A selection of online health related newspapers/magazines/newsletters/blogs/events
Hope you like our newletter’s new title & mini-revamp
Daily! Above The Fold in Healthcare is out!
By C. Michael Gibson MD Have a news tip?
Paper.li > Above the Fold in Healthcare
Twice daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Twice daily! Fibromyalgia
ME Chronic Pain
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
- Paper.li > Fibromyalgia & ME news
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Twice daily! Focus on Disability Newsletter
For disabled people, the elderly and their carers in the UK
- Focus on disability > news for carers, patients, family, friends and health professionals
- Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
- Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Daily! Brainless Blogger News
Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/ blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.
- Paper.li > Brainless Blogger News
Daily! UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
- Website: UK Care guide
Ronny Allan’s Latest Daily Newsletter via Nuzzel
Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.
Plus a few extras: Not in chronological order!
432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/
Keep a check on how things are going by visiting the website
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda for pharma execs.
THANKYOU IN ADVANCE FOR READING AND PARTICIPATING
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
PLEASE CAN YOU PARTICIPATE & SHARE, THANK YOU 🙂
#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia
Shared via Simon Stones | Twitter | 28 May 2018
Do you have a rheumatic and musculoskeletal disease (
#RMD)? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using #socialmedia for health-related purposes.
To take part follow this link to the study >>>
About Simon >>>
Latest! #alzheimers #dementia #care
Alzheimer’s Reading Room Newsletter | Bob De Marco| Headliner: The Alzheimer’s Yakker | 4 June 2018
- 10 Tips for Communicating with an Alzheimer’s and Dementia Patients
- 3 Ways to End the Dementia Care Blame Game
- Alzheimer’s Patients are Capable of More Than We Can Imagine
and much more…
Visit their Home Page to see what else you can read and also sign-up for their newsletters > >>
Daily MHAM Headlines for June 5th
June 5th Recognition Day: INvisible Project & Sharing Other’s Stories
Featured Content: INvisible Project Story
©2018 Coalition For Headache And Migraine Patients. All Rights Reserved
#chronicpain #chronicillness #patientvoice #health #Spoonie
Asking for help when you are in pain… | BARMAC5 | BACK PAIN BLOG UK… | 15 June 2018
About ‘BackPainBlog’, Quoted from the site:
‘A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.’
‘Asking for help when you are in pain can be difficult for some people especially the older generation. Here is a list of some of the barriers to asking for help and the benefits of asking for help.’
Follow the link below to read more >>>
Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts >>>
#dementia #dementiacare #ageuk #health #healthandwellbeing
#CareQualityCommission #CQC #carers #hospitalcaredementia #hospitalcarealzheimers #NationalAuditofDementia #olderpeople #dementiasurvey #hospitalinspection
Getting it right for people with dementia in hospital | Age UK | Age UK Blog | 4 June 2018
‘The care of older people with dementia is a critical issue for hospitals. An estimated 850,000 people in the UK live with dementia and it is thought that around a quarter of all people in hospital have dementia.’
For more stories and posts visit the ‘Age UK’ blogsite on WordPress where you can also opt-in for their newsletters >>>
A blog for everyone interested in later life and our ageing society
Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.
Everyone can be a part of the #WEGOHealthAwards!
Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including #chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement
#patientadvocacy #healthadvocacy #researchadvocacy
#MEAction | You’ve Helped Us Expand Our Team! | 1 June 2018
Jen, Laurie, Jaime, Ben, Adriane, and Kim
#Fibromyalgia #Research #FibroResearch
Fibromyalgia Research Newsletter | UK Fibromyalgia | June 2018
The home of the Fibromyalgia Magazine- The independent voice of UK Fibromyalgia.
This newsletter is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.
The advertising of a product, therapy or clinic in this email does not imply that it has been tested or its use endorsed by UK Fibromyalgia.
