#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 19 June 2018

A selection of online health related newspapers/magazines/newsletters/blogs/events

Hope you like our newletter’s new title & mini-revamp

Daily! Above The Fold in Healthcare is out!

By C. Michael Gibson MD  Have a news tip?

email charlesmichaelgibson@gmail.com 

Paper.li > Above the Fold in Healthcare


Twice daily!  Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.

The Latest Health News & Related Subjects from Rhia at your fingertips

Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.


Twice daily!  Fibromyalgia ME Chronic Pain

Fibromyalgia ME Chronic Pain is out!  How it’s Costing You in Happiness, Financially and in Your Relationships!

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher


Twice daily!  Focus on Disability Newsletter

For disabled people, the elderly and their carers in the UK

  • Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
  • Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links!


Daily!  Brainless Blogger News

Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/  blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.


Daily!  UK Care Guide

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.


Ronny Allan’s Latest Daily Newsletter via Nuzzel

Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.


Plus a few extras: Not in chronological order!


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 5 February 2018

Meditative Mind  Published on 7 Jun 2018
It’s at the end



FibroFlutters continuously

Advocating for a Multi-Disciplinary / Patientcentric approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!



#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •  &  Trustee • Patient Consultant/Leader




#MEAction NEWS including ~ Urge your MP to attend the 21st June debate! |  11 June 2018

#MEAction NEWS including ~ Urge your MP to attend the 21st June debate!

#MEAction Urge your MP to attend the 21st June debate!

Westminster Hall debate set for 21st June
MPs across parties came together on Wednesday to argue the case for scheduling a debate about Myalgic Encephalomyelitis in the main chamber of the House of Commons. And it was a big success!

A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30pm.




#alzheimers  #dementia  #care  

Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  Dementia Care Coaching: An Option for Caregivers| 14 June 2018

Also including:

  • 16 Things I Would Want, If I Get Dementia
  • How Do You Convince an Alzheimer’s Patient They Need Help?
  • Alzheimer’s Patients Can’t Make Decisions, So You Must Become Their Guide

and much more…

Why not subscribe to the AlzheimersReadingRoom.com. This is a free service. Join 40,000 active readers.

The Award Winning Alzheimer’s Reading Room Knowledge Base is considered to be the highest quality, deepest collection, of information on Alzheimer’s and dementia in the world.

#light #brightlight #nursinghome #assistedliving #adultdaycare #activitydirector #education #society #alzheimersreadingroom






MSWorld, News, Events & More!  |   18 June 2018

Keeping you up-to-date on all things MS & MSWorld


The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!


#men get migraine too #menshealth #migraine 

Living the Minority: Life as a Man with Migraine |  BY JASON (GUEST WRITER)  | The Migraine Mantras | 17 June 2018

Opening lines:

‘Males are the migraine minority. Women are 3x more likely to have migraines than men. Being a male with migraine, let me share a bit of my experience with migraines.’

Read more via this link  >>>

Visit ‘The Migraine Mantras’ website for more migraine related posts >>>

#healthcarenews  #patientengagement  #healthcare #patients 

Latest! MedCity News | Title: Why physicians can’t be Luddites | 18 June 2018

Second paragraph of About Us page of the MedCity News website:

‘Healthcare leaders must stay on top of new technologies, new companies, future trends and the latest policies, with a perspective that includes the entire healthcare ecosystem: health IT, medical devices, health systems, venture investing, mobile apps, biotech and pharma. In this interconnected market, there is no “Silicon Valley” for healthcare but nearly a dozen hubs of healthcare and life science innovation, including Philadelphia, Cleveland, Research Triangle Park, and Minnesota’s Twin Cities, Seattle and San Diego’

Follow this link to MedCity News About Us page  >>>

Read the MedCity News ~ TOP STORIES newsletter via the following link >>>

Follow this link to MedCity News ~ patient engagement section  >>>

Follow this link to MedCity News Home Page where you can opt-in for their newsletters  >>>



#mentalhealth #mentalhealthnews #bipolar #PostpartumDepression

MedCircle Digest  |  18 June 2018

Hey devoted reader!

MedCircle’s email digest now focuses exclusively on mental health, which affects 1 in 5 adults in the U.S. each year.

We will continue to deliver the best content from 100+ top sources, along with our new, original expert videos & interviews featuring passionate mental health professionals, filmed in full HD!

