestyle factors researchers have studied to see if they’re linked to OA:

  • Besides possibly irritating those around you, can knuckle cracking lead to the disease?
  • If your child is constantly texting, is the development of OA more likely in his or her future?
  • Can wearing high-heeled shoes contribute to an OA diagnosis?
  • Is high-impact, weight-bearing exercise helpful or harmful?
  • Can a diet rich in vitamin E reduce the risk of OA or its progression?

‘Managing your arthritis – and the pain and restrictions that come with it – is much easier if you know what to avoid and what can be beneficial. We want to arm you with useful information that helps put you in control!’

Arthritis Foundation

Original posted on Arthritis Blog Home »  Osteoarthritis Blog Home  » Can Lifestyle Factors Influence Osteoarthritis Outcomes? | Arthritis Today Magazine  June 2017.

Visit the ‘Arthritis Foundation via the following link for more useful information, blogs, blog posts and there are also newsletters that you can opt-in for >>>


© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309




Try This, Not That: JA Complementary Therapies  |  Arthritis Foundation E-newsletter | 6 June 2018

JA Alternative Treatments

Complementary Therapies for JA  |  Try this, not that: find out which therapies to try and which ones to avoid.

Many families turn to complementary therapies to help ease the pain of a child with arthritis.

That can be a good thing – just be sure whatever you’re considering works for your situation.

  • Exercising with free weights and activities like jumping rope can improve both physical and emotional health without increasing pain. But avoid high-impact sports.
  • Relaxation exercises may diminish pain intensity … and they cause no negative side effects.
  • Water therapy is a good way to limber up stiff joints in the morning, and relax tight, aching muscles at bedtime.
  • Massage can relax muscles, lessen pain and improve circulation.

Learn all about complementary therapies for JA.

They may provide you with new methods to help manage your child’s pain.

© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309


Get and Keep Control of Your RA | Rheumatoid Arthritis Blog | Arthritis Foundation  |  14 May 2018 

Get and Keep Control of Your RA

When your disease is under control, you may be tempted to stop taking your medication. But doing so is NOT a good idea.

Advice from Arthritis Foundation


‘Most doctors begin hard-hitting treatment as soon as rheumatoid arthritis (RA) is diagnosed. Research shows that even in the first months after diagnosis, joint damage can occur if the disease is not treated aggressively, says Paul Howard, MD, a rheumatologist at Arthritis Health in Scottsdale, Ariz.’

Link to the post >>>

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>

 © 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309




Happiful Magazine E-newsletter | Help us help you | 7 June 2018

Happiful Magazine Help us help you

Visit the Happiful website to read past issues online, FREE, and you can also opt-in for newsletters  >>>





#biopharma #pharma #FDA  |  For the execs

BioPharma Dive E-newsletter | BIO18: Pfizer (sort of) inches back to neuro; Building ties with FDA | 7 June 2018

Headlines  >>>

BIO18: Pfizer (sort of) inches back to neuro; Building ties with FDA
Day Three of the BIO International convention shined a light on the neuroscience space and its evolution.

ASCO18:  Who were the big winners and losers?
Merck, Loxo and Bluebird departed Chicago looking stronger, while mixed results from Roche, Nektar and a few others left investors unimpressed.

ASCO18:  3 unanswered questions from oncology’s largest conference
This year’s ASCO meeting showcased dozens of major advances in cancer care, but several major questions remain in the red-hot field of immunotherapy.


Tech Success: Improving patient medication adherence through apps
Patient engagement in clinical trials is key to improving poor medication adherence.

Novartis won’t face Swiss criminal probe over payments to Trump lawyer
The Swiss attorney general received a complaint alleging bribery by Novartis, but found insufficient suspicion to merit opening criminal proceedings.

BIO18:  Diversity takes center stage
The conversation highlighted industry gender diversity — and lack of it. BIO had 18 “manels,” or panels that were only men.

Axovant stock rockets up on Oxford gene therapy deal
A new addition to its pipeline signals the biotech is still forging ahead despite a recent Alzheimer’s trial blowup.

