Rare Disease stories via The Mighty

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25 Secrets of People Who Can’t Work Because of Rare Disease




Exciting Rare News:


 

See the entire list of rare diseases covered on The Mighty here.

themighty.com/topic/rare-disease/

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 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Please can you read our Disclaimer & Privacy notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com

 

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