MSWorld, News, Events & More! | 28 May 2018
Keeping you up-to-date on all things MS & MSWorld
MSWORLD EXPRESS NEWS
The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!
#healthcarenews #patientengagement #healthcare #patients
MedCity News | Making healthcare less like the cable company | 1 June 2018
Second paragraph of About Us page of the MedCity News website:
‘Healthcare leaders must stay on top of new technologies, new companies, future trends and the latest policies, with a perspective that includes the entire healthcare ecosystem: health IT, medical devices, health systems, venture investing, mobile apps, biotech and pharma. In this interconnected market, there is no “Silicon Valley” for healthcare but nearly a dozen hubs of healthcare and life science innovation, including Philadelphia, Cleveland, Research Triangle Park, and Minnesota’s Twin Cities, Seattle and San Diego’
Follow this link to MedCity News About Us page >>>
Read the MedCity News ~ TOP STORIES newsletter via the following link >>>
Follow this link to MedCity News ~ patient engagement section >>>
Follow this link to MedCity News Home Page where you can opt-in for their newsletters>>>
#AI #UCLhospital #digitalhealth
University College London Hospital explores AI possibilities | Hannah Crouch | Digital Health | 29 May 2018
Link to the newsletter with many more stories / posts and news to read >>>
Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters >>>
Registered No. 9257440 | Vat No. 198 3531 71
#DigitalHealthSummerSchools #DigitalHealth #BirminghamUK
Digital Health Summer Schools | digitalhealth.net/
The #bestpractice and #networking event for #NHS #digitalleaders
Four Summer Schools: CCIO, CIO, CNIO and Future Digital Leaders (new), with dedicated tracks and shared plenary sessions
Three best practice site visits: Birmingham University Hospital, Birmingham and Solihull Mental Health and Birmingham CCG
Join your peers from across the UK and Ireland for two days of best practice exchange, networking and education sessions
19 – 20 July
University of Birmingham
Taken from the webpage
Book your places via the link below >>>
Visit the digitalhealth.net website to opt-in for e-newsletters >>>
#OMF #DrRonDavis #LindaTannenbaum #IIMEC13 #BRMEC8 #London
A message from Linda Tannenbaum | Greetings from London | (OMF) Open Medicine Foundation |
Greetings from London
On June 1, Linda says:“we will also participate at the Invest in ME International ME Conference. Dr. Davis will present, “Revolutionizing biomedical research through technology development” and Dr. Hanson will present, “Research at the Cornell Center for enervating neuroimmune disease.” If you are already registered to attend the conference, be certain to stop by our table.”
Open Medicine Foundation®
Fast-tracking revolutionary research for ME/CFS
and related chronic complex diseases
OMF is a non-profit 501(c)(3) organization
(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.
Visit the OMF website for news and other interesting readables, you can also opt-in for newsletter updates >>>
#stemcells #Lyme #LymeDisease ##healing #healthjourney
Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey | Terry Mayfield, The Blathering Lymie | Color Me Lyme | 31 May 2018
‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’
Read more via this link >>>
About the Author >>>
For more blog posts and newsletter opt-in visit the site >>>
#EMR #HIPAA #Healthcare #Technologies
Bringing Their Valuable Experience to Healthcare Wasn’t Black & White for Zebra Technologies | Colin Hung | EMR and HIPAA | 30 May 2018
‘Our CEO and other senior leaders set the example. They recognized the gap and invested in bringing healthcare “insiders” onto the team. That’s why I’m here. They also invested in bringing the voice of healthcare customers into Zebra’s operations and processes. We now have a Customer Advisory Board where we vet product ideas and adjust based on their valuable feedback.’
Read more via the following link >>>
About the Author >>>
For more articles / posts visit the website where you can also opt-in for newsletters >>>
#ThePsychologist #Research #magazine #BPSResearchDigest
BPS Research Digest | 31 May 2018
‘Every week we bring you engaging reports on the latest psychology research. Anyone can subscribe free. We also provide daily updates on the latest psychology research via our app and on varying social media channels.’