First Neulasta biosimilar headed to US market
The FDA has approved Mylan and Biocon’s copycat pegfilgrastim, putting even more pressure on the already weakening Amgen franchise.

Read all the above and more via the following link where you can also opt-in for E-newsletters  >>>

About BioPharma Dive

Our mission is to provide busy execs like you with an overview of the BioPharma industry in 60 seconds. BioPharma Dive is a product of Industry Dive. 

View other Industry Dive publications.




#diabetes #highbloodsugar #bloodglucose #selfmanagement #symptoms #diabetesawareness #diabetesinfo

High Blood Sugar Symptoms  |  Diabetes Self-Management  E-newsletter |  6 June 2018  


‘Signs and symptoms of high blood glucose are often what lead people with undiagnosed diabetes to visit their doctors and, consequently, get diagnosed. But signs and symptoms of high blood glucose can also occur after diabetes is diagnosed and treatment has been started. It is a signal that your diabetes has slipped out of control.’

  • High Blood Sugar Symptoms
    • Updated March 31, 2017
    • Wil Dubois BS, AAS, CPT, is a diabetes columnist and author of four books about diabetes that have collectively won 14 national and international book awards. He has Type 1 diabetes, and is the diabetes coordinator for a rural nonprofit clinic.

Visit the ‘Diabetes Self-Management’ website for more posts / articles, information and advice related to diabetes.  You can also opt-in for E-newsletters  >>>




#chronicpain #patients #healthcarecomapanies  #discrimination #education #professionals

Do we need to educate the professionals?  | Steve Ariens | via National Pain Report | 5 June 2018


‘Now is the time for chronic pain patients to start contacting law firms and point out to them – EDUCATE THEM… all the patient abuse, neglect and discrimination that is going on at the hands of these corporate entities that are called “healthcare companies” – and individually these companies are harming hundreds, thousands or tens of thousands of chronic pain patients.’

Read more by the Author  >>>

Visit the National Pain Report website for more readables and opt-in for their newletters  >>>




#patientfocussed #chronicpain #drugdevelopment #public meeting

Public Meeting for Patient-Focused Drug Development on Chronic Pain |  Ed Coghlan  |  National Pain Report  | 4 June 2018

Opening paragraph:

Over 1,000 people—many of whom are National Pain Report readers—have filled out a survey designed to inform an FDA Patient Meeting on July 9, 2018. The official title of the event is a Public Meeting for Patient-Focused Drug Development on Chronic Pain.

About the Author: Ed Coghlan

If you haven’t completed the survey yet, it only takes about 30 minutes to take and you can do that via the following link  >>>




#hearthealth #bhf  #healthmatters  #healthyheart #heartdisease

#nutrition #educational #freesugars #cardiacarrest #patientvoice #recipe 

British Heart Matters – magazine |  Carole, could an egg a day help your health? 🍳 | British Heart Foundation  |  4 June 2018

“Information, inspiration and support for a heart-healthy lifestyle”


Headlines  >>>

  • Could an egg a day keep the doctor away?
    • New research has suggested that eating an egg a day could help to reduce your risk of heart disease and stroke. We delve deeper to discover the truth behind the headlines.
  • Watch an animation discussing The truth about ‘free’ sugars.
    • We all know we need to avoid eating too much sugar. But do you know what types to avoid? Our animation explains.
  • What I’ve learned from my cardiac arrest
    • In a letter to her younger self, nurse Sarah Woodford shares what it feels like to think you’re dying, and the things she wishes she’d known before her cardiac arrest.
  • What really counts as your 5-a-day?
    • Knowing what counts as one of your 5-a-day – and what doesn’t, can be tricky. We debunk some of the myths with a list of 12 things that really shouldn’t count as your 5-a-day.
  • Recipe of the week |  Salmon with honey-roast beetroot salad
    • Create this light and fresh salad for lunch or dinner – it’s perfect with crusty bread and a tangy lemon dressing.
  • Tell us what you think of Heart Matters
    • You could win a £50 John Lewis or Marks & Spencer voucher by telling us what you like about Heart Matters, and what you’d like to see more of in the magazine. Take the survey, help us improve and you could be a winner!

