A selection of online health related newspapers/magazines/newsletters/blogs/events
Hope you like our newletter’s new title & mini-revamp
Daily! Above The Fold in Healthcare is out!
By C. Michael Gibson MD Have a news tip?
Paper.li > Above the Fold in Healthcare
Twice daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Twice daily! Fibromyalgia
ME Chronic Pain
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
- Paper.li > Fibromyalgia & ME news
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Twice daily! Focus on Disability Newsletter
For disabled people, the elderly and their carers in the UK
- Focus on disability > news for carers, patients, family, friends and health professionals
- Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
- Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Daily! Brainless Blogger News
Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/ blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.
- Paper.li > Brainless Blogger News
Daily! UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
- Website: UK Care guide
Ronny Allan’s Latest Daily Newsletter via Nuzzel
Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.
Plus a few extras: Not in chronological order!
Meditation Change over!
KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 5 February 2018
Advocating for a Multi-Disciplinary / Patientcentric approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
PLEASE CAN YOU PARTICIPATE & SHARE, THANK YOU 🙂
#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia
Shared via Simon Stones | Twitter | 28 May 2018
Do you have a rheumatic and musculoskeletal disease (
#RMD)? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using #socialmedia for health-related purposes.
To take part follow this link to the study >>>
About Simon >>>
#alzheimers #dementia #care
Alzheimer’s Reading Room Newsletter | Bob De Marco| Headliner: Stress Intensifies Alzheimer’s Disease and Challenging Behavior in Dementia Patients | 9 June 2018
- Reassurance in Alzheimer’s Care (Podcast)
- 12 Ways to Control CareGiver Stress and Sadness
- When Dotty Went to Heaven She Had Learned Her Final Life Lesson
and much more…
Visit their Home Page to see what else you can read and also sign-up for their newsletters > >>
#independence #recovery #chronicpain #chronicilless
On the Loss of My Independence – And How I Found it Again | Liza Zoellick | National Pain Report | 11 June 2018
Quoted from the opening paragraph:
Driving has to be one of the pinnacles of independence. You suddenly have the freedom to go where you want and need to go. You can run to the store and go buy that shirt your mom didn’t want you to buy and, as an adult your car is still an extension of your independence. So, what happens when you can’t drive anymore? Where does the independence go to?
Read more stories, blog posts and more via their website >>>
#EMR #HIPAA #Healthcare #Technologies
HITExpo ThankTanks Spur Online Discussion on the Nature of EHRs, Innovation & Patient Experience | Colin Hung | EMR and HIPAA | 7 June 2018
‘Last week at the inaugural 2018 Health IT Expo (#HITExpo), we kicked things off with three ThinkTank sessions:
- Going Beyond EHRs – https://www.youtube.com/watch?v=ULVQA4xEIRU
- Practical Innovation – https://www.youtube.com/watch?v=1Uc9_BCKQ84
- Communication & Patient Engagement – https://www.youtube.com/watch?v=60MAP04MoOw
Read more via the following link >>>
About the Author >>>
For more articles / posts visit the website where you can also opt-in for newsletters >>>
Daily #MHAM Headlines
June 11th Recognition Day: Disability & Headache Diseases
- Featured Content from MigraineAgain
- 5 Secrets to Get Approved for Migraine Disability | by Angie Glaser | 17 Nov 2015
Healthy Women Special Content:
- Chronic Illness Took Me Out of the Workforce and I’m Fighting to Keep the Care | by Katie M. Golden | #KeepTheCare
& much more
©2018 Coalition For Headache And Migraine Patients. All Rights Reserved
US only ~ Please send in your voices
THE FEDERAL GOVERNMENT WANTS TO HEAR FROM PAIN PATIENTS
Opportunities for people with pain to have their voices heard by federal officials are rare. That’s why it’s so important for the public to take advantage of two major opportunities to comment on the state of pain care at the highest levels of the U.S. government: the Department of Health and Human Services (HHS) and the Food and Drug Administration (FDA).
Opportunity #1: HHS Interagency Pain Management Best Practices Task Force
Deadline: June 15
Youo can visit the US Pain Foundation via this link >>>
It’s that time of year to recognise your peers, your fellow advocates and patients leaders.
Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.
