A selection of online health related newspapers/magazines/newsletters/blogs/events
Hope you like our newletter’s new title & mini-revamp
Daily! Above The Fold in Healthcare is out!
By C. Michael Gibson MD Have a news tip?
Paper.li > Above the Fold in Healthcare
Twice daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Twice daily! Fibromyalgia
ME Chronic Pain
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
- Paper.li > Fibromyalgia & ME news
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Twice daily! Focus on Disability Newsletter
For disabled people, the elderly and their carers in the UK
- Focus on disability > news for carers, patients, family, friends and health professionals
- Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
- Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Daily! Brainless Blogger News
Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/ blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.
- Paper.li > Brainless Blogger News
Daily! UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
- Website: UK Care guide
Ronny Allan’s Latest Daily Newsletter via Nuzzel
Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.
- Ronny Allan’s Newsletter Archive 25 May 2018 Via Nuzzel Feed
Plus a few extras: Not in chronological order!
432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/
Keep a check on how things are going by visiting the website
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda for pharma execs.
THANKYOU IN ADVANCE FOR READING AND PARTICIPATING
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
#NHS70 #NIHR #IAmResearch
Please sign and support new research
Thunderclap ~ NIHR I Am Research & NHS70 | by The National Institute for Health Research (NIHR) |
Thunderclap ~ NIHR I Am Research & NHS70
I share this campaign as a Patient Research Ambassador for NIHR #PRAI
Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert
#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy
#bioscience #medicine #investment #researchers #clinicians #collaborators #patients #consumers #education #charities
Quadram Institute Bioscience newsletter | £40m investment in bioscience and medicine | 21 May 2018
‘Researchers and clinicians are being brought together in the Quadram Institute and will work closely with funding bodies and charities, collaborators and investors to ensure fundamental science benefits patients, consumers and wider society.’
Read more via this link >>>
About Quadram Institute Bioscience >>>
Quadram Institute Bioscience Home Page >>>
SIP Newsletter May 2018
Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed >>>
#Professionals #Rheumatology #Rheumatoidarthritis
Welcome to the daily update e-newsletter from RheumatologyAdvisor |
Why not visit their website and Opt-in for e-mails to keep informed.
Headliner: New Method Developed to Examine Joints in Rheumatoid Arthritis | Virginia Schad, PharmD | May 16, 2018
‘To validate this novel clinical examination technique, 4 rheumatologists evaluated 180 MCP joints in 18 patients with RA, using either the TFT or the DFFT, and all patients underwent US examination for greyscale (GSUS) and power Doppler (PDUS) by a certified musculoskeletal radiologist.’
Read more via the following link >>>
About the Author >>>
#Research #Datacentre #ME #CFS #collaborative #OMFScienceWednesday
OMF funds Harvard Collaborative Center and expands Data Center | Open Medicine Foundation | 23 May 2018
From the introduction:
‘ME/CFS Collaborative Research Center at the Harvard:
We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’
Read more via this link >>>
Visit the Open Medicine Foundation website for more readables and useful information including research news >>>
#Migraines #notetoself #patient
7 PIECES OF ADVICE I WOULD GIVE MY PAST SELF | KRYSTINA – Migraine Mantras | 16 May 2018
Quoted from text:
‘After spending many days at war with myself over how to combat my symptoms, I realized a lot of the reasons I was having such a tough time was that the very word, ‘combat’ loomed over me. I was trying to fight my circumstances rather than embrace a new way of living.’
About Krystina >>>
Latest! #alzheimers #dementia #care
Alzheimer’s Reading Room Newsletter | Bob De Marco| Headliner: 4 Ways to Deal with Anger and Confusion | 22 May 2018
- Dementia Care – The Cumulative Acts We Perform Each Day Make the Difference
- Should you correct someone living with dementia?