Popular in the last 7 days  >>>

  1. How much salt is in your restaurant meal?
  2. 8 ways to stay slim for life
  3. Watch: What’s the difference between a heart attack and a cardiac arrest?
  4. 10 surprisingly sensational salad ingredients
  5. Blood pressure research

Read all the above via the following link  >>>

Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters  >>>

The British Heart Foundation >>>

British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426




Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | June 2018

Harnessing a collective focus to transform MSK services

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ? It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.



2018 Migraine Awareness Month

#Migraine #migrainesymptoms #patientvoice #bloggers #ChronicPain #chronicillness #caregivers

Main Headline: 2018 Migraine Awareness Month| Migraine.com weekly | 6 June 2018

Headlines >>>

2018 Migraine Awareness Month| By Editorial Team | 1 June 2018

Little Joy, Big Impact | Kyky Knight | 31 May 2018

Gravity Blankets – Are they Worth the Hype? | #purpleproject | 29 May 2018

What’s Your Secret: Travel Tips | Holly Baddour | 27 May 2018

Coping Mechanisms | Steven Workman \ 25 May 2018

When that Little Voice in Your Head Is Mean | Holly Baddour \ 24 May 2018

Featured story  >>>

Migraine For The Past Five Months. Really struggling! |  By stephckj | 18 May 2018

Featured poll  >>>

How do you raise awareness for migraine?

Read all of the above via this link >>>

Migraine.com weekly

Check out their website for information and more posts / articles.  If you enjoyed this newsletter you can opt-in for the magazine or newsletters via this link  >>>




J U N E is Migraine & Headache
Awareness Month!

#chronicillness #healthadvocacy

#Migraine #ChronicPain  #Migraineawareness

The Migraine Mantras | May E-Newsletter | 16 May 2018

The Migraine Mantras ~ May E-Newsletter

The Migraine Mantras have partnered with Chronic Migraine Awareness Inc.

for #MHAM18!

Find out how you can get involved via visiting the link above

#Migraine #ChronicPain  #Migraineawareness

Weekly digest for The Migraine Mantras  | 4 June 2018

Headlines  >>>

Ways I’ve Healed My Mental Illness  | By   Alisha

You Are Not Alone | By   Winslow 

Being a “Zebra” with Migraine   |  BY JORIEJEANNETTE,SARINA

Chronic Pain & Yoga: My Journey  |  By María –

Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter  >>>




#Migraines #guilt #hurdles #copingstrategy

STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) |  Migraine Mantras  |  25 May 2018

Opening paragraph:

‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’

Read more via this link>>>

Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter  >>>




#neurosciencenews #neuroscience 

Neuroscience News via ~ Neuroscience Newsletter | 6 June 2018

The latest headlines over at ‘Neuroscience News’

First Artificial Human Prion Created | 2018-06-06 
Researchers have successfully created a synthetic version of a human prion, a protein associated with brain wasting diseases like sporadic Creutzfeldt-Jakob disease. The prions may help shed new light on, and provide treatment options, for those with CJD and other prion related diseases.

How the Brain Performs Flexible Computations |2018-06-06
A new neural model reveals how the brain is able to adapt and process new information, researchers report.

Link Between Neurotransmitter Imbalance and Brain Connectivity in Those with ASD | 2018-06-06
Researchers have identified a link between neurotransmitter imbalance and brain connectivity in brain areas associated with social communication and language in those with ASD.

A Better Way to Trace Neural Pathways| 2018-06-06
Researchers have improved retrograde virus tracing to better reconstruct neural circuits in rats and mice.

Seeking New Answers to Alzheimer’s Cause| 2018-06-06
Researchers implicate presenilin and GSK-3b in the development of Alzheimer’s disease.

Brain Cancer Atlas Created | 2018-06-06
A new brain cancer atlas maps out comprehensive, visually rich information about the anatomical and genetic bases of glioblastoma, researchers report.

Human Drug Addiction Behaviors Tied to Specific Impairments in 6 Brain Networks | 2018-06-06
A new study reports impairments in six brain networks are associated with addiction behaviors. The findings may pave the way for developing more targeted treatments for addiction.