Everyone can be a part of the #WEGOHealthAwards!
Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including
#chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement
#patientadvocacy #healthadvocacy #researchadvocacy
#science #cancer #cancerresearch #immunotherapy
#lungcancer #vaping #breastcancer
News digest -scienceblog~Cancer Research UK | lung and breast cancer immunotherapy and vaping | Katie Roberts | 9 June 2018
Breast cancer immunotherapy first ~ opening lines
A woman’s advanced breast cancer has apparently been eradicated by an experimental therapy made from her own immune cells, reports the Mail Online. The woman remained cancer-free two years after the “highly personalised” therapy, after existing treatments had failed.
You can visit the scienceblog~Cancer Research UK via this link >>>
Change-over! NEW PODCAST
Airing Pain Programme 103: Pain and Relationships | Pain Concern | 6 June 2018
Airing Pain ~ Informing the pain community
Programme 103: Pain and Relationships
How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.
In this edition of Airing Pain, Paul Evans and eminent psychotherapist Dr Barry Mason speak about their personal experiences with fibromyalgia and ankylosing spondylitis.
How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.
This edition of Airing Pain is funded by the JTH Charitable Trust and the Persula Foundation.
Airing Pain channel on Audioboom >>>
Pain Concern website >>>
Copyright © 2017 Pain Concern, All rights reserved.
#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication
Can herbal remedies for pain work as well as traditional medication?… | BARMAC5 | BACK PAIN BLOG UK… | 11 June 2018
About ‘BackPainBlog’, Quoted from the site:
‘A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.’
‘Can herbal remedies for pain work as well as traditional medication? Every day you will read something online or in a paper or magazine about different side-effects, addictions and problems with certain medications but they all seem to be ones that people have to take long term.
Follow the link below to read more >>>
Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts >>>
# John’s Campaign #NHS
#dementia #dementiacare #ageuk #health #healthandwellbeing
#CareQualityCommission #CQC #carers #hospitalcaredementia #hospitalcarealzheimers #olderpeople #dementiasurvey #hospitalinspection
A new milestone for improving dementia care in hospitals | Age UK | Age UK Blog | 11 June 2018
‘Today, John’s Campaign is celebrating that all acute trusts in England have voluntarily signed up to the Campaign. In this blog, we celebrate what this means for people with dementia and their carers during a hospital stay.
For more stories and posts visit the ‘Age UK’ blogsite on WordPress where you can also opt-in for their newsletters >>>
A blog for everyone interested in later life and our ageing society
#MEAction NEWS including ~ Urge your MP to attend the 21st June debate! | 11 June 2018
#MEAction Urge your MP to attend the 21st June debate!
Westminster Hall debate set for 21st June
MPs across parties came together on Wednesday to argue the case for scheduling a debate about Myalgic Encephalomyelitis in the main chamber of the House of Commons. And it was a big success!
A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30pm.
#MEAction | You’ve Helped Us Expand Our Team! | 1 June 2018
Jen, Laurie, Jaime, Ben, Adriane, and Kim
Daily Digest: #MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video | By Adriane Tillman | 8 June 2018
- Daily Digest: #MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video
Read more stories and opt-in for their newsletters via the following link >>>
#Fibromyalgia #Research #FibroResearch
Fibromyalgia Research Newsletter | UK Fibromyalgia | June 2018
The home of the Fibromyalgia Magazine- The independent voice of UK Fibromyalgia.
This newsletter is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.
The advertising of a product, therapy or clinic in this email does not imply that it has been tested or its use endorsed by UK Fibromyalgia.
MSWorld, News, Events & More! | 11 June 2018
Keeping you up-to-date on all things MS & MSWorld
MSWORLD EXPRESS NEWS
The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!
