Let’s have a poll to see how differing aspects of fibro affects us all differently as we all know that just because we share the same symptoms and anxieties we are not the same!
How do you expect the results to look?
FIBROFLUTTERS CHRONIC, INVISIBLE & RARE ILLNESS SUPPORT
Patient Advocacy Organisation & Online Community Support
Patient * Health * Research * Pharma * Advocacy
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in and be socially responsible for each other!!
and if you have a problem we are always open to discussion, just e-mail Carole
PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.
PLEASE NOTE: THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole
And my profile on Synapse where you can read about the initiatives that I am involved with
https://synapse.pfmd.org/experts/O6wWb7Kd
FibroFlutters on Synapse where you can read about the initiatives that we are involved with
https://synapse.pfmd.org/organizations/fibroflutters
Reblogged this on Karen Lawrie.
Current leaders are:
Fatigue 30%
Chronic Pain 20%
Medical Professionals (incl. own GP’s) lack of knowledge of Fibro 20%
The poll continues until end of June so please vote vote vote!!