Distracted People Can Be Smell Blind | 2018-06-06
Researchers say inattentional anosmia exists. People who are busily engaged in tasks or distracted may not notice the presence of new smells, a new study reveals.

Want Narcissists to Donate to Your Cause? Make it About Them| 2018-06-06
Researchers report narcissists who are asked to imagine a recipient’s circumstances are more likely to donate to a cause than when the recipient’s plight is simply described to them.

Teenage Girls More Impacted by Sleepiness Than Boys | 2018-06-06
Researchers report teenage girls are more heavily impacted by sleepiness than boys of the same age. The study reveals teen girls have more trouble saying awake during school hours and often feel too tired to embark on other social activities.

Inside the Brains of Killer Bees | 2018-06-06
Researchers have identified neuropeptide alterations that occur in Africanized honeybee brains when they become aggressive.

A Typical Communication Pattern of People with Alzheimer’s | 2018-06-06
Researchers provide a statistical analysis of ‘saving appearance responses’ in patients with dementia. The study reveals the SAR responses are particularly common in those with Alzheimer’s disease.


Read all the above & the latest Neuroscience News by visiting their website by following this link, you can also opt-in for e-mail updates like I have for their latest headlines >>>




#pharmanews #eyeforpharma #pharma #tech 

Sizing Up Pharma’s Tech Maturity |   Andrew Stone | eyeforpharma |  1 June 2018

About the Author  >>>

Get the latest industry insights in your inbox:

Follow eyeforpharma on Twitter:

Like eyeforpharma on Facebook:

Subscribe to eyeforpharma youtube channel:


eyeforpharma logo





#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy




#medicaldevice  #newsmedical  #medicalnews  #medicaltech  #technology #healthcare  #pharma 

Latest!  News Medical | |  The latest medical device news from News Medical |  1 June 2018 Edition


  • High Voltage Power Supplies Selection Guide
  • Snail’s eye inspires new type of RIOCATH urinary catheter
  • Uterine Artery Embolization: Technique and Complications
  • Novus Varia Lumenis Multicolor Photocoagulators from Lumenis
  • X-CLARITY™ Tissue Clearing System II
  • Sonohysterography – Technique and Indications
  • Automated Hit Picking and IC50 Plate Preparation
  • Technique and Precautions During Hysterosalpingography
  • Titan Enterprises’ new MetraFlow ultrasonic flowmeter preserves process integrity

Read the articles listed above by following this link  >>>

Please visit the ‘News-Medical website where you will be able to opt-in for varying health related newletters  >>>

http://www.news-medical.netCopyright © 2000-2018
Privacy Terms and Conditions



#AI  #AItechnology #healthcare  #innovation  #medicalinnovation  #pharma  #tech  #science 

MedCity News | Top Stories E-newsletter  |  New $10 million fund for AI launches  |  2 June 2018


Bessemer Venture Partners unveils new seed stage fund to invest in AI-driven technologies for healthcare  |  By STEPHANIE BAUM  |  1 June 2018

Other headlines >>>

  • SPONSORED |  Access to Carriers Across the Nation Through a Single Point of Integration
  • SV Angel goes ‘back to basics’ as partners exit
  • Andy Slavitt, AVIA will team up to bring innovation to the Medicaid space
  • Right-to-try law intended to weaken FDA, bill’s author tells agency commissioner
  • SPONSORED  |  Hurry! Save $300 by 6/5 on MedCity CONVERGE, strategies and solutions in oncology innovation

You can read all the above articles via the following link  >>>

Opt-in for their new digest by visiting their website >>>

About MedCity  >>>



#bipolardisorder  #bipolar  #selfcare  #mentalhealth  #mentalhealthawareness  #patientvoice  #themighty #depression

E-news ~  Bipolar Disorder on The Mighty  | Theme  ~ A selection of  posts RE: Self-care tricks for people with bipolar disorder  |   1 June 2018

4 Depression Self-Care Tips for When You Literally Cannot  |  Erica Chau  | 11 December 2017

About ‘The Mighty’ contributor  >>>


Self-Care Tricks I Practice for Bipolar Disorder  |  Katie Gallo  |  2 November 2017

About ‘The Mighty’ contributor  >>>


101 Self-Care Suggestions for When It All Feels Like Too Much  |   Annie Wright, LMFT  |  4 April 2016

About ‘The Mighty’ contributor  >>>


Sarah ~ Mental Health Editor at The Mighty, says 

I hope the self-care tips in this newsletter inspire you to take care of your needs this weekend. Whether you rest, have an adventure or get through some chores, I hope you get what you need.


