Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.… Read More Ehlers-Danlos Syndrome Awareness in the Month of May
Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us
Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.… Read More Freshly updated Selected Newsletters from News Medical
Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!… Read More Ellen Bayens | The Celiac Scene e-News – February Edition!
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
Do you have Psoriasis? and live in the US?? This post gives patients the chance to take a short quiz to find out if they are at risk of developing Psoriatic Arthritis. It is believed that approximately 1/3 of people with Psoriasis will develop it. It also provides healthcare professionals the Psoriatic Arthritis screening toolkit.… Read More National Psoriasis Foundation: Psoriatic Arthritis Screening
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: September 2019
Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: August 2019
