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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

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Day: 24 July 2015

Fibromyalgia and Me

I think it’s great Karen so I’m re-blogging it 🙂

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July 24, 2015 fibrofly73

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RAREfest22 - At the forefront of this event are the patients themselves!
International Fibromyalgia Awareness Day - Happy 8th Birthday to FibroFlutters
Redevelopment and rebranding underway at Flutters and Strutters
Real World Evidence Live: Rare Diseases & Innovative Therapies
My experience - First face-to-face event in 2 years!
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EDS, JHS, Hypermobility & HSD’s News and info

Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.
FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
Home Page: Pain News Network non-profit online news service
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.

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Don’t be afraid to reach out!

Fight or Flight?

Calendar of posts

July 2015
M	T	W	T	F	S	S
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6	7	8	9	10	11	12
13	14	15	16	17	18	19
20	21	22	23	24	25	26
27	28	29	30	31

« Jun Aug »

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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So... I've woken up to find that the white stuff has been falling again!!

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Candy Cane Cookies December 7, 2023
Candy Cane Cookies Candy cane cookies put a holiday twist on the best sugar cookie dough! These classic red-and-white Christmas cookies are cute, festive, and flavored like peppermint. Check out my collection of more easy Christmas cookie recipes for more fes..
Beyond Frosting Blog
Christmas Reindeer Chow December 7, 2023
Christmas Reindeer Chow Reindeer chow is a must-make Christmas treat! Rice Chex, Cheerios, pretzels, peanuts, and M&Ms are coated in white chocolate; so delicious! READ: Christmas Reindeer Chow ..
Brown Eyed Baker by Michelle
Lupus and Nutrition - What foods make your body work the best? December 7, 2023
Nutrition. One of my favorite subjects when it comes to living well. Not because I discovered the perfect "lupus diet", unfortunately. If only there was one! And it's not because what I choose to eat syncs up perfectly with what my body needs. 90% of the tim..
Despite Lupus
Chocolate Chip Shortbread Cookies December 7, 2023
Classic all-butter shortbread filled with mini chocolate chips for plenty of chocolate in every bite! Made with just 7 ingredients, these simple and delicious chocolate chip shortbread cookies are tender and buttery. Baked in a cake pan for ease, there’s no c..
Tutti Dolci
Keto Sugar Cookies December 7, 2023
These soft and fluffy keto sugar cookies are the perfect holiday cookie recipe, with just one net carb each! The best keto sugar cookies Maybe you are on a keto diet or baking for a loved one who can’t have sugar. Or maybe you just want to be adventurous and ..
Chocolate Covered Katie
Colostrum: “Liquid Gold” for Gut and Immune Health December 7, 2023
The relationship between the gut and immune system is foundational to our health and well-being. The gut plays a central... The post Colostrum: “Liquid Gold” for Gut and Immune Health appeared first on Chris Kresser. ..
Chris Kresser
Copycat Crumbl Snickerdoodles December 7, 2023
These copycat Crumbl Snickerdoodles are so soft and tender and are like a giant sugar cookie covered in cinnamon sugar then baked! FRESHLY MADE IN YOUR OWN KITCHEN If you’re one of the lucky ones who have a Crumbl bakery near you, you may be familiar with the..
The Country Cook
Loneliness Beyond Friendship: What Brain and Biology Tell Us December 6, 2023
Loneliness isn't just about spending time alone. So do we need stronger friendships? Evolutionary biology and social neuroscience suggest we don't just need deep talks.
Psychology Today | Neuroscience
Exercise Boosts Brain Power—Neuroscientists Don't Know How December 6, 2023
A new study casts doubt on the widely-held belief that improving cognitive performance via exercise relies solely on increased prefrontal cortex oxygenation during cardio.
Psychology Today | Neuroscience
Understanding Timing and Chemistry in Team Sports December 6, 2023
Athletes need timing to have chemistry with their teammates for effective team performance. Time cells in the brain and neural groups called "memory units" make timing work.
Psychology Today | Neuroscience

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So... I've woken up to find that the white stuff has been falling again!!

Snow, ❄️🌨❄️

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A scented garden to take your mind on a soothing aromatic journey.

… forget about the world and spend some time on yourself

Feel the stillness and breathe long and deep

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

A place of serenity by the pool

Great place for sound imagery, hear the watery echoes

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Guide yourself down the path to the…?

Who would you like to sit and chat with?

An eye into the unknown

StillnessSpeaks.com

What will you find if you wander through the gate

Fantasy land

An image to guide your mind to anywhere whilst laying on the beach

A picture for using your imagination to take you on a peaceful journey

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

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