Take care of yourself,


Quoted from the end of the ‘Bipolar Disorder on The Mighty’ newsletter


If you visit ‘The Mighty’ Home Page you can join in by opting-in for e-newletters, follow specific health conditions and / or different writers / contributors.  You can post your blog posts and contribute too  >>>



#PETscans  #PET  #Cancer

Gallium PET Scans – Into the Unknown  |  Ronny Allan  |  31 May 2018


‘There’s a lot of excitement about the Gallium 68 PET Scan since it was approved by the US FDA. It’s not new though and has been in use in several countries (mainly Europe) for some time. It’s a ‘nuclear scan’ and can often form part of what is known as a ‘Theranostic Pair’ (i.e. in conjunction with a therapy – read more here).’

Read the post via the following link  >>>

Read more and opt-in for updates via this link >>>





#The Big Leap #MS
Take a leap on the wild side and help stop MS.  |  MS Society

‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’  MS Society

The Big Leap Take a leap on the wild side and help stop MS.

Visit the MS Society for more news and events  >>>





#MEAction Indiegogo campaign

“We need to raise $100,000 through this Indiegogo campaign to support our work for the remainder of the year to expand our reach, build community, increase our advocacy, educate doctors and scientists, and inspire new researchers and clinicians to join the field. Here is what your support can help us achieve.”

#MEAction Indiegogo campaign

#ME It is way past time for recognition, ME must be taken seriously!

Visit #MEACTION website and join many other ME and CFS patients >>>





#chronicpain #backpain #paintreatments  #patientvoice #chronicwarrior #fibromyalgia

Ice vs heat for pain, which works for you ~ Infograph | Barmac5 | backpainblog UK | 20 May 2018

Check our Bar’s WordPress Blog for more posts and useful reads >>>




#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient

#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS

New!  Digital Health Newsletter | Digital Health | 7 June 2018

News Headlines  >>>

  • CLINICAL SOFTWARE:  Royal Devon and Exeter NHS Foundation Trust gets Epic approval
  • NEWS: Hunt reveals revised breast cancer IT scandal figures
  • SHARED RECORDS:  Surrey Care Record due to launch in August
  • NEWS:  Jeremy Hunt becomes longest serving Health Secretary
  • DIGITAL PATIENT:  Mobile healthcare to top $28bn in 2018 as doctors turn to digital
  • SHARED RECORDS:  Greater Manchester LHCRE to work with neighbours toward ‘common capability’

Features  >>>

  • HEALTH CIO:  The CNIO interview: Rachael Robins, Betsi Cadwaladr University Health Board
  • INTEROPERABILITY:  Can the ‘have-nots’ overtake Exemplars in the interoperability stakes?
  • Upcoming Events:  Digital Health Summer Schools
  • Upcoming Webinars: 
    • Building a digital NHS which empowers people to better manage their health and care
    • Blueprints for the future: how will the knowledge of GDEs be shared?
    • Implementing a Single Sign On Solution – Our Experience of Imprivata OneSign

Link to the newsletter and links to news sections >>>

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440 | Vat No. 198 3531 71



#elderlycare #healthcare #postopcare  #advancedsurgery  #AgeUK  #domiciliarycare #HomeCareSolutions #HomeCare

‘What good is advanced surgery if we can’t even offer proper homecare?’  |  Anna Bawden and Nicola Slawson | The Guardian  |  30 May 2018

Opening paragraph:

‘Almost 1.2 million people aged over 65 do not receive the support they need with essential daily tasks such as getting washed and dressed or preparing meals, according to Age UK. The perilous state of the domiciliary care sector, which provides support in people’s own homes, is one of the main reasons for this, the charity says.’

