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    • International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters
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    • My experience – First face-to-face event in 2 years!
    • Patient Engagement Day with Prime Patient – Did you miss it?
    • Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
    • International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
    • Clinician Series is back with a Fresh new format – AIMed
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    • Voice your opinions to improve medical products and services
    • Rare Disease Male Support Group – mental health community support.
    • Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
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    • Do you have constant pain? This article may interest you!
    • We’re off mobilising for charity – 1 month long Superhero Series challenge
    • ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
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    • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
    • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
    • Pharma and Health Hub – Reuters Events Pharma Formerly eyeforpharma
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  • Zebra Strutters – Rare Disease Advocacy
    • EDS, JHS, HMS & all things collagen / connective-tissue
      • Hypermobility disorders & EDS reclassification as of 15th March 2017
      • Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
      • Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
      • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
      • How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
      • Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
    • Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
    • International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
    • Rare Disease Male Support Group – mental health community support.
    • Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!
    • ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • Are you aware of this #Rare? Today is International Ataxia Awareness Day.
    • Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
    • Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
  • PHARMA / SCIENCE / TECH / DIGITAL / AI
    • Real World Evidence Live: Rare Diseases & Innovative Therapies
    • My experience – First face-to-face event in 2 years!
  • Medical Disorders
  • Mental Health
    • MedicineNet ~ Newsletter |  Stages of Alcohol Use Disorder  |  30 August 2018
    • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
    • NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
    • This Is Your Body On Anxiety
    • How does our brain process fear? Study investigates | Medical News Today
    • How does Chronic Illness / Pain affect your Sleeping Habits
  • Treatments and Therapies
    • Therapies and Treatments
      • How to Get Started with Essential Oils – Pink Fortitude, LLC
      • THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
      • Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
      • WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
      • Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
      • Hydrotherapy – Heaven or hell? Part Two – session one / week one
      • Product Review | Nrem Sleep System | Sponsored Post
  • The Chillout Lounge
    • The CHILLOUT LOUNGE
    • Alternative / Complementary Therapies & Treatments
      • TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
      • Cannacares CBD gel capsules Product Review – (sponsored)
      • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
      • Your Aromatherapy Guide  |  Jan Randall  |  14 April 2018
      • ‘OIL’ have you know!
        • Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
        • Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
        • INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
        • Are You in Chronic Stress Mode? Seastones natural therapies
        • Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
        • Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
        • Touch Heals
    • Relaxation Techniques
      • Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
      • Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
      • The Therapeutic Benefits of Gardening | By: Virgil Anderson
      • Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
      • Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
      • Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
      • Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
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    • Health, Medical, Research, Patient and Pharma related newsletters
    • Freshly updated Selected Newsletters from News Medical
  • Awareness campaigns
    • Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
    • International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
    • International Awareness Day May 12th
    • Ehlers-Danlos Syndrome Awareness in the Month of May
    • May 12th International Fibromyalgia Awareness Day
    • FMAUK | Fighting for the freedom from Fibromyalgia
  • Research related readables
    • ARMA has a new #knowledgehub
    • Accessing specialist doctors faster after a brain injury
    • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    • Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019
    • Somatic Symptom Disorder. Learn about this disorder. | Patient
    • Are you interested in #research? Would like to get more involved, or know what research is going on around you?
    • You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018
    • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Food, drink and recipes
    • Sweet potato and spinach chilli recipe | Patient
    • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
    • Simple and easy Cauliflower English Muffins.
    • Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
    • Ellen Bayens | The Celiac Scene News | Issue: August 2019
    • Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018
    • Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
    • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    • Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
  • The hints and tips station
    • How to sleep when pregnant: Best positions and sleep aids
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
    • Live Better with Rheumatoid Arthritis  |  Arthritis Foundation 
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
    • How to employ your own Personal Assistant (PA)
    • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
    • HOW TO KEEP A PAIN DIARY (free download)…
  • SoMe Patient Platforms
    • healtheo360 Join a ‘PATIENT’ community and share your story!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
    • Are you a ‘SAVVY’ patient? come and check it out!
    • Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
    • New Patient platform!  patient-patient registry
    • Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
  • Musculoskeletal
    • Fibromyalgia & Chronic Pain
      • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
      • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
      • Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
      • I love to nap. Do you? |You may enjoy reading ‘Napping: the expert’s guide’
      • Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
      • Fibro – What’s that? Find out here!
