#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post: 

My favourite daily’s

  • Focus on Disability;
  • Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
  • UK Care Guide;
  • My Disability Matters News & Opinion Digest  
  • The brain and mental health voice;
  • Psych Central Daily Newsletter – New today from Psych Central
  • Disability News Service …

 


 


Twice Daily!  news from Focus on Disability 


#carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness


For disabled people, the elderly and their carers in the UK

Why not visit and sign up >

Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links! 

Don’t forget to check this evenings post for their next update!



Twice Daily!  Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 


#HealthNews #ChronicPain  #Autoimmune  #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy  #chronicillness  #invisibleillness

This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.  


Rhia SteeleAll aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.


The Latest Health News & Related Subjects from Rhia at your fingertips

Why not visit and sign up >

Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.

Don’t forget to check this evenings post for their next update!

 



Twice Daily!  news from UK Care Guide 

#carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.

Why not visit and sign up >

Don’t forget this evenings post for their next update!



 

Daily!  My Disability Matters News & Opinion Digest |  See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 21 March 2018

#disability #disabilitynews chronicillness

 

Headlines for today

  • Ministers publish bus wheelchair space report
  • Disabled people will continue to bear brunt of austerity

Further reading

  • Stephen Hawking: Scientist, role model and defender of rights
  • Melbourne – Disability services event of the year almost here!
  • Perth – Disability services event of the year almost here!
  • New campaign to fight barriers to elected office is tribute to Lorraine Gradwell
  • Coach company’s wheelchair policy puts drivers at risk of criminal record

Visit and sign up here for Worldwide Disability Matters DAILY News

 



Twice Daily!  Fibromyalgia ME Chronic Pain | 

#Fibro  #ME #CFS #ChronicPain #invisibleillness

Fibromyalgia ME Chronic Pain is out!  How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and sign up >

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher

Don’t forget to check this evenings post for their next update!

 



 

New!  The brain and mental health voice is out! | selection by Valeria Duflot | 


#brain #mentalhealth #chronicillness  #invisibleillness


Why not visit and sign up >

Valeria Duflot on Paper Li

  • #Socent
  • veneziaautentica.com cofounder
  • Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel

Updates every couple of days!

 



New today!  from Psych Central  |  Psych Central  Daily Newsletter  | 16 March 2018 


#mentalhealth #depression  #anxiety #stress #chronicillness  #invisibleillness


Headlines for today

  • 18 Reasons Why I Function Well With Severe Mental Illness
  • Playing the Victim: How the Victim Mentality is Hindering Your Sobriety
  • Family Behavioral Therapy for Obesity May Work Best for Impulsive Kids
  • Study: Suicide Risk for Youth Spikes in Months After Self-Harm

Sign up for newsletters > Home Page: psychcentral.com/

 



Disability News Service (DNS) 


#disability  #disabilitynews

A great site for health and disability news 


Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>

 



 lets-help-to-make-ourselves-visible-ffhq-motto

 



Other Newsletters / Magazines / Blogs of interest

including >

Something for the Chillout Lounge!  Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133  by ‘Soothing Relaxation’ on youtube.

* * *



New Patient platform!  Be a Supportive Voice for Future Patients  |  WEGO HEALTH  |  19 March 2018

Quote from Stage 5 Melanoma survivor  Dan Engel – Author at WEGO HEALTH

“I believe that there are thousands and thousands of survivors like myself who provide informal advocacy on an ad-hoc basis all the time, and would love to be part of a more organized effort to help fellow patients and their families,” Dan shares, “The only thing missing is the technology platform to aggregate those survivors. PatientTrueTalk.com fills that void.”

 


Exerpt from Introducing PatientTrueTalk.com – A New Way to Help the Newly Diagnosed
Dan Engel | March 19, 2018

Recently launched, PatientTrueTalk.com is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages directly to those who they believe represent the closest match. Once a connection is made, the two parties can speak off-line and hopefully form a friendship. My profile is the first “patient advocate” included on the site.

The link is included in the article by #WEGOHEALTH Be a Supportive Voice for Future Patients


 

Are you a Patient Leader?  Why not apply to the WegoHealth Patient Leaders Network and meet many other leaders like yourself, have access to opportunities and a chance to join a superb community of like-minded folks!  >>>

Home Page >>>

 



New Service!   #MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.

Do you have ME?  visit the MEACTION website for support and advice and the opportunity to join a community with people just like yourself  >>>



Do you have plantar heel pain?  Custom-made foot orthoses appear to be no better than over-the-counter insoles or other treatments  |  British Medical Journal | 19 March 2018

Opening Lines:

‘Foot orthoses specifically moulded to help people with plantar heel pain appear to be no more effective than cheaper over-the-counter insoles or other treatments, suggests a study published in the British Journal of Sports Medicine.’