Read more via the following link  >>>

About the Authors  >>>

Visit The Guardian for more news via the following link where you can also opt-in to subscribe, and be a supporter, like I do and be kept informed of latest news and also their latest offers >>>

Note taken from ‘The Guardian’ website to its readers
“Thank you to the many people who have already supported us financially – your contribution is what makes stories like you’ve just read possible. We increasingly need our readers to fund our work so that we can continue holding power to account and producing fearless journalism.” From the Guardian

Even as little as £1 can help them make a difference!



#Healthcare #health #care #NICE #socialcare #evidencebased

Latest issue!  NICE Newsletter | May 2018

Including their latest PODCAST:  Managing multimorbidity: putting patients at the heart of their care

National Institute for Health and Care Excellence – NICE –  provides national guidance and advice to improve health and social care.

‘Improving health and social care through evidence-based guidance’

Visit the website for other news and you can also choose to opt-in for alerts and newsletters >>>



#Campaign  #Petition #CarersTrust #GreenPaper2018 #elderlycare #careworkers #support

Meet your MP about the social care Green Paper 2018 | Carer’s Trust

The Government has promised to consult in 2018 on a long-term solution to social care funding for older people in England in a Green Paper.

If you’re a carer – why not meet your MP and tell them why the Green Paper has to include support for carers?

Meet your MP about the social care Green Paper 2018

Visit the ‘Carer’s trust’ website for more care news and opt-in for e-news  >>>

Carers Trust believes in a world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.


#CarersWeek2018  11th – 17th June



#CarersWeek2018  11th – 17th June

Get involved with events near you,why not check out if there is something happening close by?

Individuals and groups all over the UK are organising events to raise awareness for Carers Week 2018

If you’re planning an event or activity for Carers Week 2018, add it to the Carers Week map!


Visit the ‘Carer’s Week’ website for more care news & opt-in for e-news updates  >>>





#healthcare #healthcareprofessionals #HCP #MSA

 Multiple System Atrophy Trust | Health and Care Professionals Study Day

We are pleased to announce our next study day for Health and Care professionals will be held in Newcastle on 11th October 2018.

Multiple System Atrophy Trust | Health and Care Professionals Study Day

About the Multiple System Atrophy Trust  >>>




#NOTjustPatients #socialmedianetwork #digitalhealth #advocacyplatform #MAYOclinic #MCSMN

Mayo Clinic Social Media Network (MCSMN)

“After being, recently, introduced to this advocacy platform I can thoroughly recommend folks joining and making use of the Network to help empower themselves, and those of others.

I have been a fan of MAYO clinic for years so am really grateful to have access to such a great platform, especially not being a US resident but rather from UK.  However, FibroFlutters do have many readers from the US and helping to provide you with safe places to go to online holds as much importance to us as finding safe places for our own UK readers to go to.

There’s access to discussions, webinars & MCSMN Blog  depending on membership selection from Free, or, Premium.  Please note that e-patients and students receive a special rate.

I certainly look forward to using it more, and hopefully making a few new friends along the way.”

Carole Scrafton ~ CEO FibroFlutters / Founding Five Member


Do you think this is a network for you?, or maybe you know someone else who might benefit from it’s services?

You can join the MCSMN via the following link >>>




#HealthAdvocacy #healthcare #patients

Health Hats  |  You say you want a revolution  |  By Danny van Leeuwen  |  27 May 2018


‘One of the things that Victor said was that reformers are important, but healthcare is not designed for health and wellness, care and kindness. The entrenched forces will not fundamentally change with reform. It needs a revolution, a patient revolution. I’ve never been good at putting other people’s labels on myself – I don’t know if I’m a reformer or a revolutionary. During my professional and now activist career, I’ve seen myself as a catalyst for change – sustainable change that continues when you’re gone.’

Visit Health Hats and opt-in for their new posts via e-mail >>>




#MEActionDaily Digest: It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two   | 23 May 2018

Read: Volume One here. 

Other headline:

  • Who is advising the Australian government on ME and CFS research and treatment guidelines?