- 7 Ways to Cope with Dementia Patient Agitation, Aggression, and Meanness
and much more…
Visit their Home Page to see what else you can read and also sign-up for their newsletters > >>
Seventy-first World Health Assembly
#WHO #WorldHealth #PublicHealth #publichealth
World Health Organization newsletter| The future in public health | 23 May 2018
Health Ministers and representatives from many organizations working to improve health are gathered in Geneva this week for the World Health Assembly.
Today, delegates agreed on WHO’s new strategic plan of work for the next five years. Other issues for discussion include influenza, cholera, tuberculosis, snakebite, physical activity, polio and access to essential medicines.
World Health Organization | The future in public health
WHO website >>> www.who.int/
#EDSawareness #EDSMay2018 #Hypermobility #Dislocations #ChronicPain #ConnectiveTissueDisorder #MayoClinic #SoMeNetwork
Redefining My Life’s Purpose…in a Recliner – Experts by Experience |Mayo Clinic Social Media Network | Shani Weber | 18 May 2018
A NEW social media network for people with #chronicillnesses has been launched by Mayo Clinic. This is a link to one of the posts that you can read there.
‘Ever since I was a young girl I knew I wanted to be an Early Childhood Special Education teacher.’
Read more via the link below >>>
- Redefining My Life’s Purpose…in a Recliner – Experts by Experience
- Link was kindly shared by ‘John Novack’~ Director of Communications, Inspire
The Ehler’s Danlos Society on Twitter >>>
You can sign-up for the Mayo Clinic Social Media Network quite easily via their website >>>
#ACRcriteris #SLE #rheum #childhoodonset #systemiclupueerythematosis
ACR Provisional Criteria: Global Flares in Childhood-Onset SLE | posted by Sheila Jacobs | Rheumatology Advisor | 15 May 2018
- ACR Provisional Criteria: Global Flares in Childhood-Onset SLE
- Sourced from the daily update e-newsletter from RheumatologyAdvisor.com
Reference from the article >>>
Brunner HI, Holland M, Beresford MW, et al; Canadian early Arthritis Cohort Investigators.American College of Rheumatology provisional criteria for global flares in childhood-onset systemic lupus erythematosus [published online April 25, 2018]. Arthritis Care Res (Hoboken). doi:10.1002/acr.23557
A chance to share your #PatientVoice for #ME
What’s Up TV Wants Your Voice for ME | Let’s Do It for ME | ldifme | 18 May 2018
Message from Invest in ME Research
– the experience of anyone who lives with M.E.
– under 20 seconds
– they would need them by Tuesday 29th May
– email to Robyn@whatsuptv.co.uk
About Let’s Do It for ME >>>
Let’s Do it for #ME homepage >>>
#diagnostictests #treatmentoutcomes #chronicillness #invisibleillness
PRESS RELEASE ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes | News Release Geneva | 15 May 2018
Quote ~ Dr Tedros Adhanom Ghebreyesus, WHO Director-General:
“An accurate diagnosis is the first step to getting effective treatment,” says Dr Tedros Adhanom Ghebreyesus, WHO Director-General. “No one should suffer or die because of a lack of diagnostic services, or because the right tests were not available.” Taken from the article
Read more via this link >>>
- First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes
- Shared via: World Health Organisation 18 May 2018
The Essential Diagnostics List
Excerpt from ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes:
‘The Essential Diagnostics List was developed following an extensive consultation within WHO and externally. The draft list was then considered for review by WHO’s Strategic Advisory Group of Experts on In-Vitro Diagnostics – a group of 19 experts with global representation.’
Medical devices | Selection, access and use of in vitro diagnostics >>>
Register with WHO via their website and recieve their newsletters >>>
#MentalHealth #MentalHealthAwarenessWeek #motherhood #stress #self-stigma #stigma
Jess’s story: the stresses involved in being a young mum | Mental Health Foundation
‘Stigma is well-known as a significant stressor. Individuals facing stigma are more likely to be isolated and to lack social support. Plus, there’s the issue of ‘self-stigma’, in which individuals hold onto the same beliefs as the people stigmatising them – all of which raises stress levels.’
