Call for action: As patients and HCP’s please give your input on patient information leaflets (PIL) and medicine guides

Two surveys to understand the need, usage and usefulness of patient information leaflets (PIL) and package leaflets/ inserts

The PFMD Working Group that focuses in the post-launch phase is working on a detailed How-to guide to all stakeholders to do more systematic patient engagement. This How-to guide will address patient engagement in the co-creation of patient information leaflets and other supportive information for patients.

The aim of this How-to guide is to improve patient facing material that can truly support patients with accessing and understanding treatment information.


Help us by sharing your insights as a member of the patient/ carer community or as a healthcare professional through a dedicated survey. See the link to surveys below.


Understanding patients’ challenges, needs and preferences for medicine product leaflets.

Understanding healthcare professionals needs and challenges when discussing patient information leaflets with patients.


Concretely, your input will help us understand the needs, challenges and expectations regarding this important information, co-create tools to increase patient involvement in the development of patient information leaflets, promotion of best examples, recommend formats and avenues for dissemination, language consideration and ultimately improving health literacy and access to information regarding medicines prescribed.

Attached below are one-pager invitations (for each survey) for more information that you can also share with your network.

The surveys will close on October 18th.

Thank you!
On behalf of the Working Group and PFMD team


And my profile on Synapse where you can read about the initiatives that I am involved with

https://synapse.pfmd.org/experts/O6wWb7Kd

FibroFlutters on Synapse where you can read about the initiatives that we are involved with

https://synapse.pfmd.org/organizations/fibroflutters

FibroFlutters disclaimers, privacy policy and social links


FibroFlutters fancy logo
Fancy Logo © FibroFlutters



FIBROFLUTTERS CHRONIC, INVISIBLE & RARE ILLNESS SUPPORT

Patient Advocacy Organisation & Online Community Support


Patient * Health * Research * Pharma * Advocacy


Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK … 
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.



Please can you read our ‘Disclaimer’ & ‘Privacy’ notes
and if you have a problem we are always open to discussion, just e-mail Carole


PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.


PLEASE NOTE: THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES.


MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole



See our About Us pages




Social links



And my profile on Synapse where you can read about the initiatives that I am involved with

https://synapse.pfmd.org/experts/O6wWb7Kd

FibroFlutters on Synapse where you can read about the initiatives that we are involved with

https://synapse.pfmd.org/organizations/fibroflutters


Categories



We'd like to know what you think...

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.