It is time to pat yourselves on the back for being actively involved to help create change.… Read More Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.
Happy Thanksgiving Huge #gratitude to all of our #American #friends for your #support of our #healthcare #advocacy + for your #friendships. #strongertogether #chronicillness.Wishing you all wellness + a fabulous day from @FibroFlutters + me @Scrufton73 aka Carole
Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
#HeartHealth #Heartmatters #Heart #cardiology #cardiac #healthy #lifestyle Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018 Information, inspiration and support for a heart-healthy lifestyle Watch: What’s it like to live with dementia Wayne was just 59 when he was diagnosed with vascular dementia and Alzheimer’s. Watch him tell his story in our… Read More Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018
Do you have Psoriasis? and live in the US?? This post gives patients the chance to take a short quiz to find out if they are at risk of developing Psoriatic Arthritis. It is believed that approximately 1/3 of people with Psoriasis will develop it. It also provides healthcare professionals the Psoriatic Arthritis screening toolkit.… Read More National Psoriasis Foundation: Psoriatic Arthritis Screening
“The right scalp psoriasis treatment can help you live healthier – and look better. Get tips on how to care for yourself at home and at the salon.”… Read More How to treat and manage scalp psoriasis | National Psoriasis Foundation
Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge. A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities.… Read More #RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!
Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: August 2019