Journal reference: British Journal of Sports Medicine 

 



New!  Nurse-supported post-stroke voiding program appears helpful  |   20 March 2018b  via medicalxpress.com 

Journal reference: Journal of Clinical Nursing

More information: Abstract
Full Text (subscription or payment may be required)



Vit D Myths!  Debunking common vitamin D myths  |  Yale University | medicalxpress.com 20 March 2018

 



New!  Study finds care inadequacies in disabled pregnancy, childbirth and early parenting  |  University of Liverpool  |  20 March 2018

Provided by: University of Liverpool

 



Useful ‘Toolkit’  Live Better with Rheumatoid Arthritis  |  Arthritis Foundation  |  19th March 2018

 

This powerful resource will help you better understand your disease and take a positive step toward living a life of Yes. Get information, tips and tools that will help you work with your doctor to develop the best treatment plan for your unique needs, so you can continue to enjoy the things that are most important to you.’  taken from the webpage

Why not visit the site for more useful information and sign up their newsletters / magazines >>> 

 



New!  Massage Therapy for Arthritis  |  The Pain Practitioner – March/April 2017 |  Published on Mar 15, 2017

Why not sign up / register with ‘issuu’ to be able to publish your own content or simply to gain free access to read the magazine  ‘The Pain Practioner’  and many other magazines too >>> 

Via:  issuu.com/explore

Who are the ”Academy of Integrative Pain Management’?

 



 

Please can you help Pain Concern to secure funding for future programmes and continue to support people affected by chronic pain by filling this short survey

 

Why not visit the website for more information and pain related things

 



Exciting new magazine for youths with #rareillness |   The RARE Revolution – Youth Takeover is here!!!! –  #RareYouthProject18 March 2018

‘This magazine has been created and brought to you by the #RareYouthProject. Following a year long programme of work experience and mentoring, our team made up of children and young people aged 8-23 have created the FIRST EVER dedicated, FREE publication for young people affected by rare disease and we hope you enjoy reading it as much as we have enjoyed creating it for you!’  

#RareYouthProject  RARE Revolution Magazine


 

‘You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. You can also download the full publication for viewing offline as a pdf. Our full magazine is available as an AUDIO Magazine via our website and by request as a CD.’

 

 



Latest!  Fibromyalgia Symptoms – Newsletter  |  Headliner:  Can Antidepressants Be Used for Fibromyalgia?  |  17 March 2018

Headlines:

  • Can Antidepressants Be Used for Fibromyalgia?
  • Should You Avoid Coffee with Fibromyalgia
  • Poly Fibromyalgia: What is this?
  • Neurological Disorders: Is Fibromyalgia Included in this Category?
  • Fibromyalgia and Vomiting: Is this Normal?
  • TMJ as a Symptom of Fibro
  • Marijuana For Fibromyalgia Pain
  • Fibromyalgia and its unusual symptoms
  • Effects of Hydrotherapy on Fibromyalgia
  • How Gabapentin and Fibromyalgia work together in your body

 



New!  Online depression intervention tool found effective in adolescent mothers  |  Medical News Observer  |  17 March 2018

Opening paragraph:

‘Researchers from the University of Louisville found that using an Internet-based depression intervention tool program found effective in improving treatment rates of adolescent depressed mothers. This study is published in journal Archives of Women’s Mental Health.’

 



Latest!  Patient Newsletter |  The truth about the fat in your diet  |  17 March 2018

Find out more about Patient, check your symptoms.  Sign in or sign up via the website >>>

Patient work in partnership with the NHS

 



Latest!  National Pain Report |  CRPS Course for Pediatricians Hoping To Promote Quicker Diagnosis and Treatment | By Ed Coghlan  |  17 March 2018


Excerpt  >>>

“The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA), with financial underwriting from Zoe’s Heroes, has developed the course, aimed at educating pediatricians and other caregivers.”

Home Page and the opportunity to sign up for their newsletter >>>

 



New!  Human ‘chimeric’ cells restore crucial protein in Duchenne muscular dystrophy  |   University of Illinois at Chicago |  16  March 2018

Why not read more interesting articles at >>>  https://medicalxpress.com

 



New!  Genetic variant discovery to help asthma sufferers  |  University of Liverpool  |  16 March 2018

Why not read more interesting articles at >>>  https://medicalxpress.com

 



Something a little different!  The Arts Health Early Career Research Network 

‘The Arts Health ECRN brings together early career researchers working on projects that lie at the intersection of the arts, humanities, health and medicine.’  

