Rare Disease stories via The Mighty

#Rare #RareDisease #chronicillness #invisibleillness 25 Secrets of People Who Can’t Work Because of Rare Disease 25 Secrets of People Who Can’t Work Because of Their Rare Disease — onThe Mighty We Are the Sisterhood of Mothers With Medically Fragile Children — on The Mighty What It’s Like to Be a ‘Medical Trailblazer’ — on The Mighty Exciting Rare News: First… Read More Rare Disease stories via The Mighty

Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.

Patients Like Me’s digital health learning system uses the most advanced technologies to help you better understand wellness, aging, and disease. As new understanding emerges, you will gain access to tools, information and connections to people like you to find a clearer path forward to your own future health.   “PatientsLikeMe is the world’s largest… Read More Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.

Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018

#pharmanews #eyeforpharma #pharma #tech Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018 Opening paragraph ‘Breaking news: Protestors from patient organizations gather en masse outside a pharmaceutical company’s headquarters wielding placards emblazoned with the words TRANSACTIONAL and TOKENISTIC.’ Excerpt ‘A patient expert’s contribution may not always be considered but letting… Read More Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018

STAT: Morning Rounds | SPONSOR CONTENT BY CHARLES RIVER |  24 August 2018

Headlining >>>

HPV vaccinations are up — as are HPV-related cancer cases

Senate joins push to require prices in drug ads

FDA expands incentives for developing tropical disease treatments

SPONSOR CONTENT BY CHARLES RIVER

2nd Annual World Congress: Lessons Learned from Rare Disease and Personalized Medicine Approaches

Inside STAT: Sacha Baron Cohen tried to prank Francis Collins. The NIH director kept his cool

Read More STAT: Morning Rounds | SPONSOR CONTENT BY CHARLES RIVER |  24 August 2018