The Mental Health Foundation website is a great source of information with a selection of publications. You can read more stories and even sign-up to recieve their newsletter via this link >>>
#ArthritisAwarenessMonth #May2018Arthritis #arthritis
Arthritis Action eNews | May 2018
- Stress: are we coping?
- Mental Health Awareness Week
- New ventures: Blackpool
- Expanding our network
- Fundraising made easy
- Amazon Smile
Visit the Arthritis Action website for more information, advice and sign-up for their newsletter >>>
# PsA #ArthritisAwarenessMonth #May2018Arthritis #arthritis
Treating Your PsA: What’s Right for You? | The Arthritis Foundation | 25 May 2018
When It Comes to Medications, What’s Right for You?
Learn about different medications and therapies that may help you, including:
- Topical Treatments
- Light Therapy
- Biologics, and more!
Learn about your options. And put greater knowledge about PsA into your arsenal of weapons to fight this disease!
May Is Arthritis Awareness Month
Let’s Get a Grip on Arthritis
Visit The Arthritis Foundation website for more posts and newsletters >>>
NHS England online GP appointments survey | A Prescription for M.E.
| EMILY BEARDALL | 16 May 2018
INSIGHTS FROM THE INTERSECTION OF PATIENT & PHARMACIST
About A Prescription for M.E. >>>
#endometriosis explained for #men #husbands
Straight, No Chaser: Endometriosis | JeffreySterling MD | 18 May 2018
‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’
Read more via this link >>>
MSWorld, News, Events & More! | 14 May 2018
Keeping you up-to-date on all things MS & MSWorld
MSWORLD EXPRESS NEWS
The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!
Girls With Guts (GWG)| May 2018 Newsletter | Get in the spirit! | 2 May 2018
Visit the site to find out more about GWG and the work they do >>>
#backpain #chronicpain #muscles #rhomboidmuscles
Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018
Home Page >>>
#RareRevolution #raredisease #rarebabies
Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018
Quoted from e-news mail:
‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’
- Rare Revolution Magazine ~ Spring has sprung and our RARE Babies issue is here!
- RARE Revolution Magazine
- Spring 2018 – Issue 007
Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>
#chronicpain #chronicillness #alternativetherapy #complementary #CuppingTherapy #health #Spoonie
Cupping Therapy for Chronic Pain… | BARMAC5 | BACK PAIN BLOG UK… | 11 May 2018
About ‘BackPainBlog’, Quoted from the site:
‘A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.’
‘Cupping therapy is given by using glass cups to create localised partial vacuums. It’s an ancient Chinese therapy, found in records dating back 3500 years, and involves using heat inside glass or bamboo cups. This draws up the underlying tissues and causes the blood to form in the area and help the healing process there.’
Follow the link below to read more >>>
Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts >>>
#recipes #vegetablelasagne #dailynosh #eatingwell
Spring Vegetable Lasagna with Fresh Spinach Pasta | Today’s Nosh | EatingWell Daily Nosh | 11 May 2018
- Spring Vegetable Lasagna with Fresh Spinach Pasta
- From: EatingWell Magazine, May/June 2018
Visit the magazine site for more recipes and sign up their newsletters >>>
#AI #socialresponsibility #robotics #bigdata #technologies #policymakers
Artificial intelligence needs to be socially responsible says new policy report | University of Manchester | 10 May 2018
Professor Anna Scaife, Co-Director of the University’s Policy @Manchester team, explains: “Although the challenges that companies and policymakers are facing with respect to AI and robotic systems are similar in many ways, these are two entirely separate technologies – something which is often misunderstood, not just by the general public, but policymakers and employers too. This is something that has to be addressed.”