Here’s today’s selection >>>

Visit the MedCircle website for more articles related to mental health and you can also choose to opt-in for newsletters  >>>

MedCircle does not provide medical advice, diagnosis, or treatment of any kind. Learn more.

© 2018 MedCircle Inc. All Rights Reserved.



#MAMMOMAT #breast screening #breastbiopsy #breastcancer

History of breast biopsy  |   | Siemens Healthineers  |  8 June 2018  

History of breast biopsy

Please Note:

‘MAMMOMAT Revelation is not commercially available in all countries. Due to regulatory reasons its future availability cannot be guaranteed. Please contact your local Siemens Healthineers organization for further details.’

Visit this link to opt-in and register for newsletters  >>>


#EULAR2018 ~ Amsterdam 13th – 16th June

Annual European Congress of Rheumatology

How to keep up with the #EULAR2018 news if like me you were not lucky enough to be there in person.

EULAR websites

EULAR Congress website: www.congress.eular.org

EULAR Congress 2018 documents: www.congress.eular.org/download.cfm

EULAR website: www.eular.org

EMEUNET website: emeunet.eular.org

EULAR Young PARE website: www.youngpare.org

Welcome message from Johannes W. J. Bijlsma who is EULAR President  >>>

Welcome message from the EULAR President

Did you not get to Amsterdam?  Well don’t worry too much there are a few ways that you can keep up to date with what went on.


The (EMJ) European Medical Journal will have a full congress review of in their next edition of EMJ which is FREE to subscribe to via this link >>>

You can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there  >>>


Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.


#healthcareprofessionals #MedicineMatters

Medicine Matters | medwireNews@EULAR2018

Medicine Matters is developed for healthcare professionals as a premier resource for the latest clinical information in medicine.

FREE registration for Medicine Matters ~ Rheumatology, you can opt-in via this link >>>

Rheumatology Matters twitter feed >>> 



Improve NHS testing for Lyme Disease, fund research & revise current treatment protocols

Can you help to bring better awareness of #lymedisease to the UK & sign this #Petition to improve #NHStesting, #research & recieve better funding to help this cause.

NHS Choices say ‘Lyme disease is a bacterial infection that can be spread to humans by infected ticks. It’s usually easier to treat if it’s diagnosed early.’

Read more via the petition link below the butterflies

#LymeAction  #Lymetoo 
Many thanks for reading & helping to raise awareness


Improve NHS testing for Lyme Disease, fund research & revise current treatment protocols.

Petition Via >>>  www.change.org


#arthritis #rheumatologists #rheumatology #fellowships #ACR

Arthritis Foundation ~ Champion Connection |June 2018  Newsletter  | 15 June 2018

Opening paragraph:

‘The Arthritis Foundation is actively expanding the number of rheumatologists by naming five universities that will receive fellowship awards. The program is designed to address the growing shortage that the American College of Rheumatology cautions is expected to increase and will lead to worsened disease outcomes, lower quality of life and increased mortality rates.’

Read more via the following link  >>>

Plus many more articles / posts…

For more readables from The Arthritis Foundation follow this link  >>>

Living With Arthritis
Arthritis is painful. It prevents us from leading active, healthy lifestyles. It means we are more likely to develop other serious illnesses. It means we need to fight harder. The Arthritis Foundation is leading this fight by offering simple, yet effective ways to conquer the everyday battles and take control of your condition.

#biopharmanews #pharmanews #pharma

BioPharma Dive’s Top News | Daily edition  | 18 June 2018

Top headliners:

  • Roche buys out Foundation Med in $2.4B bet on targeted cancer treatment
  • How badly does Alexion want its Soliris follow-on? Enough to use a rare fast pass
  • Solid finds its footing as FDA lifts trial hold


Electronic platforms drive improvements in vaccine study efficiency and data quality

Electronic diary (eDiary) cards are helping sponsors overcome the unique data collection challenges associated with vaccine trials.

Read the above and much more via the following link  >>>



#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication

Esential Oils for Fibromyalgia… |  BARMAC5  |  BACK PAIN BLOG UK…  |  19 June 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Essential oils to help with the pain of fibromyalgia is beautifully illustrated in this graphic on Pinterest from Jess Wilmington Health & Beauty Blog. Her blog post goes into much more detail about the different types of essential oils and is a great read for any fibromyalgia sufferer.’

