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Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer

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November 27, 2019November 24, 2019 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST
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The Mighty > Ehlers Danlos Syndrome ‘We face disability, disease and mental illness together.’ ~ The Mighty Motto – A plac where people read and write about their #chronicillnesses
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders

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raspberry cheesecake macarons April 13, 2021
Raspberry cheesecake macarons filled with raspberry cream cheese frosting and raspberry preserves are perfect for spring! Freeze dried… The post raspberry cheesecake macarons appeared first on Tutti Dolci. [Click on the title to continue reading at Tutti Dolci]
Tutti Dolci
Why Won't Your Anxious Kid Get Out of Bed and Go to School? April 13, 2021
When kids who are anxious about school convince their parents to let them start staying home, anxiety only gets worse. A model of the nervous system can help desperate parents.
Psychology Today | Neuroscience
Epidural Injections for Chronic Back Pain April 12, 2021
Epidural Injections for Chronic Back Pain Back in 2013 I moved wrong and it sent me into such pain that I couldn’t move to even pick up my phone. After five months of physical therapy, I was doing quite well again, but within just a couple of months of returning to “normal life” the pain […]
Counting My Spoons
10 Ways to Decrease Stress April 12, 2021
10 Ways to Decrease Stress Stress increases our pain. How many times have you heard that? How many times have I written that? I have no idea, but I do know that the words are true. Someone sent me a really unkind reply to a request I’d sent them on Facebook that ended with a […]
Counting My Spoons
Licoricidin Abrogates T Cell Activation by Modulating PTPN1 Activity and Attenuates Atopic Dermatitis In Vivo April 12, 2021
Licoricidin, the fifth-highest fraction among the isolated 48 molecules from Glycyrrhiza uralensis extracts, has been known as anti-inflammatory bioactive molecules, however, few studies have shown its inhibitory effect on T cell activation and atopic dermatitis. The present study examined the therapeutic potential of licoricidin in atopic dermatitis by modulating T cell activation with molecular mechanism. […]
Journal of Investigative Dermatology
Are Salt and Sodium Bad for You? April 12, 2021
Other than saturated fat, I can’t think of a nutrient that’s been so universally maligned and demonized as salt. All the experts hate it and recommend that we get as little of it as possible. They even all seem to have their own little anti-salt slogans. The American Diabetes Association recommends between 2300 and 1500 […]
Mark&#39;s Daily Apple
Essentials for Bakers: Adjustable Plunger-Style Measuring Cup April 12, 2021
It occurred to me after making the Easy Flourless Peanut Butter Cookies that we really need to talk about the wonder that is the plunger-style measuring cup. Yes, the name of this baking tool is in serious need of rebranding. "Plunger" conjures up images that shouldn't be associated with baking. That said, you NEED this […]
Bake at 350 by Bridget Edward
Gluten-Free Goddess Raspberry Jam Bars April 12, 2021
Sweet and simple raspberry jam bars. Let's be honest. I am here today to tempt you. To coax you. To seduce you with a gluten-free dessert worthy of every single luscious calorie. In full transparency, I am admitting up front these are not fat-free. Or sugar-free. These aren't diet food. They're not proper for breakfast […]
Gluten-Free Goddess Recipes
6 tangible ways to help someone with chronic pain April 12, 2021
I’ve written before about supporting someone with chronic illness by believing them and validating what they’re going through. Today though, we’re talking about tangible ways that can help someone with chronic pain and make a difference in someone’s day. My love language is food. I love to bake bread and share it with people, because… […]
Chronic Mom
Early cannabis use linked to heart disease April 12, 2021
Smoking cannabis when you're young may increase your risk of developing heart disease later, according to a recent study.
Chronic Illness News | ScienceDaily

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

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Great place for sound imagery, hear the watery echoes

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

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Guide yourself down the path to the…?

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A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Feel the stillness and breathe long and deep

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