The Psychologist is the monthly magazine of the British Psychological Society that you can find via this link >>>
Visit The BPS website and opt-in for news updates and newsletters >>>
Find BPS Research Digest >>>
The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society, All rights reserved.
#NHS70 #NIHR #IAmResearch
Please sign and support new research
Thunderclap ~ NIHR I Am Research & NHS70 | by The National Institute for Health Research (NIHR) |
I share this campaign as a Patient Research Ambassador for NIHR #PRAI
Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert
#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy
SIP Newsletter May 2018
Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed >>>
#Professionals #Rheumatology #Rheumatoidarthritis
Welcome to the daily update e-newsletter from RheumatologyAdvisor |
Why not visit their website and Opt-in for e-mails to keep informed.
Headliner: New Method Developed to Examine Joints in Rheumatoid Arthritis | Virginia Schad, PharmD | May 16, 2018
‘To validate this novel clinical examination technique, 4 rheumatologists evaluated 180 MCP joints in 18 patients with RA, using either the TFT or the DFFT, and all patients underwent US examination for greyscale (GSUS) and power Doppler (PDUS) by a certified musculoskeletal radiologist.’
Read more via the following link >>>
About the Author >>>
#Research #Datacentre #ME #CFS #collaborative #OMFScienceWednesday
OMF funds Harvard Collaborative Center and expands Data Center | Open Medicine Foundation | 23 May 2018
From the introduction:
‘ME/CFS Collaborative Research Center at the Harvard:
We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’
Read more via this link >>>
Visit the Open Medicine Foundation website for more readables and useful information including research news >>>
Seventy-first World Health Assembly
#WHO #WorldHealth #PublicHealth #publichealth
World Health Organization newsletter| The future in public health | 23 May 2018
Health Ministers and representatives from many organizations working to improve health are gathered in Geneva this week for the World Health Assembly.
Today, delegates agreed on WHO’s new strategic plan of work for the next five years. Other issues for discussion include influenza, cholera, tuberculosis, snakebite, physical activity, polio and access to essential medicines.
WHO website >>> www.who.int/
#diagnostictests #treatmentoutcomes #chronicillness #invisibleillness
PRESS RELEASE ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes | News Release Geneva | 15 May 2018
Quote ~ Dr Tedros Adhanom Ghebreyesus, WHO Director-General:
“An accurate diagnosis is the first step to getting effective treatment,” says Dr Tedros Adhanom Ghebreyesus, WHO Director-General. “No one should suffer or die because of a lack of diagnostic services, or because the right tests were not available.” Taken from the article
Read more via this link >>>
- First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes
- Shared via: World Health Organisation 18 May 2018
The Essential Diagnostics List
Excerpt from ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes:
‘The Essential Diagnostics List was developed following an extensive consultation within WHO and externally. The draft list was then considered for review by WHO’s Strategic Advisory Group of Experts on In-Vitro Diagnostics – a group of 19 experts with global representation.’
Medical devices | Selection, access and use of in vitro diagnostics >>>
Register with WHO via their website and recieve their newsletters >>>
#ArthritisAwarenessMonth #May2018Arthritis #arthritis
Arthritis Action eNews | May 2018
- Stress: are we coping?
- Mental Health Awareness Week
- New ventures: Blackpool
- Expanding our network
- Fundraising made easy
- Amazon Smile
Visit the Arthritis Action website for more information, advice and sign-up for their newsletter >>>
NHS England online GP appointments survey | A Prescription for M.E.
| EMILY BEARDALL | 16 May 2018
INSIGHTS FROM THE INTERSECTION OF PATIENT & PHARMACIST
About A Prescription for M.E. >>>
#endometriosis explained for #men #husbands
Straight, No Chaser: Endometriosis | JeffreySterling MD | 18 May 2018
‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’
Read more via this link >>>
Girls With Guts (GWG)| May 2018 Newsletter | Get in the spirit! | 2 May 2018
Visit the site to find out more about GWG and the work they do >>>
#backpain #chronicpain #muscles #rhomboidmuscles
Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018
Home Page >>>
#RareRevolution #raredisease #rarebabies
Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018
Quoted from e-news mail:
‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’
- Rare Revolution Magazine ~ Spring has sprung and our RARE Babies issue is here!