#healthcarenews #patientengagement #healthcare #patients
Latest! MedCity News | Gottlieb highlights FDA’s right-to-try strategy | 8 June 2018
Second paragraph of About Us page of the MedCity News website:
‘Healthcare leaders must stay on top of new technologies, new companies, future trends and the latest policies, with a perspective that includes the entire healthcare ecosystem: health IT, medical devices, health systems, venture investing, mobile apps, biotech and pharma. In this interconnected market, there is no “Silicon Valley” for healthcare but nearly a dozen hubs of healthcare and life science innovation, including Philadelphia, Cleveland, Research Triangle Park, and Minnesota’s Twin Cities, Seattle and San Diego’
Follow this link to MedCity News About Us page >>>
Read the MedCity News ~ TOP STORIES newsletter via the following link >>>
Follow this link to MedCity News ~ patient engagement section >>>
Follow this link to MedCity News Home Page where you can opt-in for their newsletters>>>
#ME #MEresearch #research
Latest plain English M.E. research round-up| A Prescription for M.E.
| EMILY BEARDALL | 8 June 2018
INSIGHTS FROM THE INTERSECTION OF PATIENT & PHARMACIST
This M.E. research round-up covers studies published from 17 March 2018 to 16 May 2018: Standing unaided, Glucose and muscle cells, Unwanted effects of rituximab, Blood sample analysis. Read the research round-up
About A Prescription for M.E. >>>
#AI #UCLhospital #digitalhealth
University College London Hospital explores AI possibilities | Hannah Crouch | Digital Health | 29 May 2018
Link to the newsletter with many more stories / posts and news to read >>>
Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters >>>
Registered No. 9257440 | Vat No. 198 3531 71
LAST CHANCE EXTRA SPACES AVAILABLE
#DigitalHealthSummerSchools #DigitalHealth #BirminghamUK
Digital Health Summer Schools | digitalhealth.net/
The #bestpractice and #networking event for #NHS #digitalleaders
Four Summer Schools: CCIO, CIO, CNIO and Future Digital Leaders (new), with dedicated tracks and shared plenary sessions
Three best practice site visits: Birmingham University Hospital, Birmingham and Solihull Mental Health and Birmingham CCG
Join your peers from across the UK and Ireland for two days of best practice exchange, networking and education sessions
19 – 20 July
University of Birmingham
Taken from the webpage
Book your places via the link below >>>
Visit the digitalhealth.net website to opt-in for e-newsletters >>>
#OMF #DrRonDavis #LindaTannenbaum #IIMEC13 #BRMEC8 #Netherlands
A message from Linda Tannenbaum | Meeting New & Old Friends in the Netherlands | (OMF) Open Medicine Foundation |
Meeting New & Old Friends in the Netherlands
Opening lines:‘After London, Don and I traveled on June 2 to the Netherlands (Utrecht), our second stop on our OMF End ME/CFS Worldwide Tour 2018 and our first visit to this beautiful country with so many bikes everywhere! We couldn’t wait to finally meet with old and especially new Dutch friends, some of them members of our International Translations Team, who helped us this year with over 45 Dutch translations, including translating the resources for this event.’
Open Medicine Foundation®
Fast-tracking revolutionary research for ME/CFS
and related chronic complex diseases
OMF is a non-profit 501(c)(3) organization
(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.
Visit the OMF website for news and other interesting readables, you can also opt-in for newsletter updates >>>
#stemcells #Lyme #LymeDisease ##healing #healthjourney
Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey | Terry Mayfield, The Blathering Lymie | Color Me Lyme | 31 May 2018
‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’
Read more via this link >>>
About the Author >>>
For more blog posts and newsletter opt-in visit the site >>>
#ThePsychologist #Research #magazine #BPSResearchDigest
BPS Research Digest | 31 May 2018
‘Every week we bring you engaging reports on the latest psychology research. Anyone can subscribe free. We also provide daily updates on the latest psychology research via our app and on varying social media channels.’
The Psychologist is the monthly magazine of the British Psychological Society that you can find via this link >>>
Visit The BPS website and opt-in for news updates and newsletters >>>
Find BPS Research Digest >>>
The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society, All rights reserved.
#NHS70 #NIHR #IAmResearch
Please sign and support new research
Thunderclap ~ NIHR I Am Research & NHS70 | by The National Institute for Health Research (NIHR) |
I share this campaign as a Patient Research Ambassador for NIHR #PRAI
Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert
#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy
SIP Newsletter May 2018
Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed >>>
#Professionals #Rheumatology #Rheumatoidarthritis
Welcome to the daily update e-newsletter from RheumatologyAdvisor |
Why not visit their website and Opt-in for e-mails to keep informed.