Catch up on the latest actions and news:

  • The NIH Plan for ME is Dismal
  • Calling all Patients: Fill Out the Research Survey about PEM
  • Just Invisible: Medical Access Issues for Homebound/Bedridden People
  • Inquest Rules Merryn Crofts Died Due to Severe ME
  • UK Call to Action: Ask Your MP To Sign EDM 1247!

Visit #MEAction website and register, you can also opt-in for the ‘Daily Digest newsletters  >>>



Get involved with #healthresearch in #Salford and #Manchester

Are you interested in #research?

Would like to get more involved, or know what research is going on around you?

Visit The ‘Citizen-Scientist’ website and take a look around, if you like what you read you can opt-in for newsletters  >>>


About #CitizenScientist  >>>


A CURRENT study opportunity:  Testing a new technology to reduce chronic pain

Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.

The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.

 Citizen-Scientist Tags ~   , , 

Read more via this link  >>>


Posted on 14th March 2018 by Jess Zadik


A study update:  Cloudy with a chance of pain – preliminary findings

Citizen-Scientist Tags ~    

Cloudy with a Chance of Pain is a large smart-phone based research study examining the link between weather and pain. 

Read more via this link  >>>


Posted on 14th March 2017 by Natalie Balmain




#digitalhealthnews #digitalhealth #speechrecognition #medicalspeechrecogniton

Dictate.it launches next generation medical speech recognition | Digital Health | 22 May 2018

Quote from the text:

“The engine, a first for a UK health supplier, is available to all registered primary care practitioners on a free trial basis from the 22nd May 2018.”

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440 | Vat No. 198 3531 71



Im-patient UPDATE 

Thankyou to everyone…

…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/

Keep a check on how things are going by visiting the website



We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.


The Im-Patient Summit - Logo



#Diabetes #advocacy

Diabetes Blog – Happy-Medium.net | WEEKLY DIGEST | StephenS  |  4 June 2018


  1. One at a time.
  2. My turn.
  3. You do You.

Read more via this link >>>

Visit Stephens blog for more posts >>>



#GDPR & the new Privacy Laws.  What do they mean for you?

What’s changing and what’s not under new data privacy rules | Anick Jesdanun  | physorg.com  | 18 May 2018 


‘Not much will change for you, at least right away; companies will keep on collecting and analyzing personal data from your phone, the apps you use and the sites you visit. The big difference is that now, the companies will have to justify why they’re collecting and using that information.’

Read more by following this link  >>>



#palliativecare #dying #terminal 

Patient Newsletter  |  Subject:  What not to say to someone who is dying  |  7 June 2018

What not to say to someone who is dying | Gillian Harvey

If a friend or family member is given a terminal diagnosis, it’s natural to want to support them. But many of us are scared of saying the wrong thing. We look at potential pitfalls.

About the author and more of her articles >>>

Let’s talk more openly about death

Other Headlines:  

  • How to talk to children about death
  • What you need to know about palliative care
  • Can exercise help with grief?
  • How to support someone bereaved by suicide
  • Join our mental health forum
  • Can you die from a broken heart?

Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>

Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.


fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!


#PsoriaticArthritis  #Arthritis #PatientVoice #Patients 

Meet 3 People Living with Psoriatic Arthritis | Arthritis Foundation | 11 May 2018

Meet Richard, Nandi and Andre

If you have PsA, you might be inspired by the stories of three people living with the disease. 

Follow this link to read more  >>>

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>



Latest!  #stressresources #stress #mindfulness #meditation

May 2018 Newsletter from Stress Resources  |  Pamela Ressler  |  May 2018

Quoted from the home page:

‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’  

For more articles and information visit the Stress Resources website where you can also sign up for their newsletter  >>>







#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>



Newsletters via News Medical

Latest!  News Medical |Diabetes Newsletter | 29 May 2018 


News Medical |  Endocrinology  Newsletter |  10 April 2018


News Medical |  Respiratory Diseases  |  29 April 2018


News Medical |Sleep Disorder Newsletter | 9 April 2018


LATEST!  News Medical | Pediatrics Newsletter | 25 April 2018


Change around in the Chill out Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018

Why not visit NuMeditationMusic to see what other tubes they have?  >>>



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73


Got something you’d like to suggest or even just talk about please contact us via this form