About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

We need you to support ARMA during Bone and Joint Week 2018
12-20 October 2018

Are you a #DisabilityGameChanger?
Scope | The fight for equality |  11 October 2018

#ArthritisAwareness  #WorldArthritisDay
Arthritis Foundation | You Can Make a Difference |  8 October 2019

Arthritis Foundation | Arthritis Therapies That Work | 9 October 2018

Digital Health Digest | 11 October 2018

Patient Newsletter  | Be kinder to yourself this World Mental Health Day |  10 October 2018

Psych Central Newsletter |  Psych Central Daily | 
11 October 2018

FibroFlutters supporting eyeforpharma as #PatientAdvocates  #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine |  RARE Round-up  |  11 October 2018

Download your entry pack for the eyeforpharma 2019 Awards

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  11 October 2018

Read More #chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients