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Carly Tait On The Loss Of Her Motability Car

Absolutely disgraceful that this has happened

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April 6, 2016May 26, 2017 fibrofly73Awareness campaigns, chronic illness, chronic pain, Medical news stories, blogs and research, mental health, re-blogs, Spoonie Talkawareness, cerebal palsy, Chronic Fatigue, chronic illness, chronic pain, Crutches, DLA, DWP, GOV, hypersensitivities, Motability loss, PIP, Struggle, WHEELCHAIR

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About FibroFlutters
Patient Engagement Day with Prime Patient - Did you miss it?
My experience - First face-to-face event in 2 years!

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FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

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Oh TWIST Blog about EDS and HSD’s
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015

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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Fight or Flight?

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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We're now on day 7 of #Dazzle4Rare22 and all week we've been asking for name suggestions for our new mascot.

#Dazzle4Rare is a cross-community undiagnosed and rare disease awareness week. Unlike most awareness events, this week is meant to enable rare disease communities of all sizes share messages for one another, signal boosting the messages to reach a wider audience. The base concept is simple – when you share for another community, they are able to reach your audience who may benefit from hearing their message or learning more about that. In doing so, others will share YOUR message enabling you to reach an audience you would not normally.

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How Not to Kill Your Houseplant August 16, 2022
Sharing tips on how to not kill your houseplant and keep indoor plants alive and thriving! The Pilot says I used to have a gangrene thumb. I was the person who’d walk through the plant shop and plants would instantly recoil in fear that I would bring them hom..
The Fitnessista
Lower Back Pain during Pregnancy — Lower Back Pain August 16, 2022
Lower back pain during pregnancy is a common complaint among expectant mothers Lower Back Pain during Pregnancy — Lower Back Pain ..
Back Pain Blog UK
Easy Peasy Cobb Salad (Garden Salad) August 16, 2022
I think you could say salads are almost always delicious and pretty healthy. Not sure if both applies here as well. This Cobb Salad here is definitely super tasty – no doubt about that – but healthy? I assume the combination of all of the ingredients is neces..
Bake to the roots
Peanut Butter Pumpkin Bread with chocolate chips August 16, 2022
This Peanut Butter Pumpkin Bread is a new family favorite! An easy pumpkin bread recipe is filled with peanut butter – the combination is so good you can’t knock it until you try it. The chocolate takes it over the top! Pin it now to save for later Pin Recipe..
Crazy for Crust
RHR: Creating a Healthy and Happy Workplace, with Julia Stephanides August 16, 2022
Lawyer and workers’ rights advocate Julia Stephanides joins Chris Kresser in this episode of Revolution Health Radio to discuss health and the workplace. Julia talks about her background representing workers facing discrimination and harassment at work, how s..
Chris Kresser
Blueberry Yogurt Granola Bars. August 16, 2022
Blueberry Yogurt Granola Bars. Awesome blueberry flavor and a glaze with just the right amount of tangy sweetness. Pretty darn delicious! READ: Blueberry Yogurt Granola Bars. ..
Half Baked Harvest by Tieghan.
Super Chewy Chocolate Chip Cookies with the highest amount of chocolate added - HIGHLY RECOMMENDED!!! August 16, 2022
There was this relaxing Saturday that I have baked these Super Chewy Chocolate Chip Cookies for our afternoon tea… Enjoying these lovely Super Chewy Chocolate Chip Cookies… Yum! If you have been following my blog, you will know that I have baked numerous types..
Bake for Happy Kids
Take Your Power Back: 15 Things You Don’t Have to Do Anymore August 16, 2022
There’s little more frustrating than feeling stuck or trapped—like you have to accept things that aren’t good for you and can’t do the things you need to do to feel and be your best. I think we all feel this way at times, and sometimes we do have to accept th..
Tiny Buddha
20220815 Malted sandwich bread with CLAS August 16, 2022
20220815 Malted sandwich bread with CLAS Submitted by Yippee on August 15, 2022 - 8:13pm. Please see here and here to learn more about concentrated lactic acid sourdough (CLAS). This bread is very easy to make once you get all the ingredients. ..
The Fresh Loaf
July/August Notes August 16, 2022
July/August Notes Submitted by CrustyJohn on August 15, 2022 - 11:06am. I've been way behind about typing up notes on my past few loaves. A couple were nothing new and worth making notes on, but two are worth jotting down even if I've forgotten the details. ..
The Fresh Loaf

NIHR – Clinical research is everyone’s future

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We're now on day 7 of #Dazzle4Rare22 and all week we've been asking for name suggestions for our new mascot.

#Dazzle4Rare is a cross-community undiagnosed and rare disease awareness week. Unlike most awareness events, this week is meant to enable rare disease communities of all sizes share messages for one another, signal boosting the messages to reach a wider audience. The base concept is simple – when you share for another community, they are able to reach your audience who may benefit from hearing their message or learning more about that. In doing so, others will share YOUR message enabling you to reach an audience you would not normally.

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An eye into the unknown

Feel the stillness and breathe long and deep

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

What will you find if you wander through the gate

StillnessSpeaks.com

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

An image to guide your mind to anywhere whilst laying on the beach

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

A picture for using your imagination to take you on a peaceful journey

A place of serenity by the pool

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

… forget about the world and spend some time on yourself

Great place for sound imagery, hear the watery echoes

Who would you like to sit and chat with?

Fantasy land

Guide yourself down the path to the…?

A scented garden to take your mind on a soothing aromatic journey.

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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