Follow the link below to read more  >>>

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 


#patientVOICE #chronicVOICE #chroniclife

MIA by Trish Dyne – AutoImmunity Girl |  17 June 2018

Opening paragraph:

‘I have noticed a growing number of chronically ill / Autoimmune sufferers and I share something in common as the years stretch on, and we have been battling for many years. The similarity is this … we slowly just stop going to doctors and specialists.’

Read more by following this link >>>

MIA by Trish Dyne – AutoImmunity Girl


#careactionplan #carersweek2018 #carers #policypaper

Policy paper | Carers action plan 2018 to 2020 |  Published 5 June 2018

The plan sets out how the government will improve support for carers in England over the next 2 years.


For all kinds of useful Gov type information and useful links visit their home page  >>>



#TMJ #chewing #lowerjaw #chronicpain  #jawdislocation,

Straight, No Chaser: TMJ (Temporomandibular Joint) Syndrome  |  JeffreySterlingMD.com  |  14 June 2018

Opening paragraph:

‘TMJ. Those of you who have TMJ syndrome are likely already shaking your head in understanding. Those of you who don’t, be thankful. Take the advice of those who do and read this post to appreciate steps you can take to avoid developing it.’

Straight, No Chaser: TMJ (Temporomandibular Joint) Syndrome

About the Author  >>>



#EMR  #HIPAA  #Healthcare #Technologies #digitaldevices #digitaltechnology

Creating Provider Loyalty – And Why Communication Matters |  John Lynn | EMR and HIPAA Newsletter | 15 June 2018

Featured Health IT Resource

FREE DOWNLOAD  Top 5 Medical Device Industry Trends in 2018

Digital device technology continues to move at a fast pace, which means device manufacturers should keep a close watch on emerging trends and be ready to adapt to new ideas and methodologies.

Read Creating Provider Loyalty – And Why Communication Matters via the following link  >>>

The following is a guest blog post by Chelsea Kimbrough from Stericycle Communication Solutions, as part of the Communication Solutions Series of blog posts. Follow and engage with them on Twitter: @StericycleComms

For more articles / posts visit the website where you can also opt-in for newsletters  >>>

HEADLINES: Your Daily Dose During National Migraine and Headache Awareness Month. 2018: You Are Not Alone! Partnering For Better Headache and Migraine Care. #MHAM #NotAlone

Daily #MHAM Headlines

Daily MHAM Headlines for June 19th 

Posted in 

©2018 Coalition For Headache And Migraine Patients. All Rights Reserved




It’s that time of year to recognise your peers, your fellow advocates and patients leaders.

WEGOHealth Awards

Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.

Everyone can be a part of the #WEGOHealthAwards!

Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including

#chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement

#patientadvocacy #healthadvocacy #researchadvocacy

#ChronicillnessVOICE  #NotJustPatients


#science #cancer #cancerresearch #immunotherapy

#lungcancer #vaping #breastcancer

News digest -scienceblog~Cancer Research UK  |  lung and breast cancer immunotherapy and vaping |  Katie Roberts  |  9 June 2018

Breast cancer immunotherapy first ~ opening lines

A woman’s advanced breast cancer has apparently been eradicated by an experimental therapy made from her own immune cells, reports the Mail Online. The woman remained cancer-free two years after the “highly personalised” therapy, after existing treatments had failed.

You can visit the scienceblog~Cancer Research UK via this link >>> 

Change-over NEW PODCAST

Airing Pain Programme 103: Pain and Relationships |  Pain Concern  | 6 June 2018

Airing Pain ~ Informing the pain community
Programme 103: Pain and Relationships
How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

In this edition of Airing Pain, Paul Evans and eminent psychotherapist Dr Barry Mason speak about their personal experiences with fibromyalgia and ankylosing spondylitis.


How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

This edition of Airing Pain is funded by the JTH Charitable Trust and the Persula Foundation.

Airing Pain channel on Audioboom >>>

Pain Concern website >>>

 Copyright © 2017 Pain Concern, All rights reserved.


#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication

Can herbal remedies for pain work as well as traditional medication?… |  BARMAC5  |  BACK PAIN BLOG UK…  |  11 June 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Can herbal remedies for pain work as well as traditional medication? Every day you will read something online or in a paper or magazine about different side-effects, addictions and problems with certain medications but they all seem to be ones that people have to take long term.

