Category: invisible illness

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Ehlers-Danlos Syndrome Awareness in the Month of May

Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.

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About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

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Freshly updated Selected Newsletters from News Medical

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Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.

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Articles Blogs / Bloggers celiac chronic illness Educational events Food, drink and recipes Gastro / Gut / Bowel Healthcare Info site invisible illness Medical Conditions / Disorders Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Podcast Professionals The hints and tips station Therapies and Treatments Twitter Twitter Feed

Ellen Bayens | The Celiac Scene e-News – February Edition!

Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!

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Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

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National Psoriasis Foundation: Psoriatic Arthritis Screening

Do you have Psoriasis? and live in the US?? This post gives patients the chance to take a short quiz to find out if they are at risk of developing Psoriatic Arthritis. It is believed that approximately 1/3 of people with Psoriasis will develop it. It also provides healthcare professionals the Psoriatic Arthritis screening toolkit. […]

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Ellen Bayens | The Celiac Scene News | Issue: September 2019

Research Study Seeks Celiacs Between 12 – 25 Years Old

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Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.

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Awareness campaigns chronic illness Chronic SoMe platforms clinical trials Disability Educational EVENTS genetics invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research pharma Pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Video

How Clinical Trials Are Evolving | CheckRare.com

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In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”

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Articles Blogs / Bloggers celiac Charities chronic illness Educational EVENTS events Food, drink and recipes Gastro / Gut / Bowel Healthcare Info site invisible illness Medical Conditions / Disorders Newsletters/Papers/Magazines/Blogs Patient Advocacy Podcast Professionals The hints and tips station Therapies and Treatments Twitter Feed

Ellen Bayens | The Celiac Scene News | Issue: August 2019

Research Study Seeks Celiacs Between 12 – 25 Years Old