Which 3 of these aspects of your Fibromyalgia cause you the most distress?


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Fast Forward one day….. ….. Squashed flat the next!

PAIN SCALE CROC

Let’s have a poll to see how differing aspects of fibro affects us all differently as we all know that just because we share the same symptoms and anxieties we are not the same!

How do you expect the results to look?



Feels like your head is in a vice!?!
MIGRAINE Feels like your head is in a vice!?!



FibroFlutters fancy logo
Fancy Logo © FibroFlutters

FIBROFLUTTERS CHRONIC*INVISIBLE*RARE ILLNESS SUPPORT

Patient * Health * Research * Pharma * Advocacy


Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK … 
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.


FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!  

You all need to pitch in and be socially responsible for each other!!




FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!  

You all need to pitch in and be socially responsible for each other!!





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PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.


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MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole



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2 thoughts on “Which 3 of these aspects of your Fibromyalgia cause you the most distress?

  1. Current leaders are:

    Fatigue 30%

    Chronic Pain 20%

    Medical Professionals (incl. own GP’s) lack of knowledge of Fibro 20%

    The poll continues until end of June so please vote vote vote!!

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