Follow the link below to read more  >>>

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 


John’s Campaign #NHS

#dementia #dementiacare #ageuk #health #healthandwellbeing
#CareQualityCommission #CQC #carers #hospitalcaredementia #hospitalcarealzheimers  #olderpeople #dementiasurvey #hospitalinspection

A new milestone for improving dementia care in hospitals | Age UK |  Age UK Blog  |  11 June 2018

Opening paragraph:

‘Today, John’s Campaign is celebrating that all acute trusts in England have voluntarily signed up to the Campaign. In this blog, we celebrate what this means for people with dementia and their carers during a hospital stay.

For more stories and posts visit the ‘Age UK’ blogsite on WordPress where you can also opt-in for their newsletters  >>>

A blog for everyone interested in later life and our ageing society


#MEAction  |  You’ve Helped Us Expand Our Team!  |  1 June 2018

You’ve Helped Us Expand Our Team!

Thank you,

Jen, Laurie, Jaime, Ben, Adriane, and Kim


Daily Digest: #MEAction Read the new parliamentary briefing | 15 June 2018

Read more stories and opt-in for their newsletters via the following link  >>>




#Fibromyalgia  #Research #FibroResearch

Fibromyalgia Research Newsletter  | UK Fibromyalgia |  June 2018

The home of the Fibromyalgia Magazine- The independent voice of UK Fibromyalgia.

This newsletter is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.
The advertising of a product, therapy or clinic in this email does not imply that it has been tested or its use endorsed by UK Fibromyalgia.


#ME #MEresearch #research 

Latest plain English M.E. research round-up|  A Prescription for M.E.
 | EMILY BEARDALL | 8 June 2018


This M.E. research round-up covers studies published from 17 March 2018 to 16 May 2018: Standing unaided, Glucose and muscle cells, Unwanted effects of rituximab, Blood sample analysis. Read the research round-up

About A Prescription for M.E. >>>


#AI #UCLhospital #digitalhealth

University College London Hospital explores AI possibilities  | Hannah Crouch | Digital Health | 29 May 2018

Link to the newsletter with many more stories / posts and news to read >>>

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440  |  Vat No. 198 3531 71


#DigitalHealthSummerSchools #DigitalHealth #BirminghamUK 

Digital Health Summer Schools  | digitalhealth.net/ 

The #bestpractice and #networking event for #NHS #digitalleaders

Four Summer Schools: CCIO, CIO, CNIO and Future Digital Leaders (new), with dedicated tracks and shared plenary sessions

Three best practice site visits: Birmingham University Hospital, Birmingham and Solihull Mental Health and Birmingham CCG

Join your peers from across the UK and Ireland for two days of best practice exchange, networking and education sessions

19 – 20 July 

University of Birmingham


Taken from the webpage

Book your places via the link below  >>>

Digital Health Summer Schools

Visit the digitalhealth.net website to opt-in for e-newsletters  >>>





#OMF #DrRonDavis #LindaTannenbaum #IIMEC13  #BRMEC8  #Italy |  (OMF) Open Medicine Foundation | 12 June 2018

Tour impressions after a unique event in Italy:
“My heroes, the fighting patients, parents & caregivers.”


Opening lines:

‘We arrived Thursday, June 7, on our last stop of our End ME/CFS Worldwide Tour in Zanè, a town in the province of Vicenza, Veneto, Italy. We were welcomed with a lovely dinner we shared with Giada Da Ros, President of the CFS Italian Association, Paolo Maccallini , Dr. Eligio Pizzigallo, and other new friends.

Giada, also coordinator of OMF’s Italian Translations Team, did an absolutely amazing job planning the event on Friday with the teams of the CFS Associazione Italiana onlus and the Associazione CFS onlus.’

Linda signing off:
‘We are all in this together. Don, myself, and all our OMF colleagues can’t thank the organizers enough for their excellent work and warm welcomes. Thank you from the bottom of my heart.
With hope for all,’
Linda Tannenbaum

Open Medicine Foundation®
Fast-tracking revolutionary research for ME/CFS
and related chronic complex diseases
OMF is a non-profit 501(c)(3) organization
(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.

Visit the OMF website for news and other interesting readables, you can also opt-in for newsletter updates >>>


#stemcells #Lyme  #LymeDisease ##healing #healthjourney

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey |  Terry Mayfield, The Blathering Lymie |  Color Me Lyme  | 31 May 2018


‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’

Read more via this link  >>>

About the Author  >>>

For more blog posts and newsletter opt-in visit the site  >>>

#ThePsychologist  #Research  #magazine  #BPSResearchDigest

BPS Research Digest  | 31 May 2018

‘Every week we bring you engaging reports on the latest psychology research. Anyone can subscribe free. We also provide daily updates on the latest psychology research via our app and on varying social media channels.’

