Hello everybody Next meeting is on 20th November
#EDS #JHS #Fibromyalgia #chronicillness #invisibleillness #Pain
Hope to see you there
Next Meet Up
PLEASE NOTE WE ARE AN OFFICIAL SUPPORT GROUP – NOT A DROP-IN TYPE GROUP, WE ARE A SUPPORT GROUP THAT MEETS ONCE A MONTH FOR AN INFORMAL CATCH UP.
Our informal get togethers mean that we get to talk about our illnesses share advice, discuss the work we are doing, and also have a little fun enjoying the social contact. Some of us with social anxieties prefer this kind of setting, which is why it is an informal occassion.
This meeting is also for our Fibromyalgia members and Fibromyalgia Action UK supporters as an extra meeting on top of our sister FMA UK Fibromyalgia group’s meeting on the FIRST MONDAY OF THE MONTH which our members are welcome to Join. (Information below)
FibroFlutters is actively involved with all kinds of projects and advocacy work that we sit and discuss during these meet ups. These projects are to give those members who are looking for a distraction and ways to be more involved the opportunity to actually get physically involved in external advocacy alongside the Founding Five Flutters.
We also discuss the work that charities are doing especially FMA UK & EDS UK for Fibromyalgia, EDS & hypermobility disorders HSDs, Research from reliable sources, new treatment options or medications and much, much more!
Hope to see you there!
Check out the location via this link, which will also have a map and all feasible directions.
The Cooper Rose
Disabed Parking:
Blue Badge holders can check disabled parking via this link:
Don’t have a blue badge? then to see if you qualify and apply follow this link:
Bus timetables:
nexus:
Sunderland, Tyne & Wear:
Metro Timetables:
Sunderland:
Nexus Tyne & Wear:
Any other info requests please lt me know via the form at the end of this post, below, many thanks.
Wishing you all wellness
Carole Sian
Thank you for reading and supporting us
Fibro Flutters supporting
#patients & #pharma
#AllStakeholders #professionals #clinicalresearch #medtech #biotech #science #AI #AR #VR #medicalaffairs #medicines #innovation
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and offering online support via our social media network across the globe.
PLEASE NOTE: We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
FibroFlutters continuously
Advocating for a Multi-Disciplinary / All stakeholders approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
