Category: Patient Advocacy

Who deserves recognition? | Nominations are open for the Reuters Events: Pharma Awards Europe 2020 VIRTUAL! | Formally known as eyeforpharma

Who will you #nominate? or will you enter yourself?? The eyeforpharma EU Awards 2020 by eyeforpharma by Reuters Events provide highly visible, influential measurements – that bring prestige, recognition, even career growth and gear-change for you to become winners – and undoubtedly impact management decisions. Now known as Reuters Events: Pharma Awards Europe 2020 VIRTUAL… Read More Who deserves recognition? | Nominations are open for the Reuters Events: Pharma Awards Europe 2020 VIRTUAL! | Formally known as eyeforpharma

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My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes. … Read More My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

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Ehlers-Danlos Syndrome Awareness in the Month of May

Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.… Read More Ehlers-Danlos Syndrome Awareness in the Month of May

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May 12th International Fibromyalgia Awareness Day

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day

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#COVID_19 won’t stop the #collaborating or #crossnetworking – JOIN US for FREE as eyeforpharma Philadelphia goes #Virtual

During these extraordinary times, the most important thing Pharma can do is collaborate cross-functionally and cross-company.… Read More #COVID_19 won’t stop the #collaborating or #crossnetworking – JOIN US for FREE as eyeforpharma Philadelphia goes #Virtual

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About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

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‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019

This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.… Read More ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019

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A few articles you might have missed – eyeforpharma

A few articles you might have missed – eyeforpharma Featuring insights from Abbvie, Pfizer, Novo Nordisk and more. Pharma’s new ally: The caregiver Pharma has only just started thinking about how engaging with caregivers could unlock a range of valuable insights #caregiverengagement #notjustpatients 18th annual eyeforpharma Philadelphia Conference Apr 15, 2020 – Apr 16, 2020,… Read More A few articles you might have missed – eyeforpharma

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Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

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