Headliner: New Method Developed to Examine Joints in Rheumatoid Arthritis | Virginia Schad, PharmD | May 16, 2018
‘To validate this novel clinical examination technique, 4 rheumatologists evaluated 180 MCP joints in 18 patients with RA, using either the TFT or the DFFT, and all patients underwent US examination for greyscale (GSUS) and power Doppler (PDUS) by a certified musculoskeletal radiologist.’
Read more via the following link >>>
About the Author >>>
#Research #Datacentre #ME #CFS #collaborative #OMFScienceWednesday
OMF funds Harvard Collaborative Center and expands Data Center | Open Medicine Foundation | 23 May 2018
From the introduction:
‘ME/CFS Collaborative Research Center at the Harvard:
We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’
Read more via this link >>>
Visit the Open Medicine Foundation website for more readables and useful information including research news >>>
#ArthritisAwarenessMonth #May2018Arthritis #arthritis
Arthritis Action eNews | May 2018
- Stress: are we coping?
- Mental Health Awareness Week
- New ventures: Blackpool
- Expanding our network
- Fundraising made easy
- Amazon Smile
Visit the Arthritis Action website for more information, advice and sign-up for their newsletter >>>
#endometriosis explained for #men #husbands
Straight, No Chaser: Endometriosis | JeffreySterling MD | 18 May 2018
‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’
Read more via this link >>>
Girls With Guts (GWG)| May 2018 Newsletter | Get in the spirit! | 2 May 2018
Visit the site to find out more about GWG and the work they do >>>
#backpain #chronicpain #muscles #rhomboidmuscles
Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018
Home Page >>>
#RareRevolution #raredisease #rarebabies
Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018
Quoted from e-news mail:
‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’
- Rare Revolution Magazine ~ Spring has sprung and our RARE Babies issue is here!
- RARE Revolution Magazine
- Spring 2018 – Issue 007
Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>
FLARE MAGAZINE #fibro #ME #CFS
Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue | May 2018
Read the magazine via this link >>>
Why not visit Flare magazine website and sign up for the magazine >>>
#MHAM #MigraineAwareness #HeadacheAwareness
June is National Migraine & Headache Awareness Month (MHAM)
2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History
Click this link to find out all about the campaign and how to get involved >>>
MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.
Need your help NOW for June 2018 launch
June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.
CHAMP Home page >>> headachemigraine.org/
Research & Clinical Trial matching
Headache and Migraine Clinical Trials | Research & Clinical Trials > Headache and Migraine Clinical Trials | National Headache Foundation
Match to clinical trials in 60 seconds
Know your options
Access the latest treatments
Receive world class care
Click the link below to check it out and subscribe to their newsletter >>>
‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation
About the National Headache Foundation >>>
Voices required! Nursing associate consultation | The Nursing and Midwifery Council | 9th April to 2 July
We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.
This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.
Visit the link below >>>
The Nursing and Midwifery Council >>>
“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”
Newsletters from News-medical | Life Sciences >>>
News Medical | Arthritis Newsletter | 3 April 2018
NEW! News Medical |Allergies Newsletter | 15 May 2018
News Medical |Dermatology Newsletter | 31 May 2018
NEW! Newsletters from News Medical |Genetics | 6 June 2018
Headliner: Researchers call for new genetic tests for congenital diseases
Researchers have discovered that genetic mutations called epivariations are the cause of certain neurodevelopmental disorders and congenital diseases.
News Medical |Neurology / Neuroscience Newsletter | 29 May 2018
News Medical |Pharmacy / Pharmacology Newsletter | Headliner: People who use medical marijuana have higher rates of prescription drug use, study finds | 27 April 2018
New! News Medical |Psychiatry Newsletter | 7 June 2018
Latest! News Medical | Rare Diseases | 23 May 2018
Latest! | News Medical |Rheumatology Newsletter | Headliner: Simple changes to diet could help reduce osteoarthritis symptoms| 1 June 2018
- News Medical Home Page > www.news-medical.net – Medical & Life Sciences
Meditation Change over!
KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 7 June 2018
If you enjoy this then please visit >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Also like to share other posts by fellow bloggers and organisations too
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at firstname.lastname@example.org and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
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- The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
- Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews. It also does not mean that we are affiliated with anyone unless it is clearly stated.
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole email@example.com