#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge.  A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities.… Read More #RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

eyeforpharma’s Marketing and Customer Innovation Europe Summit, 15-16 October, London (sponsored)

rs’ are still high on the agenda along with building ‘customer partnerships’, using ‘education-led’ approaches, ‘digital’ initiatives and of course! ‘big data’.… Read More eyeforpharma’s Marketing and Customer Innovation Europe Summit, 15-16 October, London (sponsored)

How Clinical Trials Are Evolving | CheckRare.com

In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com

I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”… Read More I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

For a healthier heart read NHLBI Deliciously Healthy Eating Recipes

Do you wish to learn how to eat healthier for heart health? Have you been medically advised to watch your cholesterol intake, or maybe even your salt, or sugar, levels?? Maybe you have blood pressure issues? or simply just wish to live a healthier life. This website could be of help to you. Find out… Read More For a healthier heart read NHLBI Deliciously Healthy Eating Recipes

#chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Good morning from FibroFlutters here’s my selection for Jul 26 Newsletter featuring #chronicillnessVOICE health related newsletter for everyone #notjustpatients #pharma #research #health #caregivers… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Make It Public | Source: Health Research Authority Newsletter 18 July 2019

This survey gives you an opportunity to influence the Health Research Authority’s future strategy to improve public access to information about health and social research in the UK. … Read More Make It Public | Source: Health Research Authority Newsletter 18 July 2019

New edition of Airing Pain | Pain Concern | 2 July 2019

Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019

New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019

Caroline Dinenage, minister for care, said: “This innovative new digital service for reporting and learning from incidents will provide a more holistic way of collecting and analysing vital data to help improve care right across the NHS. … Read More New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019