Rare Disease stories via The Mighty

#Rare #RareDisease #chronicillness #invisibleillness

25 Secrets of People Who Can’t Work Because of Rare Disease

25 Secrets of People Who Can’t Work Because of Their Rare Disease — onThe Mighty

We Are the Sisterhood of Mothers With Medically Fragile Children — on The Mighty

What It’s Like to Be a ‘Medical Trailblazer’ — on The Mighty

Exciting Rare News:

First Patient Receives Gene Therapy for Rare Liver Disorder— on The Mighty

See the entire list of rare diseases covered on The Mighty here.

themighty.com/topic/rare-disease/

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Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!

You all need to pitch in!!

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe