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Tag: Patient Advocacy
Taryn is delivering the Ataxia UKs medical guidelines to her GP in Sunderland for the campaign. Educating doctors is important to help this rare condition, ataxia, get recognised. Knowing about the disease can help people with symptoms to get noticed sooner… and diagnosed quicker.
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#Innovation Awareness campaigns, events, blogs, petitions & posters Care givers Drug development EVENTS Health and medical Healthcare Industry & business matters Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Professionals Rare Rare Disease Advocacy rare genetic disorder Researchers Scientists Supporters / Ambassadors Twitter Feed
RARE Summit 21 – it’s more than an event – it’s where the magic happens!
RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.
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Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness Health and medical Healthcare Medical Conditions / Disorders Medical news stories, blogs and research Neurology Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Supporters / Ambassadors Twitter Feed
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’.
Our mission is to bring back some of the order to the lack of order
It is the term used for a group of neurodegenerative diseases that affect balance and coordination.
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Academics Ataxia Autoimmune cancer chronic illness chronic pain clinicians conference EDS EVENTS FibroFlutters Gastro / Gut / Bowel Geneticists Health and medical Healthcare invisible illness Media Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants Patient Advocacy Patient Engagement Patients Precision Medicine Professionals Rare rare genetic disorder Researchers Respiratory Rheumatology Sites to visit Supporters / Ambassadors Twitter
PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK
Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.
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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers Care givers chronic illness Deep learning Digital Health Disability Drug development EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters genetics Global resources Health and medical Healthcare Industry & business matters Info site Machine learning medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy rare genetic disorder Research Researchers Scientists Webinar
#chronicillnessVOICE April 20 health, medical, pharma and research news
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
It is a great pleasure to let you know that I’m going to be co-hosting a roundtable with Dr. Oleksandr Gorbenko at Reuters Events Clinical 2021, 7-9 April. We’re excited to be speaking on the implementation of patient engagement in post-pandemic early phase R&D at Clinical 2021. The premise for this roundtable has come from […]
The Coronavirus Pandemic has got us all considering how to navigate clinical trials and what are the best approaches for patient recruitment and retention. It is my belief that implementing patient engagement from the onset of the trial during trial design could be the beneficial answer.
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Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Drug development EDS FibroFlutters HOME Join the Community Medical Conditions / Disorders Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Support Group Youth matters
It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.
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Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH
Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards