Category: EDS

CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

September is Pain Awareness Month

90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY… Read More CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

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The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

Wear Jeans, Change Lives on September 21st 
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.… Read More The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

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The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

Featuring  >>>

Love Amazon? Sign up to Amazon Smile and support EDS UK!
Meet our new Medical Advisory Panel Members
Cheer on our Great North runners!
I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
Kirsty’s Big Fun Run challenge
Ezra the Zebra book coming soon!… Read More The Ehlers-Danlos Support UK  |  Your weekly update from EDS UK!  | 24 August 2018

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The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link.  You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.… Read More The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

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CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More!  | 8 July 2018

#myEDS stories
The Friend Who Keeps Me Going When My Body Won’t Go Anymore – Lisa T

The Only Body I Have  – Shannon B… Read More CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More!  | 8 July 2018

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ARMA has a new #knowledgehub

The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. … Read More ARMA has a new #knowledgehub

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ARMA Newletter | Arthritis & Musculoskeletal Alliance  | July 2018

Visit the ARMA MSK hub via this link  >>>

mskhub.org.uk/… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance  | July 2018

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My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73

NOW AVAILABLE:  EMJ 3.2  JUNE 2018 10th issue via this link  >>>

EMJ 3.2 Now Available!… Read More My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73

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How to Ease the Pain of Colonoscopy  |   Michael Greger M.D. FACLM  |  nutritionfacts.org  |  5 April 2018

‘Very good thought process producing a very good question because I use it anways for similar purposes.’ Carole… Read More How to Ease the Pain of Colonoscopy  |   Michael Greger M.D. FACLM  |  nutritionfacts.org  |  5 April 2018

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UPCOMING WEBINAR WITH EDS WELLNESS & Dr. Lawrence Afrin #MCAD #Hypermobility & #ChronicPain

UPCOMING WEBINAR WITH EDS WELLNESS: (MCAD) MAST CELL ACTIVATION DISEASE: CURRENT CONCEPTS WITH PARTICULAR NOTES ON HYPERMOBILITY AND CHRONIC PAIN’ Posted by:  Strength/Flexibility/Health/EDS  | K N Myles | Apr 3, 2018 | Opening paragraph: ‘EDS Wellness is thrilled to have Dr. Lawrence Afrin join the speaker line up for their 2018 Video Webinar Series &… Read More UPCOMING WEBINAR WITH EDS WELLNESS & Dr. Lawrence Afrin #MCAD #Hypermobility & #ChronicPain

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