- RARE Revolution Magazine
- Spring 2018 – Issue 007
Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>
#AI #socialresponsibility #robotics #bigdata #technologies #policymakers
Artificial intelligence needs to be socially responsible says new policy report | University of Manchester | 10 May 2018
Professor Anna Scaife, Co-Director of the University’s Policy @Manchester team, explains: “Although the challenges that companies and policymakers are facing with respect to AI and robotic systems are similar in many ways, these are two entirely separate technologies – something which is often misunderstood, not just by the general public, but policymakers and employers too. This is something that has to be addressed.”
Read more at >>>
- Artificial intelligence needs to be socially responsible says new policy report
- Sourced from Science X Newsletter for May 10, 2018
FLARE MAGAZINE #fibro #ME #CFS
Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue | May 2018
Read the magazine via this link >>>
Why not visit Flare magazine website and sign up for the magazine >>>
#MHAM #MigraineAwareness #HeadacheAwareness
June is National Migraine & Headache Awareness Month (MHAM)
2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History
Click this link to find out all about the campaign and how to get involved >>>
MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.
Need your help NOW for June 2018 launch
June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.
CHAMP Home page >>> headachemigraine.org/
Research & Clinical Trial matching
Headache and Migraine Clinical Trials | Research & Clinical Trials > Headache and Migraine Clinical Trials | National Headache Foundation
Match to clinical trials in 60 seconds
Know your options
Access the latest treatments
Receive world class care
Click the link below to check it out and subscribe to their newsletter >>>
‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation
About the National Headache Foundation >>>
Voices required! Nursing associate consultation | The Nursing and Midwifery Council | 9th April to 2 July
We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.
This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.
Visit the link below >>>
The Nursing and Midwifery Council >>>
“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”
Change-over! NEW PODCAST
Airing Pain 102: Chronic Pain and Resilience, and the “21 Days of Pain” | Pain Concern | 1 May 2018
What can be done for athletes at the highest level in the context of chronic pain, and how one man with a spinal injury found himself “in the zone” through cycling.
This edition is funded by a grant from the Stafford Trust.
Airing Pain channel on Audioboom >>>
Pain Concern website >>>
Newsletters from News-medical | Life Sciences >>>
News Medical | Arthritis Newsletter | 3 April 2018
News Medical |Allergies Newsletter | 17 April 2018
NEW! News Medical |Dermatology Newsletter | 31 May 2018
NEW! Newsletters from News Medical |Genetics | 30 May 2018
Headliner: PicoGreen Automated dsDNA Assay Kit
Double-stranded DNA (dsDNA) must be quantified and normalized before it can be used in very many applications in genomics. These include PCR and next-generation DNA sequencing.This article describes one way to automate this workflow.
Latest! News Medical |Neurology / Neuroscience Newsletter | 29 May 2018
Latest! |News Medical |Pharmacy / Pharmacology Newsletter | Headliner: People who use medical marijuana have higher rates of prescription drug use, study finds | 27 April 2018
News Medical |Psychiatry Newsletter | 12 April 2018
Latest! News Medical | Rare Diseases | 18 April 2018
Latest! | News Medical |Rheumatology Newsletter | Headliner: Environmental pollutants found to worsen rheumatoid arthritis | 27 April 2018
- News Medical Home Page > www.news-medical.net – Medical & Life Sciences
Meditation Change over! | 432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018
If you enjoy this then please visit >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Also like to share other posts by fellow bloggers and organisations too
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at email@example.com and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole firstname.lastname@example.org