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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

How to employ your own Personal Assistant (PA)

Great Post with fabulous advice Re: hiring a Personal Assistant

How to employ your own Personal Assistant (PA)

By: Charity Scope

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June 14, 2017December 31, 2017 fibrofly73Blogs / Bloggers, chronic illness, chronic pain, invisible illness, Self-Help Guide, Spoonie Talk, The hints and tips station, UncategorizedDisability, independent living, Personal Assistance, Self-Help, Social Care

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Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
EDS and Chronic Pain News & info Blog about EDS and Chronic Pain sharing appropriate news and info
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
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Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com

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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Don’t be afraid to reach out!

Fight or Flight?

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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3 high-protein recipes to help hit your January goals : Pancakes, flatbreads, and sandwich loaves that deliver a big protein hit. January 10, 2026
Put down that protein shake — there are better ways to hit your protein goals. Specifically, with pancakes and bread. Not what you expected? Protein and baked goods don’t typically go together, but these clever recipes prove that with a few powerhouse ingred..
King Arthur Baking Blog
The best pizza is flaky pizza: Introducing our 2026 Recipe of the Year: Flaky Puff Crust Pizza! January 10, 2026
There are millions of pizza recipes in the world, including the wildly beloved Crispy Cheesy Pan Pizza, our 2020 Recipe of the Year, not to mention conve The post The best pizza is flaky pizza: Introducing our 2026 Recipe of the Year: Flaky Puff Crust Pizza! ..
King Arthur Baking Blog
The 14 best recipes to bake in January: Start the year off with a bang. January 10, 2026
Whether your New Year’s resolutions include spending more time baking or you’re simply looking for a fresh new recipe to make this winter, we’ve selected 14 of our favorite recipes to bake right now. From cheesy gratins for cozy nights to zippy passion fruit ..
King Arthur Baking Blog
The Ultimate Peanut Butter Cookie Guide January 10, 2026
If you love peanut butter cookies you’re in the right place! We make peanut butter cookies so often and I have over 40 recipes on this site – I’ve been making these cookies for over 20 years and have become the expert at all things peanut butter. This is the ..
Crazy for Crust
Peanut Butter Football Dip January 10, 2026
The original Peanut Butter Football Dip – a football shaped sweet dip filled with peanut butter and chocolate! One of the BEST Super Bowl Dips ever! Peanut butter, cream cheese, butter, and sugar mix to make a sweet cheeseball recipe that’s perfect for a part..
Crazy for Crust
"Ma Vie En Rose (My Sweet Life)" Rose's Memoir is in Production!! January 10, 2026
photo credit to tai blanche We are happy to announce that Rose’s memoir "Ma Vie En Rose (My Sweet Life)" will be coming out in Fall of this year. Rose has written down stories and published articles throughout her life, which she has spent the last two years ..
Real Baking with Rose Levy Beranbaum
<![CDATA[Strategies for Improved Collaborative management of Personality Disorders in Correctional Facilities]]> January 10, 2026
Psychiatric Times
<![CDATA[Accident, or Is It? The Watershed Area Between Trauma and Suicide]]> January 10, 2026
Psychiatric Times
<![CDATA[My Psychiatric Word of the Year 2025 Is . . . What Might be Yours?]]> January 10, 2026
Psychiatric Times
<![CDATA[poem where no one is deported]]> January 10, 2026
Psychiatric Times

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A place of serenity by the pool

Who would you like to sit and chat with?

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Great place for sound imagery, hear the watery echoes

StillnessSpeaks.com

An image to guide your mind to anywhere whilst laying on the beach

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Feel the stillness and breathe long and deep

What will you find if you wander through the gate

A scented garden to take your mind on a soothing aromatic journey.

A picture for using your imagination to take you on a peaceful journey

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

An eye into the unknown

Guide yourself down the path to the…?

… forget about the world and spend some time on yourself

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Fantasy land

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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