      • Central Sensitivity Syndromes – Difficult to Classify
      • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
      • Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
      • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
      • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
      • MSK services survey – Please let us know what is happening locally | ARMA
      • Fibromyalgia – What’s that? Find out where to find relevant information :-)
      • What are the Symptoms of Fibromyalgia? UPDATED POST
      • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
      • Fibromyalgia – Symptoms – NHS Choices
      • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
      • DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018
      • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
      • Central nervous system and Sympathetic Skin Response
      • How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
      • Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017
      • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
      • Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
      • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
      • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
      • Questions and Answers About Fibromyalgia – Information resource | NIAMS
      • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
      • Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
      • Skin Rashes and Fibromyalgia Syndrome
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  • PD-1 overexpression in Sézary syndrome is epigenetically regulated June 2, 2023
    Sézary syndrome (SS) is an aggressive leukemic form of cutaneous T-cell lymphoma (CTCL) that is clinically characterized by pruritic erythroderma, generalized lymphadenopathy, and the presence of neoplastic, clonally related, CD4+ T cells in the skin, lymph no..
    Journal of Investigative Dermatology
  • Delicious and Easy Shrimp Spring Rolls Recipe June 1, 2023
    Spring rolls are a popular dish in Asian cuisine, and they’re surprisingly easy to make at home!   In this recipe, we’ll be making shrimp spring rolls, which are filled with succulent shrimp and fresh vegetables. The rolls are then fried to perfection and serv..
    Better Baking Bible
  • Substance Use Among Adolescents and Young Adults June 1, 2023
    In this CME, check out best practices for screening and treating adolescents and young adults with substance use issues.
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  • Top 10 Human-Centered Change & Innovation Articles of May 2023 June 1, 2023
    Drum roll please… At the beginning of each month, we will profile the ten articles from the previous month that generated the most traffic to Human-Centered Change & Innovation. Did your favorite make the cut? But enough delay, here are May’s ten most popu..
    Innovation Excellence
  • My Third Recipe Book! June 1, 2023
    Introducing… MY THIRD BOOK! Here is my brand new book “Jane’s Patisserie Everyday” which is out August 3rd 2023, and available to pre-order NOW!!! This book features simple treats, fool-proof cakes and savoury bakes for your every day such as… cornflake brown..
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  • The 16 best recipes to bake in June: Strawberry Cheesecake Cupcakes, Grilled Calzones, Monster Cookies, and more. June 1, 2023
    It’s finally summer, which means it’s time to reacquaint yourself with the simple pleasures of warm-weather baking. This includes fresh, juicy fruits to play with, recipes that require firing up the grill, and some new picnic must-haves. So put on your apron,..
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    This Cafeteria Chili is guaranteed to take you back to your school days! It fills your belly and warms your soul. Made with affordable pantry staple ingredients, this dish is always a hit with young and old alike! A NOSTALGIC DISH FROM YOUR CHILDHOOD Look, I ..
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  • Blueberry Scones June 1, 2023
    These quick and easy blueberry scones are sure to be a repeat favorite for a morning treat, an afternoon snack, or just for a simple indulgence. Plenty of fresh blueberries provide these beauties with wonderful flavor! No-Fuss Blueberry Scones Scones are one ..
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  • 10 Effective Remedies for Chigger Bites (You Have at Home) June 1, 2023
    Chiggers, along with lice, are some of our least favorite creatures. Imagine there was a tiny monster in the same family as scorpions and spiders. It was so tiny, in fact, that you could barely see it without a microscope. Yet, this tiny creature was capable ..
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  • How I Stopped Worrying About What Others Think of Me June 1, 2023
    “Live your life for you not for anyone else. Don’t let the fear of being judged, rejected or disliked stop you from being yourself.” ~Sonya Parker On August 4, 2022, I buzzed off my long, thick, luscious hair. I marched up Sandy Boulevard in Portland, Oregon,..
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Well, I am allegedly heading to London 🤣🤣🤣
Earlier in the year I made a decision to take some learning relating to mental health. An attempt at boosting my credibility regarding mental health running Flutters and Strutters mental health community.
It's always great to meet up with friends when I go to London.

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An eye into the unknown
An eye into the unknown
StillnessSpeaks.com
StillnessSpeaks.com
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A place of serenity by the pool
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Great place for sound imagery, hear the watery echoes
... forget about the world and spend some time on yourself
… forget about the world and spend some time on yourself
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Who would you like to sit and chat with?
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
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Guide yourself down the path to the…?
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A scented garden to take your mind on a soothing aromatic journey.
What will you find if you wander through the gate
What will you find if you wander through the gate
aving a tough time, can't figure things out? Here's a pretty place for self reflection
aving a tough time, can’t figure things out? Here’s a pretty place for self reflection
Feel the stillness and breathe long and deep
Feel the stillness and breathe long and deep
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An image to guide your mind to anywhere whilst laying on the beach
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Fantasy land
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
A picture for using your imagination to take you on a peaceful journey
A picture for using your imagination to take you on a peaceful journey

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