Do you have Irritable Bowel Syndrome (IBS)? Irritable Bowel Syndrome can be quite debilitating and many members of FibroFlutters have been diagnosed with it. To help people understand the condition better, and raise awareness, I share this video and information leaflet. The intense pain leaves me pacing and then writhing, and pacing and writhing…. …… Read More Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
Acceptance is often viewed as a grieving process, which is a great way to look at it because we do mourn our old lives from when we were fit and agile.
It can be a very emotional and anxious time because our lives need to change in so many ways so that we can adapt them to what our illnesses will allow us do. We do mourn the losses of our independence, mobility, social contact and possibly even our jobs / livelihoods.… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
If you haven’t signed up as a member please do or I can’t let you into the meeting.
You can sign up for the free membership via this link >>>
Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up
Volunteer Opportunities (2018) Volunteer Job Opportunities Photography Videography and Video Editing Graphic Design Editing Campaigns Online Moderator Patient Advocate Grants/Trusts Events EDS Conference Volunteer Jobs Artistic Talents Writing If you think you can offer support as a volunteer please click the link for more information and if you decide it is something you would… Read More Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
Thanks to Afternoon Tea4Two | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.
The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me.
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018
For a number of years I have explained many times that I believe my Fibromyalgia is a result of my Joint Hypermobility and in this post I talk about it. My #chronicblog post will also take you to an article by Carol Eustace, an Arthritis and Joint Conditions Expert, who writes for verywell.com and she… Read More Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
Hypermobility disorders & EDS reclassification as of 15th March 2017 If you happen to be one of us that has one these types of disorders the following link will explain not only what the changes are, but also why the changes were required. 4 years ago when I was diagnosed they changed the classification… Read More Hypermobility disorders & EDS reclassification as of 15th March 2017
I’m sharing this link because I found this article regarding muscle cramps, and spasms, to be quite interesting. I have been experiencing muscle spasms for a long time now but I have never really read up about what causes them. I don’t really have a problem with muscle cramps to the same extent as the… Read More Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Hydrotherapy – heaven or hell? is a discussion that I have often read in other blogger’s pages, online support groups and also physically discussed with other people just like me who live life with chronic pain, hypermobility and chronic illness, within my own support group FibroFlutters. For me it is something that I am still… Read More Hydrotherapy – Heaven or hell? Part Two – session one / week one