Read more at >>>
- Artificial intelligence needs to be socially responsible says new policy report
- Sourced from Science X Newsletter for May 10, 2018
FLARE MAGAZINE #fibro #ME #CFS
Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue | May 2018
Happy Birthday to Flare Magazine from all at FibroFlutters
Read the magazine via this link >>>
Why not visit Flare magazine website and sign up for the magazine >>>
Sign the Scottish Petition for ME – anyone can sign | #MEAction | 1 May 2018
Why we’re Targeting the NIH for #MillionsMissing | #MEAction | 30 April 2018
‘The disease affects a high proportion of Americans – estimates range from 1 to 2.5 million people; the disease is highly debilitating, leaving 75 percent unable to work and 25-29 percent housebound or bed-bound; and the disease takes an annual $17 to $24 billion toll on the economy.
Visit the website for more #MEAction news and sign up for newsletters >>>
#MHAM #MigraineAwareness #HeadacheAwareness
June is National Migraine & Headache Awareness Month (MHAM)
2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History
Click this link to find out all about the campaign and how to get involved >>>
MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.
Need your help NOW for June 2018 launch
June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.
CHAMP Home page >>> headachemigraine.org/
Research & Clinical Trial matching
Headache and Migraine Clinical Trials | Research & Clinical Trials > Headache and Migraine Clinical Trials | National Headache Foundation
Match to clinical trials in 60 seconds
Know your options
Access the latest treatments
Receive world class care
Click the link below to check it out and subscribe to their newsletter >>>
‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation
About the National Headache Foundation >>>
Heart Matters | British Heart Foundation newsletter | 22 April 2018
- How tiny tech could help treat heart failure
- Could just one drink a day increase your heart risk?
- 7 easy ways to add fibre to your diet
Link to newsletter >>>
Discover the BHF online community, find lot’s of healthy heart information and sign up for their Newsletters >>>
Voices required! Nursing associate consultation | The Nursing and Midwifery Council | 9th April to 2 July
We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.
This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.
Visit the link below >>>
The Nursing and Midwifery Council >>>
“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”
Download the FREE Gastroenterology Infographic: Medisafe Insights Pharma Should Know | Medisafe | via BioPharma Dive Marketing | 11 April 2018
‘In this infographic we answer:
• Why gastrointestinal patients say they miss doses
• How GI drug adherence rates vary by day and time
• What are the top GI companies by highest adherence
• Adherence rates by type of GI treatment
• And, what are the GI meds with the highest adherence rates’
Who are Medisafe? >>>
Visit Biopharma Dive and subscribe to their BioPharma Dive: Marketing newsletters >>>
Change-over! NEW PODCAST
Airing Pain 102: Chronic Pain and Resilience, and the “21 Days of Pain” | Pain Concern | 1 May 2018
What can be done for athletes at the highest level in the context of chronic pain, and how one man with a spinal injury found himself “in the zone” through cycling.
This edition is funded by a grant from the Stafford Trust.
Airing Pain channel on Audioboom >>>
Pain Concern website >>>
Newsletters from News-medical | Life Sciences >>>
News Medical | Arthritis Newsletter | 3 April 2018
News Medical |Allergies Newsletter | 17 April 2018
Latest! News Medical |Dermatology Newsletter | 3 May 2018
Latest! Newsletters from News Medical |Genetics | 17 May 2018
Headliner: Discovery of 100 new genes may aid research into pigmentation diseases
Latest! News Medical |Neurology / Neuroscience Newsletter | 24 April 2018
Latest! |News Medical |Pharmacy / Pharmacology Newsletter | Headliner: People who use medical marijuana have higher rates of prescription drug use, study finds | 27 April 2018
News Medical |Psychiatry Newsletter | 12 April 2018
Latest! News Medical | Rare Diseases | 18 April 2018
Latest! | News Medical |Rheumatology Newsletter | Headliner: Environmental pollutants found to worsen rheumatoid arthritis | 27 April 2018
- News Medical Home Page > www.news-medical.net – Medical & Life Sciences
Meditation Change over! | 432 Hz MIRACLE MUSIC | Raise Positive Energy | Deeply Relaxing & Healing Vibrations of 432Hz Music | 5 February 2018
If you enjoy this then please visit >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Also like to share other posts by fellow bloggers and organisations too
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at firstname.lastname@example.org and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole email@example.com
FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018