Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Acceptance is often viewed as a grieving process, which is a great way to look at it because we do mourn our old lives from when we were fit and agile.
It can be a very emotional and anxious time because our lives need to change in so many ways so that we can adapt them to what our illnesses will allow us do. We do mourn the losses of our independence, mobility, social contact and possibly even our jobs / livelihoods.… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue? Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue. it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Thanks to Afternoon Tea4Two | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.
The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me.
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018
Hi everyone I hope you are all as well as you can be as we move into hibernation and the darker months of Autumn and Winter. Details for next meeting for FibroFlutters A chance to get together and share our worries, woes as well as all things positive. Last ‘scheduled’ meeting until February as… Read More Fibro Flutters October Meet up
Chronic Illness writer, and contributer to The Mighty, Lauren King writes a letter to her chronic illness, EDS expressing her gladness at finally being introduced…. Opening Lines ‘To my chronic illness, from the person who is glad to finally know your name. Dear Ehlers-Danlos Syndrome, Oh, hi there. I didn’t notice you for 25 plus years.… Read More SPOONIE TALK | A Letter to My Ehlers-Danlos Syndrome | The Mighty
There are going to be many campaigns during September and October for Pain and Chronic Illness Awareness from a whole variety of organisations, and charities, for many differing illness / diseases / disorders that cause chronic constant pain. In honour of International Fibromyalgia Awareness Week and Pain Awareness Month this post will focus on Fibromyalgia… Read More September is Pain Awareness Month
Useful link to a great Fibro website and the page this link takes you to discusses Diagnosing Fibromyalgia. It is quite short and concise & there is a link within the post which takes you a diagnostic survey specifically for diagnosing Fibromyalgia that you can print out to take to the consultation with you. There… Read More Article/Blog Post: Diagnosing Fibromyalgia by Fibro Files
The following link takes you to the National Institute of Neurological Disorders and Stroke (NINDS) and a medical research paper into pain and it goes into intricate detail about what pain is. … Read More Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)