The Psychologist is the monthly magazine of the British Psychological Society that you can find via this link  >>>

Visit The BPS website and opt-in for news updates and newsletters  >>>

Find BPS Research Digest  >>>


The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society, All rights reserved.


#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy


Societal Impact of Pain


SIP Newsletter May 2018 

SIP Newsletter May 2018

Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed  >>>


#Research #Datacentre #ME #CFS #collaborative  #OMFScienceWednesday

OMF funds Harvard Collaborative Center and expands Data Center  |  Open Medicine Foundation | 23 May 2018

From the introduction:

ME/CFS Collaborative Research Center at the Harvard:

We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’

Read more via this link  >>>

Visit the Open Medicine Foundation website for more readables and useful information including research news  >>>


#ArthritisAwarenessMonth #May2018Arthritis  #arthritis

Arthritis Action eNews |  May 2018

Headlines >>>

  • Stress: are we coping?
    • Mental Health Awareness Week
  • New ventures: Blackpool
    • Expanding our network
  • Fundraising made easy
    • Amazon Smile

Plus more…

Visit the Arthritis Action website for more information, advice and sign-up for their newsletter  >>>



#endometriosis explained for #men #husbands

Straight, No Chaser: Endometriosis  |  JeffreySterling MD  |  18 May 2018


‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’

Read more via this link  >>>

Excellent newsletter!

Girls With Guts  (GWG)| May 2018 Newsletter | Get in the spirit! |  2 May 2018

Visit the site to find out more about GWG and the work they do >>> 


#backpain #chronicpain #muscles #rhomboidmuscles

Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018

Home Page >>>


#RareRevolution #raredisease #rarebabies 

Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018

Quoted from e-news mail:

‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’

Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>


Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue  |  May 2018


Read the magazine via this link >>> 

Flare – The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue

Why not visit Flare magazine website and sign up for the magazine >>>

 Flare Magazine website 

#MHAM #MigraineAwareness #HeadacheAwareness 

June is National Migraine & Headache Awareness Month (MHAM)  

2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History

Click this link to find out all about the campaign and how to get involved  >>>

MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.

Need your help NOW for June 2018 launch

June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.

CHAMP Home page >>>  headachemigraine.org/

 Research & Clinical Trial matching

Headache and Migraine Clinical Trials  |   Research & Clinical Trials > Headache and Migraine Clinical Trials  | National Headache Foundation

Match to clinical trials in 60 seconds

Know your options
Access the latest treatments
Receive world class care

Click the link below to check it out and subscribe to their newsletter  >>>

‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation

About the National Headache Foundation  >>>

Voices required!  Nursing associate consultation |  The Nursing and Midwifery Council  |  9th April to 2 July

We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.

This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.

Visit the link below >>> 

The Nursing and Midwifery Council  >>>

“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”

Newsletters from News-medical | Life Sciences >>>

News Medical | Arthritis Newsletter | 3 April 2018


NEW!  News Medical |Allergies Newsletter | 15 May 2018 


News Medical |Dermatology Newsletter | 31 May 2018


NEW! Newsletters from News Medical |Genetics | 6 June 2018  

Headliner:  Researchers call for new genetic tests for congenital diseases

Article information:

Researchers have discovered that genetic mutations called epivariations are the cause of certain neurodevelopmental disorders and congenital diseases.


News Medical |Neurology / Neuroscience Newsletter | 29 May 2018

News Medical |Pharmacy / Pharmacology Newsletter | Headliner:  People who use medical marijuana have higher rates of prescription drug use, study finds |  27 April 2018


New!  News Medical |Psychiatry Newsletter |  7 June 2018  



Latest!  News Medical  |  Rare Diseases  |  23 May 2018 


Latest!  |  News Medical |Rheumatology Newsletter |  Headliner:  Simple changes to diet could help reduce osteoarthritis symptoms|  1 June 2018  


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | June 2018

Meditative Mind  Published on 7 Jun 2018

If you enjoy this then please visit >>>

Via:  www.youtube.com


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Also like to share other posts by fellow bloggers and organisations too

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com and let me know, always happy to help 🙂

Many thanks for reading and helping to share the news that other folks like you write, or, find.


Many thanks SQUARE POSTER Communit


  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
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  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
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  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018