ECRN website  >>>

ECRN Podcasts  >>>

https://w.soundcloud.com/player/?url=https%3A//api.soundcloud.com/users/303575619&color=%23256a87&auto_play=true&hide_related=false&show_comments=true&show_user=true&show_reposts=false&show_teaser=true&visual=true“>

 

 



 

Useful information!  Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems  


For more information regarding mental health help, support and advice please follow the link below. 

If you require confidential support you can also find your local support centre via the site!  

 



New!  Namaste Irrfan Khan  |  RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET  |  16 March 2018

 



THANK YOU for Rare Disease Day’s success!   from Eurordis & Rare Disease Day |  9 March 2018

Excerpt:

‘Rare Disease Day has grown so much from the first edition, in 2008, your participation has made a difference to many rare disease patients and families across the world.’

Want to know more about Rare Disease Day please visit the site via this link  >>>

Want to know more about Eurordis visit the link below >>>



Survey Opportunity!  |  US participants Only |  WEGOHEALTH  |  

  1. Do you have a high insurance deductible?
  2. Have you ever skipped a doctors appointment because of the cost?
  3. Do you think the US healthcare system, as it is today, is sustainable?

Please can you help WEGO who are asking the real questions about the state of healthcare in the US and we NEED patients like you to tell them about your experiences?

Please take a moment to share this survey on your channels too, because with a topic like this, we need to hear from as many people as possible.

As a thanks for sharing your insights, they’ll enter you in a drawing to win 1 of 8 Amazon Echo Dots.


Thank you



Interesting read!  Uncovering the secrets of the human body’s perception of touch |  Provided by Keio University  |  phys.org news  |  8 March 2018

 

Find out about Keio University via this link

 



Campaign Post!  Arthritis Foundation  |  Be part of the largest arthritis gathering in the world  |  7 March 2018

Excerpt:

‘Join our movement where every ONE can make a difference. Our Walk to Cure Arthritis is the largest arthritis gathering in the world, celebrating our warriors, raising funds for research, resources and a cure. Much more than just a walk event, it’s something even bigger than arthritis itself. Join us!’

Just follow the Link below >>>

 



A LIFE LESS PHYSICAL | The best and worst sleeping positions for chronic pain  |  7 March 2018

A fabulous post by a fellow wordpresser with great infograms of sleeping positions.

Find out about the author Sarah and her blog via this link >>>

 



New!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | March 2018

Who are ARMA? – About ARMA

 



RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter February 2018 | 5 March 2018

“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”

Ronny’s latest post |  RonnyAllan.NET – Community Newsletter February 2018



Newsletters via News Medical


News Medical |Asthma Newsletter |  5 March 2018

 


New!  News Medical |Sleep Disorder Newsletter | 19 March 2018

 


Latest! News Medical | Pediatrics Newsletter |  15 March 2018

 


 



NICE Newsletter | 28  February 2018


National Institute for Health and Care Excellence – NICE –  provides national guidance and advice to improve health and social care.

‘Improving health and social care through evidence-based guidance’


Sign up for alerts and newsletters >>>

 



British Heart Foundation (BHF) | Sign up to read the latest Heart Matters Magazine FREE |  Feat. What’s so special about the Mediterranean diet? and charity news | 25 February 2018

Join Heart Matters magazine for free!

“Heart Matters is our award-winning free magazine for anyone with a heart or circulatory condition or at risk of heart disease.  Heart Matters magazine features: heart matters landing page image information on heart conditions and treatments the latest research stories of other people with heart disease heart-healthy recipes nutrition features and more information to keep your heart healthy.”  British Heart Foundation, from magazine sign up page.  

Home Page www.bhf.org.uk/



 

Citizen Scientist Bulletin #58 | February 2018

Visit the site >>>  www.citizenscientist.org.uk/

 



Patient Research Ambassadors Initiative Issue 2 | 5 February 2018

#whywedoresearch #ResearchAmbassador #PRAI  

Would you like to be a research ambassador? Visit here to check out the varying ways you can help.



Something for the Chillout Lounge!  Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133

Published on Jan 28, 2018



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC



Many thanks for reading and helping to share the news that other folks like you write, or, find.

😀


PLEASE NOTE:
  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
PLEASE:
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
  • Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
  • Always be aware of Internet security and note that we cannot be held responsible for external websites.
  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

 

 


Please sign up and keep up to date with FibroFlutters AND #Chronicillness POST

 

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