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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

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Tag: Motability loss

Carly Tait On The Loss Of Her Motability Car

Absolutely disgraceful that this has happened

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April 6, 2016May 26, 2017 fibrofly73

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EDS, JHS, Hypermobility & HSD’s News and info

Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

Calendar of posts

June 2023
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Well, I am allegedly heading to London 🤣🤣🤣

Earlier in the year I made a decision to take some learning relating to mental health. An attempt at boosting my credibility regarding mental health running Flutters and Strutters mental health community.

It's always great to meet up with friends when I go to London.

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Homemade Strawberry Jam (with fresh or frozen berries) June 3, 2023
This fool proof, 4-ingredient Strawberry Jam comes out perfect every single time! Enjoy it any time of the year since you can use fresh or frozen berries! EASY HOMEMADE JAM FROM 4 INGREDIENTS Creating homemade Strawberry Jam can be incredibly simple and rewar..
The Country Cook
pH meter, a welcome reminder to calibrate June 3, 2023
pH meter, a welcome reminder to calibrate Submitted by mwilson on June 3, 2023 - 4:39am. Admittedly, I am aware and I have spoken emphatically about the importance of calibrating pH meters. My training in the wine lab has instilled the habit of calibration ea..
The Fresh Loaf
Bakers Percent Re-Imagined Part 5 June 3, 2023
Bakers Percent Re-Imagined Part 5 Submitted by Rafe on June 3, 2023 - 3:41am. A variable section for each recipe, nothing too intricate needed as mainly guidelines. Adding details, real times, rating, extra notes, methods, links, No real need for the full rec..
The Fresh Loaf
Bakers Percent Re-Imagined Part 4 June 3, 2023
Bakers Percent Re-Imagined Part 4 Submitted by Rafe on June 3, 2023 - 3:26am. Conversions to save searching for them each time, initially started off as a set of links. But rather than adding a link to elsewhere (although quite a few have been included) for s..
The Fresh Loaf
Peanut Butter Chocolate Dessert June 3, 2023
This no-bake Peanut Butter Chocolate Dessert recipe is stacked with gorgeous chocolate peanut butter creamy layers. It’s a no bake lasagna full of peanut butter cheesecake and chocolate pudding, all with an Oreo crust! Table of Contents Peanut Butter Chocolat..
Crazy for Crust
15+ Summer Dinner Ideas June 3, 2023
15+ Summer Dinner Ideas When summertime rolls around, fresh, easy, and flavorful dinner recipes are the name of the game. This list of 15+ Summer Dinner Ideas includes everything from colorful salads and hearty black bean burgers, to seafood favorites and veg..
Sallys Baking Addiction
The Week in Review: May 29-June 2 June 3, 2023
From substance use among adolescents and young adults to managing behavioral and psychological symptoms of dementia, here are highlights from the week in Psychiatric Times.
Psychiatric Times
Eggless Mango Custard Pudding … simple desserts to fall in love with June 3, 2023
Eggless Mango Custard Pudding ... just 4 ingredients, creamy, gently wobbly and so refreshing, here's another delightful eggless dessert perfect for summer when mangoes are aplenty! It also doubles up as a delicious breakfast too. The post Eggless Mango Custa..
Passionate About Baking by Deeba Rajpal
15 Mother’s Day Eggless Desserts As Sweet As Her June 3, 2023
Mother's Day Desserts! There's something for every Mum. Chocolate, coffee, a TON of fruits, AND a ton of flavours. Cheesecake, layered cakes, panna cotta, Tiramisu, tart cakes, dessert shots, tarts, cupcakes, pudding ... take your pick! From a quick 3 ingredi..
Passionate About Baking by Deeba Rajpal
Eggless Mango Saffron Pistachio Tart Cake … as delicious as it is pretty! June 3, 2023
Eggless Mango Saffron Pistachio Tart Cake... Mangoes, saffron and pistachios come together to create magic, a cake worth every crumb! Hello mango season, I think this is my favourite season just because we are blessed by the best mangoes there ever were! The ..
Passionate About Baking by Deeba Rajpal

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Well, I am allegedly heading to London 🤣🤣🤣

Earlier in the year I made a decision to take some learning relating to mental health. An attempt at boosting my credibility regarding mental health running Flutters and Strutters mental health community.

It's always great to meet up with friends when I go to London.

Picture Gallery

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

An eye into the unknown

… forget about the world and spend some time on yourself

Great place for sound imagery, hear the watery echoes

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Guide yourself down the path to the…?

StillnessSpeaks.com

What will you find if you wander through the gate

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Fantasy land

A picture for using your imagination to take you on a peaceful journey

An image to guide your mind to anywhere whilst laying on the beach

Who would you like to sit and chat with?

Feel the stillness and breathe long and deep

A place of serenity by the pool

A scented garden to take your mind on a soothing aromatic journey.

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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